Something positive after a lot of bad

[Amkoffee]

In the last 6 months I've lost my husband, sold our business, sold my house, had my car stolen, was hospitalized twice with pneumonia and broke my right ankle. (I think that's all). So what is my good news? After years of elevated sed rate and CRP, I just tested normal! The only thing I can guess is that the Kevzara that I've been on is finally working. I am still taking 9mg of prednisone but now I think I'll taper faster then I have been to see how I do on just Kevzara. I hope it works.

[DorsetLady PMRGCAuk volunteer]

I hope so too - you need some good news you have definitely been through the mill recently. 🌸

[Bcol]

Given what you have been through, any sort of good news must be brilliant. Let's hope it continues. 🫂

[PMRpro Ambassador]

Sorry to hear that catalogue - really harsh.

But please be careful with the pred reduction because while Kevzara will manange inflammation to allow that, your adrenal function will be impaired and the Kevzara has no effect there other than allowing you to get the pred dose lower to encourage a return of normal function. But give it time.

[Amkoffee in reply to PMRpro]

You reminded me that I already have secondary adrenal insufficiency from taking pred before. I know I won't be able to drop to 0 but I know what I was good at before so let's hope my secondary adrenal insufficiency doesn't get in the way this time. Last time I was good with 20mg hydrocortisone which if I recall is the equivalent to 5mg pred.

[yogabonnie]

I am so sorry about your husband... and what a load of misfortune however it is good news and I will be excited to hear how it goes!!! Good good luck ahead!!

[SheffieldJane]

I am sorry that you lost your husband. 🌹

I am sorry that your life has been flooded with stress and you have been ill and injured. Wishing you well going forward , it is time.

[Jackoh]

what a very hard catalogue of events, especially losing your husband. Do hope and pray that this is the start of improvement in your circumstances and more peace in your life. 💐

[agingfeminist]

You sound such an amazingly resilient person...so much sadness and so many difficulties...sending you every good wish for the future

[Broseley]

Boy I thought my year had been bad! Well done for surviving and good luck with your taper!

[WilfDog]

You have had so much heartache and a lot to cope with. I'm so sorry to hear, but you have stood in the face of adversity and remained strong. Such resilience should be recognised. It is wonderful news that you are finally starting to feel the positive changes with the Kevzara, but please just be careful reducing your Prednisolone too quickly. It could have negative effects both in terms of adrenal insufficiency and flares, so slowly, slowly is my advice. Wonderful news. Hope you can move forward in a positive way xx

[Missus835]

So sad to hear you've lost your husband. What a strong soul you are to have gone through all this and remaining so. What an inspiration. Thank you for sharing. Hugs ~ Deb xx

[ImC_]

Your resilience is indeed inspiring. Very best wishes and hope life is kinder to you from now on - be sure to be kind to yourself ... slowly ... slowly does it. x

[Twopies]

when life gives you lemons…well, you’ve had ugli fruit! From here on out, the only way to go is up; wishing you all the best for the future.

[Myfoe]

Oh my you have had a very trying life lately!!May luck turn your way.. I have been on Kevzara for 6-months now like you it is starting to help I am down to 5.5mg prednisone and have actually had some great days I have also been able to dropped my methotrexate I have been struggling to drop below 5.5mg but I suspect that’s my body struggling to awaken my adrenals hang in there