Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,074 members • 39,820 posts

All posts for June 2024

Too little Pred?

hello all- new here and am still working to understand PMR. I have a ton of blood tests done and my father has RA. I just turned 50 and am a very active,...

hello all- new here and am still working to understand PMR. I have a ton of bloo...

Hwle

•3 months ago

21 Replies

Steroid injection into Kiloid Scars

I have a dermatology appointment on Saturday (yes an NHS appointment on a Saturday) to review treatment of kiloid scars. I think one of the options suggested...

I have a dermatology appointment on Saturday (yes an NHS appointment on a Saturd...

scrambledegg

•3 months ago

2 Replies

Managing my Return from the Flare

Hi All, Grateful for the help from y'all on here regarding my recent flare and for pointing the way to the protocol for managing it. I was on 7mg Pred when...

Hi All, Grateful for the help from y'all on here regarding my recent flare and ...

Lickle

•3 months ago

7 Replies

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Starting the Joint Pain Programme today

Morning everyone, I might not have PMR any longer but have OA, etc so I applied for the Nuffield Joint Pain Programme and I start today. (it took 3 goes...

Morning everyone, I might not have PMR any longer but have OA, etc so I applied...

whitefishbay

•3 months ago

5 Replies

Using flexiseq - tips please

I have recently been discharged by my rheumy, despite my crippling knee pain which he thinks is OA. I am still on half mg pred, and take blood thinners so...

I have recently been discharged by my rheumy, despite my crippling knee pain whi...

Broseley

•3 months ago

7 Replies

Facial Numbness

Having an odd symptom and wondering if you kind folks have any insights. About a week ago, I noticed numbness around my eyebrows and forehead. It was so subtle...

Having an odd symptom and wondering if you kind folks have any insights. About a...

Lenore58

•3 months ago

12 Replies

How is PMR diagnosed?

At the end of January after starting on a weekly alendronate, I began having stiffness in legs and shoulder / arm pain. I couldn't get up from an arm chair...

At the end of January after starting on a weekly alendronate, I began having sti...

JubileePenny

•3 months ago

13 Replies

Colonoscopy

Just have a question. I was put on a 5 Day taper of 16mg of prednisolone. I took my first dose today along with a one time dose of diflucan. Will I be ok to...

Just have a question. I was put on a 5 Day taper of 16mg of prednisolone. I took...

Babciboys

•3 months ago

9 Replies

How rare is it to be diagnosed with PMR at age 45?

I am writing to ask advice from this excellent Forum which has been such a help to me in the 3 years since I was eventually diagnosed with PMR, having had a...

I am writing to ask advice from this excellent Forum which has been such a help ...

LeonardCohen

•3 months ago

11 Replies

Exhaustion

I'm off prednisone entirely now for about 10 days and am exhausted all the time. I guess this is "deathly fatigue?" I tapered super slowly, had been on just...

I'm off prednisone entirely now for about 10 days and am exhausted all the time....

Paulagcl

•3 months ago

7 Replies

Lightheadedness

Thanks DL and Pro for your advice re tapering back from sick day double up of 13mgs Pred (I had reached 6.5mgs and was surviving 😀). I dropped to 10mgs last...

Thanks DL and Pro for your advice re tapering back from sick day double up of 13...

Thelmarina

•3 months ago

17 Replies

Time change of predesilone.

I would like to change time from 10 pm to 8am for pred gastro resistance how do I do this with minimal effect on my body to assist with sleep difficulty. I’m...

I would like to change time from 10 pm to 8am for pred gastro resistance how do ...

Uglow

•3 months ago

4 Replies

Leaden Legs

ankles and feet always swollen by the end of the day. Feet feel like spongy lead. Skin on calf sensitive and red. I think it's due to the drug regime and...

ankles and feet always swollen by the end of the day. Feet feel like spongy lea...

cycli

•3 months ago

7 Replies

IV infusion Actemra vs. SQ

Just checking...if you have a choice. Which is the better option for PMR and GCA? IV or SQ? So far, I have had five, 400mg. (6mg. /kg. ) Actemra infusions...

Just checking...if you have a choice. Which is the better option for PMR and GCA...

Bummed24

•3 months ago

8 Replies

Going too slow reducing prednisone?

I began this PMR journey at the beginning of March 2023. Started on 15 mgs, then three weeks later 12.5, a month later 11 mgs then 3 weeks later 10 . A few...

I began this PMR journey at the beginning of March 2023. Started on 15 mgs, then...

Kingcharlesdog

•3 months ago

13 Replies

Milk - what works best?

This may already have been covered but I’d love to know about other people’s milk journey. We know we need calcium but should the milk we drink be full fat...

This may already have been covered but I’d love to know about other people’s mil...

Thelmarina

•3 months ago

103 Replies

methotrexate

I have been on prednisolone since last August for GCA/PMR and am getting down to lower levels (10mg). Rheumy wants to add methotrexate as need to get off...

