Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,920 members • 39,405 posts

All posts for August 2023

FOLLOW-UP TO BEDRIDDEN 4 WEEKS

'Morning all. Back on the bed after my 2-day mini vacay last week. I have overdone it and now experiencing what I think is DOMS along with the previously still...

'Morning all. Back on the bed after my 2-day mini vacay last week. I have overdo...

Missus835

•1 year ago

11 Replies

Confused about acquired adrenal insufficiecy

Just had a confusing telelphone call with endocrinologist. I had my second short synacthen test a few weeks ago. It showed adrenals not working. I am on 5mg...

Just had a confusing telelphone call with endocrinologist. I had my second short...

Cally55

•1 year ago

21 Replies

”….it is unlikely that PMR will be diagnosed”

Above quote from UK NHS website. It specifically refers to blood test results where ESR & CRP are ‘normal’. My GP and physiotherapist say my symptoms mirror...

Above quote from UK NHS website. It specifically refers to blood test results wh...

MerryMiller

•1 year ago

21 Replies

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a wee bit of discomfort

hello ….. I’m new to this and now on 12.5g pred for a week and have noticed a bit of discomfort….. but nothing major. Do i stick to this dose and go down as...

hello ….. I’m new to this and now on 12.5g pred for a week and have noticed a bi...

skygirl62

•1 year ago

5 Replies

Prednisone reduction

Saw my Rheumatologist today and he keeps insisting that what I have sounds like RA with maybe some PMR. He asked if I had any pain at all and I told him some...

Saw my Rheumatologist today and he keeps insisting that what I have sounds like ...

Seal49

•1 year ago

3 Replies

Cataract removal and Sick Day Rule

Sorry if this has been asked before but do Sick Day Rules have to be observed for a cataract removal? I am booked in for one on 15/8/23 and currently take 10mg

Sorry if this has been asked before but do Sick Day Rules have to be observed fo...

Lclmlbls

•1 year ago

6 Replies

GCA Osteoarthritis

I saw the rheumatologist today and he tells me all my organs are performing normally. He did see scoliosis in my back and osteoarthritis in my neck and lower...

I saw the rheumatologist today and he tells me all my organs are performing norm...

Kittymom7

•1 year ago

15 Replies

Latest visit to my Physio, part 2.

One month on from my joint physio appointment, my usual Rheumatology Physiotherapist, and the Spinal Physiotherapist. My post a month ago, "Latest visit to...

One month on from my joint physio appointment, my usual Rheumatology Physiothera...

pmrgcavictim

•1 year ago

4 Replies

PMR, Probiotics and digestive diseases

I posed a question related to an inquiry earlier today and PMRpro suggested I start a new topic I would appreciate knowing the type of probiotic(s) taken by...

I posed a question related to an inquiry earlier today and PMRpro suggested I st...

nuigini

•1 year ago

8 Replies

Pixie

I've just been diagnosed with PMR and was looking for some support

Pixiehouse

•1 year ago

8 Replies

advice on not taking meds for a day

hi me again, can anyone advise me on this. I have a gastroscope booked for tomorrow with sedation. I had a pre assessment today and they had no idea what GCA...

hi me again, can anyone advise me on this. I have a gastroscope booked for tomor...

lennysmummy

•1 year ago

17 Replies

GCA, exercise and bones

Can strenuous exercise provoke GCA? I've been cautious about bending down much since I lost most of the sight in my left eye, but I need to increase my...

Can strenuous exercise provoke GCA? I've been cautious about bending down much ...

Toolie2

•1 year ago

32 Replies

Under treated PMR or Pred Side Effects

Hi Everyone It's not clear to me whether I am not taking sufficient pred to control my symptoms or whether the symptoms are a side effect of pred. I started...

Hi Everyone It's not clear to me whether I am not taking sufficient pred to con...

FleetRose

•1 year ago

13 Replies

COVID and prednisone

Hi everyone, There's a summer COVID surge happening here in the US. I'm just wondering if there is anything I should know about COVID and pred. If I get...

Hi everyone, There's a summer COVID surge happening here in the US. I'm just wo...

sferios

•1 year ago

4 Replies

On DL slow taper. Facing people around in a few days. Wonder about upping slightly for a day or two.

Dropping from 10mg of pred to 9mg on week 4 with only 1 day to go on old dose. I am having good days and average days but more good gradually. I have not...

Dropping from 10mg of pred to 9mg on week 4 with only 1 day to go on old dose. I...

Ebiker

•1 year ago

14 Replies

PMR resurgence

I’ve just finished a course of antibiotics for a bladder infection so am going for a fresh set of bloods, urine and poo today to try to establish if PMR has...

I’ve just finished a course of antibiotics for a bladder infection so am going f...

Mervetheswerve

•1 year ago

22 Replies

Managing even more stress when I have GCA

I was diagnosed in January with GCA. & am now down to 17.5mg of Pred but struggling. My eldest son(40) came back to live with us after his marriage had broken...

I was diagnosed in January with GCA. & am now down to 17.5mg of Pred but struggl...

Janeval

•1 year ago

17 Replies

Recently Diagnosed PMR

Hi have recently been diagnosed with pmr after constantly being fobbed off by gp with pain killers like Gabapentin, amitryptaline, no investigations just...

Hi have recently been diagnosed with pmr after constantly being fobbed off by gp...

dachshund23

•1 year ago

29 Replies

update on Nearly there.

I have been trying to contact the Rheumy help line over the last few days but no-one able to take calls due to ‘technical issues’ I am due to see my Rheumy on...

I have been trying to contact the Rheumy help line over the last few days but no...

Crochetgirl65_

•1 year ago

4 Replies

Donating to PMRGCAuk

Has anyone else outside the UK had problems making donations? First of all my email was rejected as spam. Then trying another method (Facebook) couldn't...

Has anyone else outside the UK had problems making donations? First of all my em...

HeronNS

•1 year ago

23 Replies

???Flare ..or not ?

Good afternoon, So been down to 5mg Prednisolone for over 2 months now for PMR and seem to go up and down in terms of aches in my ribs , shoulders and hips....

Good afternoon, So been down to 5mg Prednisolone for over 2 months now for PMR...

5goFlotilla

•1 year ago

19 Replies

Welcome to our new members August 2023

Hello and welcome to all our new forum members (335 new members since June). We hope you've had a chance to look around and find answers to your questions....

Hello and welcome to all our new forum members (335 new members since June). We...

Fran_Benson

Partner•1 year ago

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I am scared of what I think I have to do.

Hi everyone, I'm scared. I think if I don't quit working I'm never going to get off the prednisone. My work, though, has been my passion for two and a half...

Hi everyone, I'm scared. I think if I don't quit working I'm never going to get...

sferios

•1 year ago

32 Replies

Update on breast pain with PMR

Thought I would let you know how I got on at the breast clinic, after having so many kind messages on my previous thread. It was a harrowing couple of hours...

Thought I would let you know how I got on at the breast clinic, after having so ...

Gimme

•1 year ago

53 Replies

Better taper management

Hello again helpful people. I thought I'd update on my progress managing PMR, which was not going well 3 months ago. I took your advice and visited the...

Hello again helpful people. I thought I'd update on my progress managing PMR, w...

MarionA

•1 year ago

10 Replies

My PMR Three Year Update

Hi all I’m a month behind with this but thought I would post my yearly update on my “joys and delights” of suffering from PMR. I finished year three at the...

Hi all I’m a month behind with this but thought I would post my yearly update o...

Bcol

•1 year ago

49 Replies

Revitive ??

Hi everyone, I have seen lots of advertisements for Revitive ( you put your feet on it and it sends pulses through your legs ) supposed to help with leg pain,...

Hi everyone, I have seen lots of advertisements for Revitive ( you put your feet...

jules1955

•1 year ago

55 Replies

Nausea, diarrhea and stomach pain

Hi everyone, Do any of you experience these symptoms when tapering? During my last flare (when I dropped from 6 mg to 5), I experienced a constant...

Hi everyone, Do any of you experience these symptoms when tapering? During my ...

sferios

•1 year ago

7 Replies

just a hello, an update

hi my friends...i responded to a post a short while ago, so i thought i'd say hello, miss you all and thought i'd send a one-finger update. i broke my right...

hi my friends...i responded to a post a short while ago, so i thought i'd say he...

Grammy80

•1 year ago

33 Replies

Knee and Thigh pain

A question for all you wonderful experts. Out of the blue I developed soreness and stiffness in both knees and outside of left thigh. Painkillers and nsaids...

A question for all you wonderful experts. Out of the blue I developed soreness a...

daisylazy

•1 year ago

27 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2023

FOLLOW-UP TO BEDRIDDEN 4 WEEKS

Confused about acquired adrenal insufficiecy

”….it is unlikely that PMR will be diagnosed”

a wee bit of discomfort

Prednisone reduction

Cataract removal and Sick Day Rule

GCA Osteoarthritis

Latest visit to my Physio, part 2.

PMR, Probiotics and digestive diseases

Pixie

advice on not taking meds for a day

GCA, exercise and bones

Under treated PMR or Pred Side Effects

COVID and prednisone

On DL slow taper. Facing people around in a few days. Wonder about upping slightly for a day or two.

PMR resurgence

Managing even more stress when I have GCA

Recently Diagnosed PMR

update on Nearly there.

Donating to PMRGCAuk

???Flare ..or not ?

Welcome to our new members August 2023

I am scared of what I think I have to do.

Update on breast pain with PMR

Better taper management

My PMR Three Year Update

Revitive ??

Nausea, diarrhea and stomach pain

just a hello, an update

Knee and Thigh pain

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