Sometimes You Just Have go Stamp Your Foot and sa... - PMRGCAuk

PMRGCAuk

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Sometimes You Just Have go Stamp Your Foot and say GRRRRRRRRRRRRRR

Bcol profile image
Bcol
15 Replies

Had my first day on Sunday when, for the first time in four years, I didn't have to get up for an 02:00 tablet, first day of taper from 0.5mg to 0.0mg. Was still up but that's neither here nor there. Celebrating that all was going well and felt a bit rough on Monday and followed that with a really grumpy/achy/very painful wrists and hands, bunged up nose etc on Monday night. Felt a bit better this morning after a couple of Paracetamols, but had an enlightened moment and did a Covid test. Instantly positive!!!! OH bringing some new ones home as ours are slightly out of date so will try again later. Grrrrrrrrrr.

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Bcol profile image
Bcol
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15 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

GRRR indeed… hope it’s not, but plenty of TLC if it is. Hope you soon feel better.

Maybe hold on the taper until you know - and are out the other side - if it is Covid.

Bcol profile image
Bcol in reply to DorsetLady

It's fingers crossed, but have to say I wasn't surprised about it being positive. Certainly not feeling poorly enough for SD rules and will stick on 0.5 until its gone.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Bcol

😊

Bcol profile image
Bcol in reply to Bcol

Now confirmed after new, in date, test.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Bcol

😟

Sharitone profile image
Sharitone

Bad luck, but at least it wasn't a PMR flare!

Bcol profile image
Bcol in reply to Sharitone

Think I'd rather have a flare, I could sort that a lot more easily!!

yogabonnie profile image
yogabonnie

so sorry. but so great that you are holding well at .5! super. How did the taper go before this? How long on each dose from 2mg down? just curious!! Hope you have a mild case. It seems to be BAAAAAAAACK everywhere.

Bcol profile image
Bcol in reply to yogabonnie

From 10mg down, 5 week, 0.5mg DL Taper

PMRpro profile image
PMRproAmbassador

Oh GRRRRRRR indeed! There's a lot of it about according to both daughters who work front line NHS.

I think if the test is positive it suggests it is still working!! It is usually false negatives

Bcol profile image
Bcol in reply to PMRpro

The way I feel its definitely still working. 😢

PMRpro profile image
PMRproAmbassador in reply to Bcol

Get well soon - though it seems a persistent variety at present.

Bcol profile image
Bcol in reply to PMRpro

Thank you. It's got until next Monday when we go away with the littlies and then I'm sacking it!!

PMRpro profile image
PMRproAmbassador in reply to Bcol

Hope it is gone!

Kendrew profile image
Kendrew

Oh heck! Exactly what you didn't need so close to your holiday with the GC's. Hopefully Hazel won't develop it too. Keeping my fingers crossed for a fast recovery.

Chin up.

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