I have been on prednisolone since last August for GCA/PMR and am getting down to...

bookbear68

•3 months ago

74 Replies

Hand inflamation following PMR

Hi there, I suffered bad PMR for nearly three years, strating on 30mg of pred. Tapering down until about six weeks ago... maybe too fast towards the end, the...

Hi there, I suffered bad PMR for nearly three years, strating on 30mg of pred. T...

Kiyomasa

•3 months ago

10 Replies

ESR elevated, normal CRP

Hi there, I haven't posted for a while as I successfully came off the prednisolone in January this year (well, I thought successfully).Since then (on March...

Hi there, I haven't posted for a while as I successfully came off the prednisolo...

Karendeena

•3 months ago

8 Replies

Pred Withdrawal??

My question is simple...I have reduced my Pred down to 2mg ( down from 8 mg 12 months ago) I am now tapering further so have been taking 1 mg every 3 rd...

My question is simple...I have reduced my Pred down to 2mg ( down from 8 mg 12...

Matua

•3 months ago

8 Replies

Shingles and PMR

Hi All, after a couple of days of feeling quite ordinary, I developed a horrible rash which was raised and blistered . My immediate thought was Shingles. I...

Hi All, after a couple of days of feeling quite ordinary, I developed a horribl...

Louisa1840

•3 months ago

28 Replies

disastrous appointment with new nurse practitioner

saw new nurse practitioner because I feel sick a lot…runny nose, puffy eyes, sneezing, etc. bright red fingers. Generally weak and lethargic, can’t walk too...

saw new nurse practitioner because I feel sick a lot…runny nose, puffy eyes, sne...

Twopies

•3 months ago

34 Replies

Dysthermia (temperature dysregulation)

Does anyone out there have it? For me, it's basically that I get overheated very easily - typically in situations with high humidity and higher (but not...

Does anyone out there have it? For me, it's basically that I get overheated ver...

winfong

•3 months ago

26 Replies

Follow-up with Rheumatologist Re: Pred Tapering

I wanted to give an update from my last post, since so many of you were kind enough to offer suggestions, about my concerns regarding my rheumatologist’s...

I wanted to give an update from my last post, since so many of you were kind eno...

Moaningxcat

•3 months ago

8 Replies

Oh no not me again!😱Update on TCZ and LFT results

Good evening everyone,posting yet AGAIN regarding the above.Mainly for PMR pro and DL.Probably bored everybody else!😂Anyway,phonecall from rheumys...

Good evening everyone,posting yet AGAIN regarding the above.Mainly for PMR pro ...

Angelsmummy

•3 months ago

24 Replies

painful hands finger joints , arthritis or pred withdrawal?

seems my hands started hurting within days after starting taper from 5 to 4 mgs of pred, coincidence? i have been on 4 mgs now over a month or so, since pred...

seems my hands started hurting within days after starting taper from 5 to 4 mgs ...

arvine

•3 months ago

18 Replies

Blood test to DL and PMRpro

ESR 26.00- range 0.00-30.00 C-reactive protein 0.70- range 0.00-0.99

Aqua47

•3 months ago

4 Replies

Advice on alendronic acid please

Hi all, I was diagnosed with PMR a year ago and have tapered down to 4.5mg of Pred. Going very slowly! The DEXA scan I had last year showed I was one point...

Hi all, I was diagnosed with PMR a year ago and have tapered down to 4.5mg of Pr...

Hedgehogfriend

•3 months ago

16 Replies

Basal cortisol test result

Following my previous post, I had blood taken on 10 June and have just phoned my GP surgery for the result, which was given as 396nmol/l. The GP had noted “no...

Following my previous post, I had blood taken on 10 June and have just phoned my...

Billswife

•3 months ago

10 Replies

Blood test results

I got my results last week from rheumatologist visit (9 different tests). The nurse sent a message and told me results were normal, but continue orders to...

I got my results last week from rheumatologist visit (9 different tests). The nu...

Aqua47

•3 months ago

2 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2024

Too little Pred?

Steroid injection into Kiloid Scars

Managing my Return from the Flare

Starting the Joint Pain Programme today

Using flexiseq - tips please

Facial Numbness

How is PMR diagnosed?

Colonoscopy

How rare is it to be diagnosed with PMR at age 45?

Exhaustion

Lightheadedness

Time change of predesilone.

Leaden Legs

IV infusion Actemra vs. SQ

Going too slow reducing prednisone?

Milk - what works best?

methotrexate

Hand inflamation following PMR

ESR elevated, normal CRP

Pred Withdrawal??

Shingles and PMR

disastrous appointment with new nurse practitioner

Dysthermia (temperature dysregulation)

Follow-up with Rheumatologist Re: Pred Tapering

Oh no not me again!😱Update on TCZ and LFT results

painful hands finger joints , arthritis or pred withdrawal?

Blood test to DL and PMRpro

Advice on alendronic acid please

Basal cortisol test result

Blood test results

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