Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,074 members • 39,819 posts

All posts for June 2024

An update on my post “Sudden foot pain”

The site references given to me have proven to be spot on and full of very helpful information. I have followed the advice and done the exercises and the...

The site references given to me have proven to be spot on and full of very helpf...

Nanatoo

•3 months ago

1 Reply

NHS pre diabetic programme- Second Nature

This is more on the helpful pre diabetic theme, currently running. I wonder if anyone has been offered this programme? I was called up, by my surgery, for a...

This is more on the helpful pre diabetic theme, currently running. I wonder if a...

Trulyscrumpious

•3 months ago

16 Replies

BONE DENSITY BETTER. same machine. Yippee Skippy.

Spine Results !!!! that is from doing HEEL DROPS (no meds! ) I do 50 a day. sometimes a couple times. for last year or year and 1/2 RESULT LUMBAR SPINE...

Spine Results !!!! that is from doing HEEL DROPS (no meds! ) I do 50 a day. so...

yogabonnie

•3 months ago

38 Replies

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GCA, Afib, heart failure

I was concerned my Afib following a TIA Aug 23 wasn’t controlled. GP requested bloods for BNP plus CRP/ ESR which hadn’t been done since March. I have had...

I was concerned my Afib following a TIA Aug 23 wasn’t controlled. GP requested b...

Bluey-1

•3 months ago

11 Replies

Seronegative arthritis

Is it possible to be medically retired if you have seronegative arthritis and trigeminal neuralgia?

Is it possible to be medically retired if you have seronegative arthritis and tr...

PurpleDuckie

•3 months ago

2 Replies

Dexa scan normal but wedge fractures anyway!!

A visit to the Pain Clinic finally produced an MRI scan of my thoracic spine. The result show wedge fractures which the doctor described as “significant”. Also...

A visit to the Pain Clinic finally produced an MRI scan of my thoracic spine. Th...

Omanain

•3 months ago

2 Replies

start tapering?

I was started on Pred 2 weeks ago initially 15mg and increased to 25mg 6 days later. Been relatively pain free last few days. The doctor said I needed to...

I was started on Pred 2 weeks ago initially 15mg and increased to 25mg 6 days la...

Gooner12

•3 months ago

10 Replies

Kinds of pain

I'm trying to decide which pain is which, and therefore how to improve things. I've been on Pred since 2016, never free of stiffness, but spent few years...

I'm trying to decide which pain is which, and therefore how to improve things. ...

ponai

•3 months ago

17 Replies

Breathless

8 months on Pred. Currently at 8.5. I am getting increasingly breathless on even a very short walk or going up the stairs. The fatigue is also worse. I have...

8 months on Pred. Currently at 8.5. I am getting increasingly breathless on even...

Dinahmite

•3 months ago

39 Replies

Tapering on low dose

I’ve been on 1.5 mgs for 4 weeks ( started on 15 mgs 3 years ago)… tried to reduce by a quarter yesterday.. cutting a 2.5 pill in half. Woke this morning with...

I’ve been on 1.5 mgs for 4 weeks ( started on 15 mgs 3 years ago)… tried to redu...

Bedwell

•3 months ago

13 Replies

help please - Im day 10 of 15 mg Prednisolone

hello all, im so glad you are out there. Im on day 10 of meds - 15 mg Prednisolone and its sadly not a magic wand. But i do feel some changes. My night time...

hello all, im so glad you are out there. Im on day 10 of meds - 15 mg Prednisolo...

JessJess21

•3 months ago

20 Replies

Reporting in to DL after a week of upping pred to 10!

Good morning folks.After superb help and comments from DL and PMRpro,I raised pred to 10 mg for a week which is up today.Still have fullness in ear ,groin pain...

Good morning folks.After superb help and comments from DL and PMRpro,I raised pr...

Angelsmummy

•3 months ago

14 Replies

Another update to Advice Please.

PMRpro, SnazzyD and DorsetLady. I had a Blood test done Tuesday, and an appointment to see the Rheumatologist Wednesday afternoon. She said blood test showed...

PMRpro, SnazzyD and DorsetLady. I had a Blood test done Tuesday, and an appointm...

pmrgcavictim

•3 months ago

4 Replies

K2 dosage

I take accrete D3 twice daily and have been taking one Vitamin K2 (90 ug) per day. Just wondering if this is enough? It says to take 1-2 a day on the box.

I take accrete D3 twice daily and have been taking one Vitamin K2 (90 ug) per da...

Suzan62

•3 months ago

15 Replies

P M Rheumatica

asking for advice please? I started with PMR last October, as soon as I was prescribed 15 ml Prednisolone I felt like I had been given a magic wand. The...

asking for advice please? I started with PMR last October, as soon as I was pr...

Winnie311

•3 months ago

11 Replies

club Zero

So, after almost 6 years with PMR, and many ups and downs, I am pred-free for 3 days and actually feel better! My last taper was .25mg pred for three weeks....

So, after almost 6 years with PMR, and many ups and downs, I am pred-free for 3 ...

Manchild

•3 months ago

12 Replies

A family emergency has arisen, need to travel to Italy for dying relative. Newly diagnosed, pred for a week, need advice how to manage.

So, I've been on 20mgs of pred for 1 week, miraculous recovery then blew it by doing too much (roundly told off on here!)Now stable again and review in 2 days....

