Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,074 members • 39,819 posts

All posts for June 2024

Stuck at 4.5mg

Have been on 4.5 mg since last November. Saw hip surgeon in January who told me to stay on 4.5mg rather than risk a flare before my surgery for hip replacement...

Have been on 4.5 mg since last November. Saw hip surgeon in January who told me ...

jaycee444

•3 months ago

3 Replies

STEROID TAPER - PREDNISOLONE AND BUDESONIDE

Hi All! Hoping for some advice here. I have been taking 1mg Prednisolone for a few months now, with no issues. As I have abdominal issues (Crohn’s...

Hi All! Hoping for some advice here. I have been taking 1mg Prednisolone for...

Songbird69

•3 months ago

6 Replies

Update on appointment with professor Hughes

So I had a really good appointment today with professor Hughes. He listened to what I had to say and had read the medical history pre read I had sent him....

So I had a really good appointment today with professor Hughes. He listened to w...

Griggser

•3 months ago

13 Replies

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Hyberbaric Oxygen Therapy

I have a friend who contracted Lyme disease and recently underwent a series of hyperbaric oxygen therapy sessions. The treatment has completely transformed him...

I have a friend who contracted Lyme disease and recently underwent a series of h...

Lassie2

•3 months ago

11 Replies

mycophenalate

anybody taking it ? Anybody with side effects ?

Africschoice

•3 months ago

16 Replies

The party is over …

Hi Everyone, Well, that dripping tap must have got me, finally!! No symptoms but a routine Rheumy appt preceded by the usual blood tests revealed that my CRP...

Hi Everyone, Well, that dripping tap must have got me, finally!! No symptoms b...

LemonZest11

•3 months ago

21 Replies

Wooziness - what’s the cause?

I’m a bit in the wars. I reduced to 6.5mgs, had a nast virus and chest infection, doubled dose while I was sick. I dropped to 10mgs after antibiotics finished...

I’m a bit in the wars. I reduced to 6.5mgs, had a nast virus and chest infection...

Thelmarina

•3 months ago

9 Replies

Concerned

hi I’m taking Pred as treatment for pmr, just started in April, my health provider is taking me off of treatment, but too quickly, as they feel I’m not sure,...

hi I’m taking Pred as treatment for pmr, just started in April, my health provid...

Pred77

•3 months ago

6 Replies

Recurrence after 12 years

Hi everyone, I am very surprised to find I have a bad flare up of PMR after being well for 12 years. I would appreciate feedback on this since the articles...

Hi everyone, I am very surprised to find I have a bad flare up of PMR after b...

Nana4boys

•3 months ago

7 Replies

Rheumatology working up new disorder.

Despite my desire to accept my condition as is and without prednisone the Rheumatologist has decided to work me up for a rare autoimmune disorder called...

Despite my desire to accept my condition as is and without prednisone the Rheuma...

SMH4CRNA

•3 months ago

4 Replies

Prednisolone and hair loss

Hi all I've not posted on here for a while but I'm now down to 5 mg of prednisolone a day. I wanted to know if hair loss is caused by the prednisolone. Lately...

Hi all I've not posted on here for a while but I'm now down to 5 mg of prednisol...

Helliwelli12

•3 months ago

19 Replies

What should I do.?

I need some help to make a decision. My husband fell on steps last Sunday and I was at the bottom of the steps he caught me on my legs. I take Apixaban so...

I need some help to make a decision. My husband fell on steps last Sunday and I ...

Macas

•3 months ago

24 Replies

GCA (2018)to FMD(2024) Yikes!

Hello good people. I was diagnosed in Feb, 2018 with GCA and am happy to report that I'm in remission. Last month I had arterial scans done and they came...

Hello good people. I was diagnosed in Feb, 2018 with GCA and am happy to report ...

Blurry62

•3 months ago

7 Replies

Loss of appetite?

Hi. After 7 years of low dose prednisone, I am finally off it! Hooray! BUT....I seem to have lost my appetite. I finished prednisone about 3 weeks now and...

Hi. After 7 years of low dose prednisone, I am finally off it! Hooray! BUT......

jackswife

•3 months ago

6 Replies

PMR or PsA or both

I'm on prednisone since last April and have managed to get down from 35 to 10 mg with a few minor flares. My Rheumatologist thinks it could be PMR or PsA or...

I'm on prednisone since last April and have managed to get down from 35 to 10 mg...

Seal49

•3 months ago

10 Replies

Flare protocol question

I guess this question is for DorsetLady as I have a question about your FAQ:. I have a question about how to handle a flare after trying your method.......

I guess this question is for DorsetLady as I have a question about your FAQ:. I...

Italybound62

•3 months ago

4 Replies

Is this a flair or adrenal insufficiency?

