Hello again helpful people. I thought I'd update on my progress managing PMR, which was not going well 3 months ago. I took your advice and visited the dentist, to have a wisdom tooth out and no prospect of Alendronic Acid for at least 3 months, so that was worth it.
But after I failed at reducing from 15 to 12.5mg, and again from 12.5 to 10 mg and then my GP would only give me a plan via the receptionist (taper 1mg every month until zero), who couldn't answer any questions I realised something had to change and, as you also advised, I asked for a new GP.
At the first telephone appointment, when I said I couldn't successfully taper, my new GP immediately answered that some people can't manage the recommended decreases and has put me at present on a 0.5mg reduction per month. I now have telephone appointments to discuss my progress and next step every 3 weeks. As a consequence my symptoms are now much better managed, my stress levels much reduced and I am much happier. And the new GP hasn't mentioned AA once!
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MarionA
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Glad to hear you have found a sensible GP… but just a minor word of warning you may find that even at 0.5mg, reducing every 3 weeks is too quick especially as you get lower and into the “adrenals needing to start think about functioning again” zone …
Thank you. I'll remember that. I have the impression she is prepared to be flexible and she does listen and ask for my impression of how things are going so if there is a problem I'm pretty sure I could negotiate slowing down- and I do have all the information from this website to justify that, should I need it.
Thank you. Yes it is. I didn't realise how stressful the situation with the first one was until I knew I would no longer have to deal with him and I wonder if being released from the constant struggle has also helped my symptoms improve.
We are ill we could do without all the added stress and battles with the non existent doctors what ever happened to the oath first do no harm 😡. Rant for the day over.
Hi MarionA! So pleased doctor probs are sorted out. I know all our bodies are different and fortunately my doctor leaves me to my own to decide on tapering. So from arriving at 5mgs I have been tapering at 0.25mgs for around three or four weeks which has been great for me. Now down to 0.75mgs, feeling fine, but now on even slower . I am always so worried in case I have a flare. Unless you have PMR you have no idea what pain is. Initially all those weeks of that terrible pain, I used to tell my daughter I would prefer five childbirths. Keep strong!
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