So, I've been on 20mgs of pred for 1 week, miraculous recovery then blew it by d...

Fatsiajaponica

•3 months ago

15 Replies

Trigger for PMR

Is the forum aware that a tumour or similar was the trigger for PMR in someone? My rheumatologist sent me for tumour screening, a lung X-ray and a...

Is the forum aware that a tumour or similar was the trigger for PMR in someone? ...

Swizzly

•3 months ago

16 Replies

tapering from 3 down to 2 1/2

after finishing week 2 of D.L slow taper from 3mg to 2 1/2mg I was still feeling good. I decided to repeat week 2 as I have struggled in the past and wanted to...

after finishing week 2 of D.L slow taper from 3mg to 2 1/2mg I was still feeling...

Meggs01

•3 months ago

4 Replies

It’s not a flare it’s the journey

Having being diagnosed with PMR in Aug-23 I’ve been slowly tapering to 4.5mg. Over the last 6 weeks I’ve noticed a tiredness creeping in and a few aches and...

Having being diagnosed with PMR in Aug-23 I’ve been slowly tapering to 4.5mg. O...

SpaghettiWestern99

•3 months ago

19 Replies

3 months and counting...

Hi, everybody. I've not been on here for a while (the emails stopped for some reason), but here is my update. It has been 3 months since I tapered off...

Hi, everybody. I've not been on here for a while (the emails stopped for some...

PRL1957

•3 months ago

10 Replies

Cramps

Just a quick question, are muscle cramps, spasms a common feature of PMR eg since my symptoms started I get regular cramps in my legs or even other muscles if...

Just a quick question, are muscle cramps, spasms a common feature of PMR eg sinc...

Bagginswoodman

•3 months ago

11 Replies

Flare dosage after tapering to zero

Hello everyone, hoping to tap your wisdom. I'm experiencing my first flare (aching neck, shoulders, temples; thankfullyno visual symptoms) since getting off...

Hello everyone, hoping to tap your wisdom. I'm experiencing my first flare (ach...

Optim11

•3 months ago

10 Replies

PMR disease

I was diagnosed with pmr in February. I'm on prednisone 7.5mg, methotrexate 12.5mg and just took my first injection of kevzara. Praying I can get into...

I was diagnosed with pmr in February. I'm on prednisone 7.5mg, methotrexate 12...

Oldies60

•4 months ago

15 Replies

PMR relapse?

I would be grateful for some advice! I was diagnosed with PMR end of 2022. I was put on 15 mg Prednisolone and started tapering around 2 months in. I...

I would be grateful for some advice! I was diagnosed with PMR end of 2022. I ...

Salukimama

•4 months ago

19 Replies

Rheumatologist Pred Taper Schedule

I’m in need of your advice and counsel. Yesterday, I had a telehealth appointment with my rheumatologist. I was diagnosed with likely GCA this past April and...

I’m in need of your advice and counsel. Yesterday, I had a telehealth appointme...

Moaningxcat

•4 months ago

20 Replies

VD3+K2 supplement

Hi Can anyone recommend a suitable supplement I get confused with the various amounts and what is safe and not safe I have been recommended to take 1000iu D3...

Hi Can anyone recommend a suitable supplement I get confused with the various a...

Northernarcher

•4 months ago

28 Replies

Prednisolone side effects?

I am in my early 50's and was diagnosed with PMR in late 2023. I have been on Prednisolone ever since. About 10-12 weeks later my vision became blurry, I was...

I am in my early 50's and was diagnosed with PMR in late 2023. I have been on Pr...

Naim1

•4 months ago

28 Replies

Eye strain or possible sign of GCA?

I have PMR, currently on 13mg. I have been having mild headaches and a sensitive scalp on left side. My vision is blurry due to cataract in left eye and I am...

I have PMR, currently on 13mg. I have been having mild headaches and a sensitive...

Fifebornlass

•4 months ago

9 Replies

Multivitamins/Prednisolone/Vegetarian?

Hello, Short background. Diagnosed with PMR 2020, on Pred since December 2020, usual ups and downs/flares whilst learning about living with it and getting...

Hello, Short background. Diagnosed with PMR 2020, on Pred since December 2020,...

PMArrrrgh

•4 months ago

4 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2024

An update on my post “Sudden foot pain”

NHS pre diabetic programme- Second Nature

BONE DENSITY BETTER. same machine. Yippee Skippy.

GCA, Afib, heart failure

Seronegative arthritis

Dexa scan normal but wedge fractures anyway!!

start tapering?

Kinds of pain

Breathless

Tapering on low dose

help please - Im day 10 of 15 mg Prednisolone

Reporting in to DL after a week of upping pred to 10!

Another update to Advice Please.

K2 dosage

P M Rheumatica

club Zero

A family emergency has arisen, need to travel to Italy for dying relative. Newly diagnosed, pred for a week, need advice how to manage.

Trigger for PMR

tapering from 3 down to 2 1/2

It’s not a flare it’s the journey

3 months and counting...

Cramps

Flare dosage after tapering to zero

PMR disease

PMR relapse?

Rheumatologist Pred Taper Schedule

VD3+K2 supplement

Prednisolone side effects?

Eye strain or possible sign of GCA?

Multivitamins/Prednisolone/Vegetarian?

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