I was horrified this morning when the weather report stated that Russia was suffering from -16 weather , that was until I realised that it was heading our way .
I have started to have my groceries delivered because my hands are so bad ,I cannot hold a bag without my fingers turning black , getting home delivery is a real bonus .I can order as many heavy items as I need to without the worry of not being able to carry it .
The delivery arrived on time , and I went outside to greet the driver and give instructions , and to my horror it started snowing. Don't get me wrong I was well covered up ..I must look like a Russian doll with all the layers of clothing I have on , yet in the two minutes it took for me to talk to the driver I felt my hands getting worse .
When I got back indoors and all the shopping was unpacked .I took off my gloves to be greeted with black and blistered fingers ...ewwwww ! I had an Ilprost infusion over Christmas and the rheumy said that It should see me right for 4 to 6 months ..uh huh ..here we are just five weeks later and my hands are as bad as they were when I was admitted to hospital....I'm taking my lorsatan daily but nothing seems to be helping ..while on the subject .I am confused as to why people talk about Raynauds attacks ...I have seen it mentioned in many questions and blogs and find myself asking the question ..'Am I really suffering from it ? For me it isn't something that comes and goes in ten minute or half hour intervals .It is constant , I haven't been able to feel my hands properly since mid September ...maybe I have something like it but not exactly it ?'
Then I think again and say to myself , there are people a lot worse off than myself out there , stop the moaning and complaining I've got it easy compared to many ...