Posts - PSP Association | HealthUnlocked

PSP Association

9,315 members • 11,376 posts

All posts for April 2024

brand new

my first day here, my wife of 37 years was diagnosed with PSP this morning.. It took a years to get this diagnosis, she was in an accident and had a TBI and...

my first day here, my wife of 37 years was diagnosed with PSP this morning.. It...

Advocate10

•1 month ago

1 Reply

Mom's Journey

Hi all. I haven't been on in a while. Last month, my mom with psp fell and broke her pelvis. After hospitalization, she was moved to a rehab facility. It...

Hi all. I haven't been on in a while. Last month, my mom with psp fell and bro...

christie329

•1 month ago

2 Replies

PSP Spasms

My wife was diagnosed with PSP some 3 years ago and is now suffering regular pain and spasms in her legs, she is on Co-Caroldopa 4 times a day and our GP as...

My wife was diagnosed with PSP some 3 years ago and is now suffering regular pai...

Prius1

•1 month ago

11 Replies

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Palliative care

We have a home visit booked for this afternoon for a palliative care plan to be put together. Does anyone have any words of wisdom or tips for us please? Thank...

We have a home visit booked for this afternoon for a palliative care plan to be ...

Italiansunsets

•1 month ago

2 Replies

CBD awareness

Hello this is my first post. my brother lives with me and he has always had complex needs. Diagnosed with CBD in 2021 but symptoms since 2018. Off his feet...

Hello this is my first post. my brother lives with me and he has always had co...

Campsiewalker

•1 month ago

12 Replies

Travel Insurance

Wife recently diagnosed with CBD. Lost use of 1 arm, other one is less under her control. Balance is variable. Looking to travel to Spain. Any...

Wife recently diagnosed with CBD. Lost use of 1 arm, other one is less under...

1957spurs

•1 month ago

6 Replies

CHC FUNDING

Hello has anyone had CHC funding removed because they see the needs are managed ?We are due for a review and there was a veiled threat last time. It's such a...

Hello has anyone had CHC funding removed because they see the needs are managed ...

Northstar1

•1 month ago

35 Replies

Painful toes - mother with CBD

My mum has CBD, and whilst still able to walk, has decreased mobility and has been suffering from painful toes, initially from chilblains, but still...

My mum has CBD, and whilst still able to walk, has decreased mobility and has be...

PeterPanandLostBoys

•1 month ago

2 Replies

Pleasure and Pain

My mum 80, was diagnosed in 2022 with PSP and it has been a fairly rapid decline. I lived with her and used to shower her before work and came home at lunch...

My mum 80, was diagnosed in 2022 with PSP and it has been a fairly rapid decline...

mumnme

•1 month ago

4 Replies

CBD diagnosis

After 4 years of pushing him, pushing for tests and watching a 6 foot plus ex Royal Navy football/rugby player fall, loose the use of his right hand and leg,...

After 4 years of pushing him, pushing for tests and watching a 6 foot plus ex Ro...

Georgiomurfio

•1 month ago

12 Replies

Running in aid of PSPA

Whilst my husband, Chris, lost his fight with PSP at the end of December 2019, our middle grandson James Weston will be running as part of the PSPA team in...

Whilst my husband, Chris, lost his fight with PSP at the end of December 2019, o...

AnneandChris

•2 months ago

5 Replies

PSP speech

Husband has psp for about 5 years has no mobility balance very bad frequent falls speech nearly unintelligible I am very frustrated re speech. Have carers...

Husband has psp for about 5 years has no mobility balance very bad frequent fall...

Morag1952

•2 months ago

3 Replies

Couldn't wake Mum up

Hello everyone. It's not often I post here, however I read lots of the posts and take comfort in this community. My Mum was diagnosed with PSP in 2018. She now...

Hello everyone. It's not often I post here, however I read lots of the posts and...

Spiderwebb21

•2 months ago

16 Replies

Seizures

Hi everyone, my Dad is in the later stages of PSP, his speech has pretty much gone apart from the very occasional word, he’s now in a wheelchair and is...

Hi everyone, my Dad is in the later stages of PSP, his speech has pretty much go...

jmorrish

•2 months ago

8 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for April 2024

brand new

Mom's Journey

PSP Spasms

Palliative care

CBD awareness

Travel Insurance

CHC FUNDING

Painful toes - mother with CBD

Pleasure and Pain

CBD diagnosis

Running in aid of PSPA

PSP speech

Couldn't wake Mum up

Seizures

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive