Anyone on oxygen think it is a great improvement.
My Hospital Doctor says I need oxygen for everyday tasks and getting around.
But still waiting,is it normally a long process
Any ideas how to speed things up , I am really struggling when walking
Soon as I Stand up I start getting breathless
On another note I have finally been granted a blue badge.
Being on home oxygen does usually make you feel a lot better than you are without it of your blood oxyge levels were low!! If they were normal - then it won't but yours were low weren't they? I glad someone has finally taken it seriously.
I doubt anyone here is on supplemental oxygen - but your GP should be able to answer your questions about getting it now the hospital has said so. They can't prescribe it, the hospital consultant must do that, but the GP should be able to contact the respiratory nurse to find out if it has been as opposed to the doctor mentioning it in passing.
Have you had all the tests done -spirometry and so on?
nhsinform.scot/tests-and-tr...
Thank you for sharing this! I’m headed to Vancouver in January to stay with my aunt who has chronic COPD. She’s been assessed for home oxygen about 1 year ago, but there was no follow up (I believe my aunt is resistant to transitioning to oxygen therapy as it marks the progression of her condition). She watched her mother go through this condition that she eventually died from, so it must be so difficult to now grapple with the same process. Every time I visit her (yearly), I see her decline.
I will discuss this option with her as it will likely give her relief.
What is the point of denying it? The condition has already progressed - with O2 she'd be able to do so much more and be comfortable. And probably live longer.
I know. Her world is shrinking without it…and I imagine quite scary to not be able to breath. A practical, yet sensitive chat is in order when I’m there. In the end it is her decision, but it’s difficult watching her struggle. Sigh☹️
Sigh indeed. I think it must be one of the most scary things if you can't get your breath. As Ronzy says, he can't even manage much at home - and with oxygen you CAN get out of the house, carrying it in a back pack or on a rollator/shopping trolley and immediately you have more independence. And you just FEEL better in that situation. If your sats are low you are bound to feel better. Of course - is it affecting her cognitive ability? That makes talking gentle sense with her may be even harder. Maybe you can blackmail her into trialing it for a few days "for me"?
my MIL has COPD and was in hospital. In order to get her home they prescribed oxygen and it was organised the next day. I would have thought the hospital Dr would have been able to tell you through the process. Can you get in touch with them?
My MIL already had a portable oxygen machine for exercises but that was part of an oxygen assessment. This is in Ealing, London.
The only time I’ve been given oxygen was on a train in Peru in the Andean Highlands earlier this year for altitude sickness. It immediately made me feel better. In fact so much so I was able to continue my journey and see Machu Picchu and Lake Titicaca. Taking the oxygen was like magic - I had two short sessions. I’m sorry my story isn’t much use for your question but if the oxygen helps your situation then I hope all the details get resolved soon. Others on here I am sure will point you in the right direction. All the best.
I have just been given ambulatory oxygen as my sats drop on movement but are fine when sat. Was referred to hospital by community respiritory nurse and got a hospital appointment for the test in 4 weeks. Went last Tues. Oxygen delivered Thursday. Good luck
Ps. Will let you know if it helps when I have used it a but longer
sorry, but chase your hospital doctor!!!!! I’ve had low sats through asthma & been on oxygen at times, & it can work quite quickly, & is definitely an improvement (for the majority!) How can we say it will be for you? We are not doctors & don’t know your full medical history! But if they say you need it, then I hope it helps!
How can I chase hospital doctor 😟 please
By phoning the department in the hospital…if you haven’t been given their details, phone the main number & ask for the department where they see you (for example cardiology, rheumatology…wherever you go to have your appointments!! Ask for their secretary, as you may not get the consultant on the phone. Ask them for their telephone number when you ring, as you may need to ring again with reference to oxygen supply!!
Ring the hospital Dr's secretary.If you don't have the contact number ring the hospital switchboard and ask to be put through to relevant Dr's secretary.
And ask for the direct number for next time.
ThANKS WILL TRY THAT
I know this as have to do it regularly!Best wishes that you get sorted ASAP.
I an on oxygen 24/7 for 3 years it takes some getting used to. You need to learn how to manage the supply the equipment, your dosage. You shouldn’t have to wait this long if you need oxygen if your oxygen is too low, it will damage your heart and lungs do you have a pulse oximeter?.
Thanks for info yes I have oximeter but. Don’t use it much these days as I just see my blue fingers and lips
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Has anyone experienced a spontaneous need for a deep breath? 
