Lightheadedness: Thanks DL and Pro for your advice... - PMRGCAuk

PMRGCAuk

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Lightheadedness

Thelmarina profile image
•17 Replies

Thanks DL and Pro for your advice re tapering back from sick day double up of 13mgs Pred (I had reached 6.5mgs and was surviving šŸ˜€).

I dropped to 10mgs last Thursday and since then have slightly blurred vision and a feeling of lightheadedness. Do you reckon it was too big a drop - or would it be better to drop more to reduce this side effect if that is what it is? My PMR symptoms seem relatively in abeyance.

All input most gratefully received.

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Thelmarina profile image
Thelmarina
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17 Replies
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PMRpro profile image
PMRproAmbassador

I'd say it was possibly too big a drop all at once!!! Or was it part of the return to the previous dose? How long had you been at 13mg? But maybe you were still not recovered from whatever it was?

Thelmarina profile image
Thelmarina• in reply toPMRpro

I’d been at 13mg for a fortnight as had double antibiotics and this was part of the return to my previous dose of 6.5mg. And indeed I’m still feeling a bit poorly. Decisions decisions!

PMRpro profile image
PMRproAmbassador• in reply toThelmarina

Hmmm - if it were me I'd go back and drop in smaller steps until you feel recovered. Wonder what Snazzy will suggest ...

Thelmarina profile image
Thelmarina• in reply toPMRpro

Yes, I think you’re right. I was too keen! You know the frustrations…

SnazzyD profile image
SnazzyD

How long after dropping did it start? Are the symptoms there all the time?

Thelmarina profile image
Thelmarina• in reply toSnazzyD

Started almost immediately- and yes with me all the time.

SnazzyD profile image
SnazzyD• in reply toThelmarina

Is associated with movement?

If it were me I’d go back to 10mg and if there is a rapid and marked improvement, take that as a sign that it is drop related. Then drop much more slowly as the shift is clearly too much. As to how much that’s hard to say. I’d say start 0.5mg a week and speed up if it’s going ok but not too fast because you’re not going to be better yet. Be vigilant with the symptoms though.

Thelmarina profile image
Thelmarina• in reply toSnazzyD

I’m on 10mg at the moment. Shall I go to 11mg and see if there is improvement?

PMRpro profile image
PMRproAmbassador• in reply toThelmarina

I think at least that ...

Thelmarina profile image
Thelmarina• in reply toPMRpro

I’ll go back to 12mg or 12.5mg and check improvement. I may need more ā€˜adrenalin’ to cope with convalescence. If that works I’ll follow Snazzy’s guidelines. Life eh? A bag of surprises šŸ˜€

PMRpro profile image
PMRproAmbassador• in reply toThelmarina

Never a dull moment!!

Thelmarina profile image
Thelmarina• in reply toPMRpro

Still. Did see Andy Murray play at Queen’s. He still has flashes of sheer genius. He so loves the game. Champion!

PMRpro profile image
PMRproAmbassador• in reply toThelmarina

Saw a lot of it until it was fairly obvious he was going to manage the 3rd set and then I went to watch local news to find out the state of the disasters!

Sophiestree profile image
Sophiestree• in reply toThelmarina

Queens is one of the nicest places to go to. Loved working at Queens every year. So different to anywhere else.

SnazzyD profile image
SnazzyD• in reply toThelmarina

Sorry, yes. 11mg seems a bit neither here nor there

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Agree with others, too big a drop for you… so back to 12 or 12.5mg perhaps…

Thelmarina profile image
Thelmarina

Thanks so much all of you for your help. I can’t send you flowers but I’ll make a donation šŸ’

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