Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,074 members • 39,820 posts

All posts for June 2024

Cruising not always good

Hi everybody just to let you all know just home from holiday, and feeling well can only say like shit pardon my french, don't think I'll be doing again,...

Hi everybody just to let you all know just home from holiday, and feeling well c...

Harrywogan

•3 months ago

106 Replies

strange visual ever- report

thankyou for the replies which were reassuring. Saw new GP today who as great, blood tests ordered, doesn’t seem too concerned. Also discovered for any...

thankyou for the replies which were reassuring. Saw new GP today who as great, ...

Scaredofpred

•3 months ago

23 Replies

hands and fingers

hi all I am at week three of my PMR journey, and have been taking steroids at 15 mg then increased to 20, I am now taking 25 mg to see if that is any good. I...

hi all I am at week three of my PMR journey, and have been taking steroids at ...

JessJess21

•3 months ago

16 Replies

Want to take advantage of all our features? Just log in!

Peace of Mind

Over the past several months I've not been quite as active on the forum. This has been because I've been busy attending a host of appointments with different...

Over the past several months I've not been quite as active on the forum. This ha...

Kendrew

•3 months ago

81 Replies

MtX And pred timing

I am on year 5 of my PMR journey I know this is a question for my Rheumatologist but until I can get a hold of him thought I would throw it out there .I...

I am on year 5 of my PMR journey I know this is a question for my Rheumatolo...

Darcy2000

•3 months ago

8 Replies

PMR update - My nice GP

In retrospect, I was in full flare when I saw my GP last. I had got down to 2/3 mg from 6 mg in 0.5 mg steps on instructions from rheumatologist and I felt...

In retrospect, I was in full flare when I saw my GP last. I had got down to 2/3...

Gimme

•3 months ago

30 Replies

Dex scan and Osteoporosis

My cousin has asked me if she should go ahead and have the infusion ( she can't take AA). She's very nervous about possible side effects.Her last T-scores...

My cousin has asked me if she should go ahead and have the infusion ( she can't ...

diana1998

•3 months ago

14 Replies

intro to Methotrexate

5 years in and my Doc has me on a decreasing dose of Pred (now at12.5).He has started me on Methotrexate 1 month ago .currently on once a week after...

5 years in and my Doc has me on a decreasing dose of Pred (now at12.5).He has st...

Sunny1947

•3 months ago

3 Replies

does a dreadful cold affect GCA

I have dreadful cold ,sore throat congestion in my nose fatigue.i am going for bloods on Monday perhaps wait till I feel stronger.

I have dreadful cold ,sore throat congestion in my nose fatigue.i am going for b...

Bluemoon2023

•3 months ago

9 Replies

strange visual issue

12 weeks PMR. Generally feeling good. Rapid response to Pred follows g low taper advice gradually reducing to 10mg. However, have had a general headache for...

12 weeks PMR. Generally feeling good. Rapid response to Pred follows g low tap...

Scaredofpred

•3 months ago

10 Replies

PMR Newbie

I’m a PMR newbie that’s very relieved to be starting steroids today after blood test showed CRP levels 65 mg/l and painful knees, hips shoulder, muscular...

I’m a PMR newbie that’s very relieved to be starting steroids today after blood ...

Classicalgeeze

•3 months ago

6 Replies

You were right, of course, Dorset Lady!

I upped the dosage back to 1 mg yesterday and felt way better. I emailed my primary care doc (I think you there refer to this one as a GP) who immediately...

I upped the dosage back to 1 mg yesterday and felt way better. I emailed my pri...

Paulagcl

•3 months ago

13 Replies

Is musculosketetal condition associated with PMR

I have not written on the form for a while but would like your thoughts on the following: On Sunday night and all day Monday I had chest pain especially when...

I have not written on the form for a while but would like your thoughts on the f...

PatB1948

•3 months ago

11 Replies

PMR symptoms and Steroid sensitivity and withdrawal

I updated my profile a couple of weeks ago as I am feeling that the PMR recovery plan is not working. I had about 10 days at the beginning of my 15 mg start on...

I updated my profile a couple of weeks ago as I am feeling that the PMR recovery...

Dresdenplate

•3 months ago

18 Replies

Just reading this mornings posts - what is MXT ??

My diagnosis was in Oct 23. Am now on 2nd round of steroids. Currently at 10mg of pred with a 50% reduction of symptoms. I have spoken to my gp about going...

My diagnosis was in Oct 23. Am now on 2nd round of steroids. Currently at 10mg o...

RodRea

•3 months ago

17 Replies

Can PMR last for 5years+?

Hi allI was diagnosed with PMR in March 2019 after sudden onset of symptoms. CPR 95.3, ESR 71 which came down quickly after 15mg pred. Reduced to 5mg first...

Hi allI was diagnosed with PMR in March 2019 after sudden onset of symptoms. CPR...

Phoebe12345

•3 months ago

49 Replies

Double vision and PMR?

I have in recent years become more and more bothered by double vision when I am tired/fatiged. Of course, it is worse during flare-up periods. Now it can be...