Hello all you knowledgeable people. I would so appreciate some advice. I have been feeling very pleased with myself as managed to taper down to 2mg pred....

Hello all you knowledgeable people. I would so appreciate some advice. I have b...

Loyd

•3 months ago

67 Replies

PMR Relapse after operation?

I previously had PMR and took prednisolone between September 2018 and July 2021. I have not had to take prednisolone since July 2021. I was basically affected...

I previously had PMR and took prednisolone between September 2018 and July 2021....

Delonghi

•3 months ago

17 Replies

After my hip operation: PMR quiet (thank goodness) while everything else goes mad

caftan’s recent post about their upcoming hip operation prompted me to write this. I read the post, and the responses, to see if there was anything I could...

caftan’s recent post about their upcoming hip operation prompted me to write thi...

calibriel

•3 months ago

6 Replies

Reduction method

Hi I'm looking for the slow reduction method and can't remember what to search under, can anyone advise, thank you.

Hi I'm looking for the slow reduction method and can't remember what to search u...

Dukeyears

•3 months ago

2 Replies

Update from Mr and Mrs PMR

Hi All - just sharing in case it’s helpful to anyone. MrPMR started on 20mg 5 weeks ago, doing well - managing and resisting the temptation to do too much....

Hi All - just sharing in case it’s helpful to anyone. MrPMR started on 20mg 5 we...

MrsPMR

•3 months ago

3 Replies

Tocilizumab

I am advised that a biosimilar to tocilizumab has been approved in the UK and will be available at a more economical price , enabling NICE to allow NHS...

I am advised that a biosimilar to tocilizumab has been approved in the UK and wi...

Niblick

•3 months ago

4 Replies

Should I be altering my taper?

Having contracted PMR just over a year and a half ago and having had a disastrous taper last year, I have come down from 15mg to 6.5. I have been following...

Having contracted PMR just over a year and a half ago and having had a disastrou...

landyjhm

•3 months ago

6 Replies

Pain in foot?

I have had GCA for 18 months now ,& am tapering my Pred - I'm down to 5.5mg now & am doing ok. Could anyone tell me if pain in the feet is related to PMR? For...

I have had GCA for 18 months now ,& am tapering my Pred - I'm down to 5.5mg now ...

Janeval

•3 months ago

19 Replies

Remission

it is now well over 2 years since last I posted and I’m feeling a bit guilty about not being in touch. My symptoms finally disappeared over 2 years ago but I...

it is now well over 2 years since last I posted and I’m feeling a bit guilty ab...

Ranchero

•3 months ago

16 Replies

Hip operation and PMR

Hello All, I am on the waiting list for a new hip and have a pre-op assessment on 17th July. Hopefully I won't have to wait too long after this for the...

Hello All, I am on the waiting list for a new hip and have a pre-op assessment o...

caftan

•3 months ago

9 Replies

driving license GCA

hello has any of our over 70s community had their driving license refused due to GCA . The forms are a nightmare. Thank you

hello has any of our over 70s community had their driving license refused due to...

Avadip12

•3 months ago

13 Replies

issue with swollen feet

at this late stage of pred - 3 gms I have swollen feet. And advice please?

Trovatello

•3 months ago

3 Replies

methotrexate

I wanted to say thank you for all the really useful feedback and tips you sent me. I haven’t replied to all I’m afraid! I am going forward with Methotrexate...

I wanted to say thank you for all the really useful feedback and tips you sent m...

bookbear68

•3 months ago

2 Replies

Prof Sarah Mackie

Hi can someone advise if the recent recording of Prof Sarah Mackie discussing PMR and GCA is available to access and where please. Thankyou

Hi can someone advise if the recent recording of Prof Sarah Mackie discussing PM...

Animalover65

•3 months ago

17 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2024

Stuck at 4.5mg

STEROID TAPER - PREDNISOLONE AND BUDESONIDE

Update on appointment with professor Hughes

Hyberbaric Oxygen Therapy

mycophenalate

The party is over …

Wooziness - what’s the cause?

Concerned

Recurrence after 12 years

Rheumatology working up new disorder.

Prednisolone and hair loss

What should I do.?

GCA (2018)to FMD(2024) Yikes!

Loss of appetite?

PMR or PsA or both

Flare protocol question

Is this a flair or adrenal insufficiency?

PMR Relapse after operation?

After my hip operation: PMR quiet (thank goodness) while everything else goes mad

Reduction method

Update from Mr and Mrs PMR

Tocilizumab

Should I be altering my taper?

Pain in foot?

Remission

Hip operation and PMR

driving license GCA

issue with swollen feet

methotrexate

Prof Sarah Mackie

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