So I had a really good appointment today with professor Hughes. He listened to what I had to say and had read the medical history pre read I had sent him. After a good chat about my PMR/pred journey and all the steroid sparing drugs I had tried he came up with 3 options.
1. Stay on 10mg of pred and continue the DSNS reduction plan.
2. Try 20mg methotrexate for 4 months as likely when on it before I hadn’t given it enough time at 20mg to be effective. There was a rider that methotrexate is not really proven to be effective for many.
3. Depo-medrone intravenous injection of 120mg every 3 months in addition to 1 above.
I’ll be contacting my GP once he gets the report from Prof Hughes and see if I can get the option 3 up and running, fingers crossed.
We did also discuss about Tociuzimab but no real chance of getting this for PMR “YET”..
Overall a worth while visit and Professor Hughes was really helpful and really knowledgeable as others have sad