It's volunteers' week this week and we want to thank all our volunteers who help across the charity.
Here, on our forum, a big thank you to PMRpro and DorsetLady who spend a huge amount of their time going through all the posts and replies and answering questions.
Also thank you to our support group organisers, helpline volunteers, patient research participants, people who send out our information packs, Christmas cards, organise events, fundraise and so much more.
We really couldn't do it without you #volunteersweek
Written by
Fran_Benson
Partner
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Actually, I've noticed it being a bit finicky lately. The list sometimes only appears at one particular stage of typing the name and then disappears again, if you miss that, you can mess about for a while.
I wouldn't have managed over the years without the volunteers on here, they know who they are!....have had to go on other forums.....no comparison.....Thank you very much...
Yes, you’re on my wave length! Am always wary re advice, and generally stick with my experience. It was always much easier at our Coventry meet ups, but they’ve unfortunately stopped now.
Basically, exactly that. Lockdown was the culprit, and we just didn’t manage to get off the ground again - mainly with numbers. We had to cancel a meeting with Dasgupta at the start of lockdown, and that was to be for the whole Midlands area; a great shame. And then, our very conscientious organiser felt she’d had enough - quite understandably.
Sending a big thank you to PMRpro and DorsetLady (and also SnazzyD and Sheffield Jane and others who give advice regularly ) for all the time you give to answering our questions and giving such good advice. I wish some of our GPS would come on this site as a lot of them seem to be uninformed or misinformed
I shared the site with the "Clinical Practitioner" at my GP practice and in particular the link to the DSNS taper. Thanks to you, we're doing that together. (7/6 week 3 - doing OK!)
A HUGE thank you from me to all volunteers on here. And to many others who have posted their issues, for volunteers to answer. This wonderful group has help me and thousands, manage these two diseases far better than we could without them. 👏👏👏
I would also like to thank this amazing forum for all the help and advice I have received, to the people who give their time and knowledge so freely, it is much appreciated from the other side of the world, in NewZealand. We have nothing like this. My only regret is I didn't find you before I did. Thank you all
Heart felt thanks from me too you have all made the journey so much better than it would have been without this Forum! I know how low I would have got without your help. THANK YOU
There will never be the right words to express my gratitude and appreciation for all the support and advice I've received regularly from a consistent group of people here (you know who you are) You make this condition so much easier to deal with, tirelessly & repeatedly reassuring & supporting us, and that is priceless.
I was lucky to find this forum soon after I developed my autoimmune condition, and it has been such a great help. Not just with the basics, it has been like having your hand held. So supportive and always someone out there for you when you need advice or just feel miserable. Thanks to all of you very kind people.
a huge thank you to PMRpro, Dorset Lady and all the other lovely people who give us all so much support in everything. It means such a lot to me personally knowing these people are there for us. Thank you 😘
A huge thank you to all who have helped me over four years with their advice, especially PMR pro and Dorset Lady. Can't believe some of the things I would never have known had I not been on this site, including all the pitfalls of doing things I shouldn't do. So once again a huge thank you for all you do. 😘💐
Yes, please can I add a huge Thank You to DorsetLady and PMRPro (and SnazzyD and all the amazing people who offer help and advice). Thank you for being Fantastic and Wonderful! 👏 I do really marvel at the considerable time and effort DorsetLady, PMRPro and all volunteers take to welcome everyone so warmly and tirelessly and kindly offer so much help. I am amazed at your kindness. 😘 It has really meant so much to me. Thank You. 💐
I too have been helped, starting 2016 with another forum that introduced me to PMRpro, and shortly thereafter with HU. So many conversations interspersed with medical trials for all the different ailments we all come up with. Thank you so much for all you do.
I often think of the HUGE commitment volunteering on this site takes. I have done a few things over the years but find it overwhelming and end up having to stop. It is a credit to you all that you take the time to share and the expertise in the knowledge is better than a lot of medics I have come across, and trust me, as someone who is drowning in the medical profession in my family, I really mean it.
Massive Thank you to all of you for the support and hard work and special effort I'm sure we all agree that we couldn't get through this without you all ❤️❤️❤️ xxx
To all the volunteers at HealthUnlocked I send my thanks. This site for PMR
has saved my sanity. I learn something new each day. You’ve stopped me feeling alone as I know no one else with PMR. You’ve given me confidence in knowing my own body and the strength to tell the medics to butt out, that I now know more than they do about this condition.
Thank you to all but especially PMRpro and Dorset lady. I have no idea how you continue to answer the same questions over and over again. That you realise although they’re old to you for the person who’s asking its allnew, frightening and the unknown. Thank you x1000.
A huge thank you from me, particularly to PMR Pro and DorsetLady but also to all the other volunteers. I do not know what I would have done without the support, knowledge and advice shared over the last couple of years. I would have been in a very dark place without you wonderful people. Thank you🙏
Start a support group in your area if there isn't already one - doesn't have to be an all whistles and bells one, you can just meet others for coffee and a chat...
Doing what sort of thing? On the forum - just be here with founded accurate information and experience. There is a Helpline which I think can be "personed" from anywhere and various support groups if there is one near you. There is always fundraising if you are gifted like that. Contact Fran_Benson or SophieMB at the charity and they will direct you to the right person.
Thanks PMR pro - I thought I was contacting Fran Benson.
In her post she mentions people 'who send out information packs... and so much more'. That's the sort of thing I might be able to help with but need to know what options there are.
DL has sent me a useful link to Volunteering which I will follow up.
You were replying to Fran because she wrote the post - but I don't know if she will read every reply in detail as DL and I do as she only works part-time.
This forum is a place of tremendous generosity and compassion; your ability to listen and tell those of us lucky enough to have found you the multiple realities of PMR seems boundless.
I owe a special thanks to PMRpro and DorsetLady, for empowering me.
Hope you all are finding new ways of enjoying the beginnings of a glorious Summer.
PS My bio has NOT been updated since last April; I will do that this month. Perhaps my experiences will help others. I’m feeling more myself!
Huge thanks from the bottom of my heart to PMRpro and DorsetLady! If not for finding HU many years ago and having their wise counsel, I shudder to think how things would have gone with the PMR. It was a total unknown to me and doctors information was mostly a confusion to me. You explained well and helped show me the path forward. After 8 years I'm now off of pred for a month and so far so good. Of course, any body twitch has me looking at the pred bottle lol!
I’d like to add my heartfelt thanks to all our volunteers and particularly DorsetLady and PMRpro whose eyes must be popping out of their heads by bedtime! Then, here they are again the next morning to encourage, reassure and expertly advise 👏👏👏. There are too many others to mention in their entirety but I must name SnazzyD and SheffieldJane. Seeing familiar names on each day’s posts is like meeting up with family and friends and warms the heart.❤️
I'm indebted and humbled by the goodness and hard work our volunteers give to us members on a daily basis. I only hope they are aware we hold them in high esteem as they enrich our lives with sound advice and knowledge of p.m.r. that most doctors lack.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Would it be unwise to volunteer for Covid vaccine study if you have PMR?
Just to say Thank You.
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Honouring a work commitment - Thank You
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