Im only 16 and have had Raynuads for about 4 years now.
It's really bad and i do get upset and down about it, is it selfish of me to do that when there are people a lot worse of than me. I always try to think how im lucky but sometimes it all gets too much. Is that bad?
im only 16 to and feel really sorry for myself most time, i have scleroderma but there is people alot worse than me to, i think the same as u , like is it selfish of me. I was told yesterday to feel what i like, its me thats suffering so its normal! 
Its not selfish, however if you have a long term condition - whatever it is - you have to learn how to manage it and deal with it in the best way you can. Stress can actually bring on raynaud's, so learn how to keep warm and also how to relax (warm bath, music etc)
Thank you, don't know what I'd do without my music!
You are not being selfish by feeling like you, i agree with the previous comment. Find ways that help you relax, listening to music, reading, having a warm soak, walking the dog, watching a dvd. Wearing gloves, talking to people about how you feel, stress is a trigger of Raynauds. Wrap up warm in winter, get some funky fingerless gloves to wear in summer in the sales, stock up with gloves now. get some nice fluffy socks to wear. take care
you control your Raynaud's, don't let it control you - easier said than done i know.
Thank you so much for your comment! I really appreciate the support, i get stressed quite a lot of the time, i think sometimes i let it rule my life but i want to talk to people that are experiencing the same as me. It means a lot to me that i can talk on here
Thank you
Are you being treated for your Raynaud's? Tell us. Also tell us something of your life and what you like to do so we can help there. It is natural for you to feel sorry for yourself but don't get darwn into that state, it leads nowhere. Someone said "Self pity never peeled potatoes". It's of no use.
Talk to us
If it is selfish then I guess I am selfish too! CREST and PAH rule my life. Every day. I cannot make plans from one day to the next as I never know if I will be able to get out of bed. I rarely leave the house and am constantly cancelling appointments. I am home alone about 80 percent of the time as my husband works long hours and my kids are grown with families of their own. I have no other relatives nearby (the closest is 8 hours) and no friends in the area. I know it could be worse as I am stll able to walk, talk, and feed myself. It is tough trying to cheer myself up all of the time and I don't talk to anyone...I have to have a double lung transplant and I'm scared to death. The testing for transplant is awful and painful but the alternative is not what I want either. I am so horribly lonely I cry - a lot. I just want my life back! I know complaining doesn't help and I am extremely grateful for what I do have and am able to do. I'm sick and tired of being sick and tired! I spend my time reading, sleeping and watching sitcoms and old movies. Sometimes the tv is the only way I hear another human voice (other than my husband's) for days. I'm sorry to complain I have no right, there are many others much worse off than I am...
Scleroderma.. What exactly is it?
IS IT GOOD TO DO YOGA WITH PAINFUL JOINTS
Is it worth getting a diagnosis?
Scared but not really
