Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,230 posts

All posts for July 2024

swollen painful eye with blurred vision

I'm probably just stressing but I have this swollen and painfiul eye, no discharge, no other classic GCA symptoms,i.e. headache, temporal lobe pain, raised...

I'm probably just stressing but I have this swollen and painfiul eye, no dischar...

Fatsiajaponica

•3 months ago

18 Replies

Amt. of calcium to take daily

How much Calcium shoud I be taking daily? I have PMR and GCA. I take prolia shot every 3 months and a shot of methotrexate once a week. I exercise daily...

How much Calcium shoud I be taking daily? I have PMR and GCA. I take proli...

ayoung

•3 months ago

7 Replies

3mgs "maintenance dose"?

PMR symptoms since June 2020. Formally diagnosed by rheumy September 2020. Put on 15mgs pred, AA (without a DXA 🤔) which was changed to Risedronate earlier...

PMR symptoms since June 2020. Formally diagnosed by rheumy September 2020. Put...

Grannymiaow

•3 months ago

3 Replies

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prednisone burst

I am sick all the time—sore muscles, drippy nose, sneezing, red fingers, gi distress, weak, can’t breathe (although blood oxygen 100%), etc. went to er...

I am sick all the time—sore muscles, drippy nose, sneezing, red fingers, gi dist...

Twopies

•3 months ago

23 Replies

can someone explain please

During a conversation with my husband concerning my PMR, l told him that l was in pain that day. He asked why l didn’t request some stronger/more effective...

During a conversation with my husband concerning my PMR, l told him that l was ...

Legsandmore

•3 months ago

19 Replies

Covid booster

hi looking for some information/ advice please. 3 months ago I paid for a private Covid vaccine and received the Novavax . I was not in the age group for a...

hi looking for some information/ advice please. 3 months ago I paid for a priva...

Main1234

•3 months ago

13 Replies

Dexa scan

Well, that was refreshing. I have just had a repeat dexa scan, and the radiographer took the time to question me about PMR and PsA. When I told her I had...

Well, that was refreshing. I have just had a repeat dexa scan, and the radiograp...

Jooster

•3 months ago

4 Replies

Do you have the symptoms of Dry Eye Syndrome? Is your doctor helping you manage it?

This set of links popped up today and I thought it was worth posting about. Many of us DO have dry eyes and it is clear from these articles that it isn't taken...

This set of links popped up today and I thought it was worth posting about. Many...

PMRpro

Ambassador•3 months ago

14 Replies

How to best deal with a flare

I’m on my second tapering cycle and have been on 5mg pred/day for about six weeks now. I have pain in both shoulders and suspect this is what is known as a...

I’m on my second tapering cycle and have been on 5mg pred/day for about six week...

Mervetheswerve

•3 months ago

9 Replies

Heat causing stress with GCA?

Has anyone else noticed an increase in head and scalp discomfort when it is very hot?

Has anyone else noticed an increase in head and scalp discomfort when it is very...

AlamedaCounty

•3 months ago

4 Replies

Vasculitis and Cardiomyopathy

Over a year ago, I wrote about having a blood clot in my left anterior descending artery. I had a catherization and was told that all the other arteries were...

Over a year ago, I wrote about having a blood clot in my left anterior descendin...

Miacaro45

•3 months ago

17 Replies

Update re: groin pain

A week or so ago I asked about left sided groin pain following a fall off a landing. It felt a lot like initial PMR pain but was not bilateral. On your advice,...

A week or so ago I asked about left sided groin pain following a fall off a land...

proactive

•3 months ago

6 Replies

Pickleball

Just wondering if anyone has tried this. I used to be a big tennis player, so thought this would be a good, lighter version of that. I've tried it twice....

Just wondering if anyone has tried this. I used to be a big tennis player, so t...

winfong

•3 months ago

16 Replies

Thin, easily damaged skin

A common complaint amongst those who've been taking pred for some time is skin which becomes fragile and tears easily. I've just stumbled upon a product...

A common complaint amongst those who've been taking pred for some time is skin w...

HeronNS

•3 months ago

15 Replies

Statins

I was reading about statins -- my rheum dr wants me to take one but my primary care thinks that since imaging ofmy heart showed that there aren't blockages it...

I was reading about statins -- my rheum dr wants me to take one but my primary c...

Paulagcl

•3 months ago

25 Replies

Another Update!!

My tests went well today and no sign of cancer. The Cystoscopy wasn’t as scary or uncomfortable as I had thought and Yes PMR Pro better than the dreaded smear...

My tests went well today and no sign of cancer. The Cystoscopy wasn’t as scary o...

Macas

•3 months ago

9 Replies

Wakey wakey

Sorry if this is a daft question, but how do you know if your adrenals are starting to do their job? I am reducing slowly and am currently on 4mg Prednisilone....

Sorry if this is a daft question, but how do you know if your adrenals are start...