I have in recent years become more and more bothered by double vision when I am ...

krillemy

•3 months ago

35 Replies

Hot flushes

Hello I’m on week 4 of daily pred (20mg), 30mg lanzaprozole, 70mg alendronic acid (weekly not daily). I’ve suddenly started having horrendous hot flushes -...

Hello I’m on week 4 of daily pred (20mg), 30mg lanzaprozole, 70mg alendronic a...

NewPMR53

•3 months ago

11 Replies

Pred and AFib

I was wondering if there is any link between pred and/or PMR and AFib? I had a catheter ablation in April 23 and had no further episodes until a fairly severe...

I was wondering if there is any link between pred and/or PMR and AFib? I had a c...

GRB8

•3 months ago

6 Replies

worsening vision left eye

I posted earlier a few weeks ago about problems with my left eye, the vision getting worse. Far distance looked like my vision did before cataract...

I posted earlier a few weeks ago about problems with my left eye, the vision...

Mstiles

•3 months ago

8 Replies

Bloating and gas

I've currently tapered from 25 mg Pred down to 11 currently over 5 months. My biggest problem with this whole prednisone/PMR journey right now is extreme gas...

I've currently tapered from 25 mg Pred down to 11 currently over 5 months. My b...

lsplumb

•3 months ago

8 Replies

Hearing loss and PMR ?

I had a hearing test yesterday and was very disappointed to find out my hearing has deteriorated quite a lot since my last test three years ago. I am now...

I had a hearing test yesterday and was very disappointed to find out my hearing...

simps999

•3 months ago

36 Replies

I think I have a problem again…

I am 68, have been suffering with PMR for approx 10 years. I have previously got down to zero pred but not for long as there was a family upset that left me...

I am 68, have been suffering with PMR for approx 10 years. I have previously go...

Crochetgirl65_

•3 months ago

9 Replies

Advice re calcium, K2 and vit D

Blood tests show normal levels of calcium, should I now take extra given the pred.? Also how much Vit D and K vit, reading through I have managed to get...

Blood tests show normal levels of calcium, should I now take extra given the pre...

Fatsiajaponica

•3 months ago

8 Replies

High blood pressure

As well as Tzc, I am taking 5mg pred, 10mg amitryptiline, naproxen, lanzoprazole, risendronate sodium, calcium and vit D. Could any of these be the culprit for...

As well as Tzc, I am taking 5mg pred, 10mg amitryptiline, naproxen, lanzoprazole...

AliDeJ

•3 months ago

7 Replies

Tocilizumab and raised blood pressure.

Hello all. I have been on Tcz for almost a year for recurrent GCA-.six injections left in my fridge. I am down to 5mg pred. I have tapered very slowly by 0.5...

Hello all. I have been on Tcz for almost a year for recurrent GCA-.six injection...

AliDeJ

•3 months ago

10 Replies

Rheumy happy with my decision to try a very slow taper!!😜👏🏼👏🏼👏🏼

Hi PMR pro and DL,and any others who might be slightly interested!🥱🥱🥱🥱🤣!Just had a long conversation with Dr Sykes and told him that I would if I possibly...

Hi PMR pro and DL,and any others who might be slightly interested!🥱🥱🥱🥱🤣!Jus...

Angelsmummy

•3 months ago

13 Replies

Medications and tiredness

Hi, I was diagnosed in October 2023 with PMR after ignoring and attributing the symptoms to old injury. I allowed the flare up to get to the point where it...

Hi, I was diagnosed in October 2023 with PMR after ignoring and attributing the ...

MarkC1971

•3 months ago

41 Replies

Pain increasing

I thought I was doing ok with 9 mg of pred since June 1. But it seems my hips and low back are hurting more lately. Walking is very painful and I’m slowing...

I thought I was doing ok with 9 mg of pred since June 1. But it seems my hips a...

Aqua47

•3 months ago

4 Replies

osteopenia

I’m currently on 2.5. First diagnosed 2018. My dexa scan shows osteopenia, I guess it was inevitable. I am going gym regularly now and can manage an hour...

I’m currently on 2.5. First diagnosed 2018. My dexa scan shows osteopenia, I gue...

Alazarin

•3 months ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2024

Cruising not always good

strange visual ever- report

hands and fingers

Peace of Mind

MtX And pred timing

PMR update - My nice GP

Dex scan and Osteoporosis

intro to Methotrexate

does a dreadful cold affect GCA

strange visual issue

PMR Newbie

You were right, of course, Dorset Lady!

Is musculosketetal condition associated with PMR

PMR symptoms and Steroid sensitivity and withdrawal

Just reading this mornings posts - what is MXT ??

Can PMR last for 5years+?

Double vision and PMR?

Hot flushes

Pred and AFib

worsening vision left eye

Bloating and gas

Hearing loss and PMR ?

I think I have a problem again…

Advice re calcium, K2 and vit D

High blood pressure

Tocilizumab and raised blood pressure.

Rheumy happy with my decision to try a very slow taper!!😜👏🏼👏🏼👏🏼

Medications and tiredness

Pain increasing

osteopenia

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive