Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,072 members • 39,818 posts

All posts for June 2024

Has anyone else had their inner demon released by steroids?

Near my 80th birthday and usually when things go wrong I say “Oh well, never mind”. Just recently, on 60 mg Prednisolone, after a usual disrespectful comment...

Near my 80th birthday and usually when things go wrong I say “Oh well, never min...

Rotsky

•3 months ago

43 Replies

prednisone tapering

I have been struggling to reduce below 13 mgs , but at 12.5now and happy My daughter took me to a psychic and her guide told me to listen to Tuning Fork...

I have been struggling to reduce below 13 mgs , but at 12.5now and happy My dau...

Elvied

•3 months ago

17 Replies

Bruising and tapering questions . Advice please

Hi , thank goodness for you knowledgeable and supportive group of people . I was wondering if you could possibly give me some advice ? Since commencing...

Hi , thank goodness for you knowledgeable and supportive group of people . I was...

Murphysauntie

•3 months ago

13 Replies

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Confused and discouraged.

Hello everyone. A month ago I finished a slow taper from 3 to 2 1/2 mg. I was feeling great - no more pain. I was traveling overseas when I finally got to that...

Hello everyone. A month ago I finished a slow taper from 3 to 2 1/2 mg. I was fe...

christi48

•3 months ago

31 Replies

GCA and blindness

My husband is 84 and recently lost vision in his left eye due to GCA. One Ophthalmologist gave him tips on the challenges of driving with only partial sight,...

My husband is 84 and recently lost vision in his left eye due to GCA. One Ophth...

janno

•3 months ago

18 Replies

Strophantus D4 heart arrhythmia

I have already asked recently about heart arrhythmia since Pred. And it seems many people have that problem. I have been taking Strophantus D4 tablets for a...

I have already asked recently about heart arrhythmia since Pred. And it seems ma...

Swizzly

•3 months ago

7 Replies

Sick day rules

Hi all. Is there a link to the Sick Day rules as I don't know what they are? I have PMR and GCA - currently back on 40mg Pred following GCA flare, after...

Hi all. Is there a link to the Sick Day rules as I don't know what they are? I h...

Rubyju

•3 months ago

2 Replies

Cardiff meeting

The next meeting is on Thursday, 4th July at 11.30 in the Central Library.

slewis

•3 months ago

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GCA and PMR

I was diagnosed with PMR in February and started on 20mg steroids, this worked ok, I’ve had got down to 12.5mg until yesterday when I started having symptoms...

I was diagnosed with PMR in February and started on 20mg steroids, this worked o...

TraceyK1964

•3 months ago

17 Replies

Adrenal testing with PMR

Hello all. Can adrenal tests be done while on Prednisone? I have heard different answers in the past including one Endocrinologist I saw about a year ago...

Hello all. Can adrenal tests be done while on Prednisone? I have heard differe...

Italybound62

•3 months ago

22 Replies

GCA candidate Tremfya fails to meet clinical trial objectives

Here in the US, Johnson & Johnson announced today it is halting its Phase 2 "THEIA" trial as the numbers of enrolled GCA patients did not, unfortunately,...

Here in the US, Johnson & Johnson announced today it is halting its Phase 2 "THE...

Optim11

•3 months ago

2 Replies

foot swelling

Hi All On 10mg Pred all ok except that the soles of my feet feel swollen now I am also taking Amlodipine and Clopidogrel so got an appointment with GP on...

Hi All On 10mg Pred all ok except that the soles of my feet feel swollen now I ...

Northernarcher

•3 months ago

10 Replies

PMRGCAuk Week videos available on our website

If you missed our webinars during PMRGCAuk Week, they are now available for catch up on our website https://pmrgca.org.uk/pmrgcauk-week-webinars/ Sit back and...

If you missed our webinars during PMRGCAuk Week, they are now available for catc...

Fran_Benson

Partner•3 months ago

3 Replies

waking at 3 am

I’ve always been a good “sleeper” and been able to get to sleep quickly but recently I’ve been waking up fully alert between 2 and 3 am. I read for an hour...

I’ve always been a good “sleeper” and been able to get to sleep quickly but rece...

Nanatoo

•3 months ago

4 Replies

Ps Covid Jab

Do you know if I would be eligible for anti-virals should I contract Covid?Could this be a safer option for me?

Do you know if I would be eligible for anti-virals should I contract Covid?Could...

FleetRose

•3 months ago

21 Replies

Covid Jab

Like many others I guess I am in a quandary about having my Spring booster. I started taking 20mg prednisolone in November 2022, reduced to 15mg after one...

Like many others I guess I am in a quandary about having my Spring booster. I st...

FleetRose

•3 months ago

14 Replies

Amytriptiline and Prednisone

thank to all replies on Amitriptyline I do appreciate all support I did taper to 0

thank to all replies on Amitriptyline I do appreciate all support I did taper to...

Gotryit

•3 months ago

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pain in jaw sent home by hospital OBS ok

just recently diagnosed PMR however having increasingly often jaw and ear ache my daughter insisted I go to Aand E but was told my obs ok go back to gp - any...

just recently diagnosed PMR however having increasingly often jaw and ear ache m...

Gotryit

•3 months ago

4 Replies

GCA patient with new PMRish symptoms….

Good morning, I’m a first time poster to this forum. I’m 53, diagnosed in May 2023 with GCA after a severe, sudden headache and intense jaw pain. I started on...

Good morning, I’m a first time poster to this forum. I’m 53, diagnosed in May 20...

Aoakleymoore

•3 months ago

8 Replies

Surprised!!!

I have been feeling bit cocky as I think I've been doing well.....decided to take the step method of tapering (Kate Gilbert book) Dr supporting me.....Now...

I have been feeling bit cocky as I think I've been doing well.....decided to tak...

Tescohednesford

•3 months ago

23 Replies

Cramp plus update

Hi everyone- just thought I would do an update on where I am at the moment. For the first time ever I am on my way down from 3mg to 2 and three quarter mg ,...

Hi everyone- just thought I would do an update on where I am at the moment. For ...

Purplegloss

•3 months ago

11 Replies

Getting a cold/sore throat just as tapering about to start- would you advise delaying the taper till cold is better?

I’ve now successfully tapered from initial 15mg Pred dose to 12.5mg over 5 weeks using DLady slow taper, then from 12.5 to 10mg, and just about to start next...

I’ve now successfully tapered from initial 15mg Pred dose to 12.5mg over 5 weeks...

Preposterous

•3 months ago

8 Replies

Rheumy Suggestions

hello . Does anyone in Scotland have suggestions for a Rheumy that’s GCA aware ? I live very rurally but can travel to Glasgow (preferably) or Edinburgh at a...

hello . Does anyone in Scotland have suggestions for a Rheumy that’s GCA aware ?...

Rubha

•3 months ago

5 Replies

PET Scan

Me again … I have a PET scan booked for Thursday and so I am going to hold off on pred and TCZ until after that, at least. Very fortunate to get the...

Me again … I have a PET scan booked for Thursday and so I am going to hold off o...

LemonZest11

•3 months ago

8 Replies

Sick day rules or not.

Story so far, I told you lovely about my sister who has P M R and doesn't listen to anyone, she stopped her Pred when she was taking 10mg because she was still...

Story so far, I told you lovely about my sister who has P M R and doesn't listen...

Harrywogan

•3 months ago

17 Replies

Cooling Vest

I made myself a cooling vest years ago. It is a simple denim vest with pockets inside that hold small freezer packs. It slips over my head with ties at the...

I made myself a cooling vest years ago. It is a simple denim vest with pockets i...

FreeWolf

•3 months ago

14 Replies

Newfound respect for PMR and the people who deal with it.

I have a sense about the character of my other illnesses. Together we get along. I know their signals: when to rest and when to push it. I have done well for...

I have a sense about the character of my other illnesses. Together we get along....

FreeWolf

•3 months ago

10 Replies

amitriptyline with prednisone

Recently diagnosed with PMR dosage 15mg daily Symptoms improved but not gone altogether I was on amitriptyline 10mg daily but I’m unsure whether I should...

Recently diagnosed with PMR dosage 15mg daily Symptoms improved but not gone a...

Gotryit

•3 months ago

11 Replies

What’s going on

Hello, I’m currently on 10 mgs, have been for a few weeks now, although I’ve previously been as low as 6.5. I have spinal stenosis and three herniated disc’s,...

Hello, I’m currently on 10 mgs, have been for a few weeks now, although I’ve pre...

Carathedog

•3 months ago

14 Replies

Hot weather intolerance - pmr, Pred or old age?

In a previous life - pre PMR - I was a real sun worshipper, loving every moment I could spend outside no matter how hot. Mediterranean holidays in the mid 30s...

In a previous life - pre PMR - I was a real sun worshipper, loving every moment ...

Mandyq

•3 months ago

36 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2024

Has anyone else had their inner demon released by steroids?

prednisone tapering

Bruising and tapering questions . Advice please

Confused and discouraged.

GCA and blindness

Strophantus D4 heart arrhythmia

Sick day rules

Cardiff meeting

GCA and PMR

Adrenal testing with PMR

GCA candidate Tremfya fails to meet clinical trial objectives

foot swelling

PMRGCAuk Week videos available on our website

waking at 3 am

Ps Covid Jab

Covid Jab

Amytriptiline and Prednisone

pain in jaw sent home by hospital OBS ok

GCA patient with new PMRish symptoms….

Surprised!!!

Cramp plus update

Getting a cold/sore throat just as tapering about to start- would you advise delaying the taper till cold is better?

Rheumy Suggestions

PET Scan

Sick day rules or not.

Cooling Vest

Newfound respect for PMR and the people who deal with it.

amitriptyline with prednisone

What’s going on

Hot weather intolerance - pmr, Pred or old age?

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