Content1

•3 months ago

10 Replies

PMR temporary increase

Almost 3 months in with 20 mgs methotrexate weekly and tapering Pred currently at 10 mgs . Going Down to 9 mgs august 1st and then 1 mg per month . I have...

Almost 3 months in with 20 mgs methotrexate weekly and tapering Pred currently a...

Sunny1947

•3 months ago

4 Replies

Definitive diagnosis of GCA after 7 years

I was first diagnosed with GCA after having painful headaches and high inflammatory markers. I had a negative biopsy and no jaw claudication nor effects to...

I was first diagnosed with GCA after having painful headaches and high inflammat...

Manihiki

•3 months ago

9 Replies

Something positive after a lot of bad

In the last 6 months I've lost my husband, sold our business, sold my house, had my car stolen, was hospitalized twice with pneumonia and broke my right ankle....

In the last 6 months I've lost my husband, sold our business, sold my house, had...

Amkoffee

•3 months ago

14 Replies

Sometimes You Just Have go Stamp Your Foot and say GRRRRRRRRRRRRRR

Had my first day on Sunday when, for the first time in four years, I didn't have to get up for an 02:00 tablet, first day of taper from 0.5mg to 0.0mg. Was...

Had my first day on Sunday when, for the first time in four years, I didn't have...

Bcol

•3 months ago

39 Replies

Is this a flare?

Morning everyone. Would appreciate opinions/advice. I’ve almost finished a long taper to 5.5mg after 6 years. About a week ago I felt pain in left hip on...

Morning everyone. Would appreciate opinions/advice. I’ve almost finished a long ...

Temeraire

•3 months ago

30 Replies

Calcium supplements - drawbacks

Was not prescribed calcium supplement or Vit D, taking the latter with K2 following advice from the forum. Now concerned about taking a calcium supplement...

Was not prescribed calcium supplement or Vit D, taking the latter with K2 follow...

Fatsiajaponica

•3 months ago

29 Replies

Update

I posted 4 weeks ago about waiting for tests for blood in urine. I received my hospital appointment and saw Urologist within the two weeks pathway, He decided...

I posted 4 weeks ago about waiting for tests for blood in urine. I received my ...

Macas

•3 months ago

17 Replies

GCA and Sjogrens, thank you for all your replies and information.

From reading all the your replies, it seems that opthomologists, rheumatologists, and , dentists can all play a part in diagnosing and treating Sjogrens....

From reading all the your replies, it seems that opthomologists, rheumatolo...

Mstiles

•3 months ago

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GCA- Methotrexate

Hi I’ve been on prednisone since October 2023 for GCA. The last four weeks I’ve been prescribed Methotrexate also, the intention is to gradually reduce the...

Hi I’ve been on prednisone since October 2023 for GCA. The last four weeks I’ve...

Qscrabble8

•3 months ago

6 Replies

Still flaring after increasing Pred ? what do I do next please?

I started a pred reduction from 8.5 my to 8mg on 25 June using DL’s 5 week tapering schedule. I was doing ok but on day 19 day I started to get the tell tale...

I started a pred reduction from 8.5 my to 8mg on 25 June using DL’s 5 week taper...

Tiggy70

•3 months ago

12 Replies

Chewing the adcal calcium tablets makes me feel nauseous.

is there anything more palatable in the way of Calcium D3?

Gardening2811

•3 months ago

14 Replies

Tapering

Forgot to mention in my last post that results from the blood test for my Thyroid ie TSH and FT4 came back as abnormal meaning they were outside the reference...

Forgot to mention in my last post that results from the blood test for my Thyroi...

Blodders2

•3 months ago

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pmr advice

diagnosed with pmr 2018 been on pred all that time twice tapered to 0 and had to go back on. Been tapering 5mg to 1 mg 7 months. Feel dreadful. Fatigue like...

diagnosed with pmr 2018 been on pred all that time twice tapered to 0 and had to...

Barry2007

•3 months ago

74 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2024

swollen painful eye with blurred vision

Amt. of calcium to take daily

3mgs "maintenance dose"?

prednisone burst

can someone explain please

Covid booster

Dexa scan

Do you have the symptoms of Dry Eye Syndrome? Is your doctor helping you manage it?

How to best deal with a flare

Heat causing stress with GCA?

Vasculitis and Cardiomyopathy

Update re: groin pain

Pickleball

Thin, easily damaged skin

Statins

Another Update!!

Wakey wakey

PMR temporary increase

Definitive diagnosis of GCA after 7 years

Something positive after a lot of bad

Sometimes You Just Have go Stamp Your Foot and say GRRRRRRRRRRRRRR

Is this a flare?

Calcium supplements - drawbacks

Update

GCA and Sjogrens, thank you for all your replies and information.

GCA- Methotrexate

Still flaring after increasing Pred ? what do I do next please?

Chewing the adcal calcium tablets makes me feel nauseous.

Tapering

pmr advice

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