Hi, just wanted to introduce myself and say hello

[GRB8]

Hi, having been diagnosed with PMR in March and joining this fantastic forum around the same time, I’ve finally got round to completing my profile!

I am an avid reader of the daily emails with posts and have learned so much already and am a little humbled by many of the experiences I have read about.

Wishing everyone the best journey possible.

Gary

[DorsetLady PMRGCAuk volunteer]

hi Gary and welcome

Maybe have a look at this intro post-

healthunlocked.com/pmrgcauk...

-and a wander through the FAQs at your leisure - and remember there’s always someone around for specific questions…

[GRB8 in reply to DorsetLady]

Many thanks. I’ve already been silently copying & pasting material for possible future (easy) reference - so much valuable info. Hope you have a good weekend.

[DorsetLady PMRGCAuk volunteer in reply to GRB8]

Many of my posts I have as word/pdf format -do feel free to ask…

[GRB8 in reply to DorsetLady]

👍

[PMRpro Ambassador]

Hi - and welcome. You know how we work - almost always someone around and at the latest, next morning!

[GRB8 in reply to PMRpro]

That’s very true - and I’ve been particularly struck by your mantras around being patient (not something that comes easy to me) and playing the long game. Have a good weekend.

[SheffieldJane]

Welcome!

[GRB8 in reply to SheffieldJane]

Thank you, really appreciate all your posts/insights. Have a good weekend.

[123-go]

I’m pleased that you’ve come aboard this informative, friendly ship 😉.

[GRB8 in reply to 123-go]

Thank you, have a good weekend.

[SheffieldJane]

Welcome!

[GRB8 in reply to SheffieldJane]

Thank you!

[Bcol]

Good morning and welcome to the forum.

[GRB8 in reply to Bcol]

Thank you

[random901]

Morning, GRB8! I start my day with this forum 🙂

[GRB8 in reply to random901]

Me too!

[alangg]

Hello. I was diagnosed at age 59 so a bit earlier than you. 15mg of pred gave me my life back and then, using info from this forum, I worked out a slow tapering regime to reduce to zero over almost 3 years. My GP was very happy to prescribe according to my plan and the Rheumatologist didn't want to see me for which I am quite grateful. My advice - don't try and reduce your dose quickly; no 'cliff edge' drops in dose - always taper the dose and never try and reduce by more than 10%. I hope you have an easy time of it.

[GRB8 in reply to alangg]

Thank you. Sounds like very good advice - I’m hoping I can “manage” my GP to let me determine the pace and extent of tapering. All the best.

[Sweetpeasoprano]

Welcome to this excellent forum. My experience was similar to alangg’s. It gave me the knowledge and confidence to agree with my GP that I would manage my pred at my own pace. Patience is the key. Don’t let anyone persuade you to taper any more quickly than advised here. It took me three years and some take longer.

[GRB8 in reply to Sweetpeasoprano]

Thank you, sounds very sensible advice and consistent with everything I’ve read on this forum. All the best.

[Zebedee44]

Hi Gary, welcome. This is the place to learn everything you need to manage your PMR and feel supported amongst understanding friends. Well done for finding the forum so early. PMR has a devastating and unwelcome effect on your body and your lifestyle at the start but good information and proper management will allow you to continue your life and all that you have going on in it, maybe just a little bit slower.

[GRB8 in reply to Zebedee44]

Thank you - your (and everybody’s) support is so comforting and uplifting. 🙏

[Rottsuzi]

welcome!

[GRB8 in reply to Rottsuzi]

Thank you!

[Jackoh]

Welcome Gary!!

[GRB8 in reply to Jackoh]

Thank you!

[sidra1968]

Welcome!

[GRB8 in reply to sidra1968]

Thank you!