Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,230 posts

All posts for August 2023

Legs thighs and calfs pain

Legs thighs and calfs started hurting after reducing prednisone from 20.0 to 17.5 mg 3 days ago. Should I stay at 17.5 mg and give it more time to see if the...

Legs thighs and calfs started hurting after reducing prednisone from 20.0 to 17....

Seal49

•1 year ago

3 Replies

Diagnosis and Dose

Hello, I’m new here and been reading the various posts. My pain got so bad that I went to ER 5 weeks ago, and told them this is not Fibromyalgia! They need to...

Hello, I’m new here and been reading the various posts. My pain got so bad that ...

3dogsheidi

•1 year ago

17 Replies

Abandoned?

Had a six month check up scheduled for later this August but I've been told it's cancelled. Finally got a call-back: one appointment available in 45 minutes...

Had a six month check up scheduled for later this August but I've been told it's...

Hidden

•1 year ago

23 Replies

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Not allowed back on pred with TCZ

Some of you kindly gave me your thoughts on taking some 'emergency' pred so that I could get through playing at my concert on Saturday. Thank you all: I did...

Some of you kindly gave me your thoughts on taking some 'emergency' pred so that...

Sharitone

•1 year ago

17 Replies

Rheumatologist Appointment

Well back from the hospital after seeing the rheumatologist after waiting all year to see him and he's said my PMR has gone into remission but unfortunately, I...

Well back from the hospital after seeing the rheumatologist after waiting all ye...

Alan7690

•1 year ago

66 Replies

GCA after PMR

Would it be correct to assume that for the 15-20% of PMR sufferers who go on also to get GCA this mostly happens once they are down at the lower doses, as I...

Would it be correct to assume that for the 15-20% of PMR sufferers who go on als...

SID3

•1 year ago

26 Replies

Follow up Post to Smartwatches. Regarding their Use with Pacemakers

Hi all Please find the link below to a report by the BHF (British Heart Foundation) regarding the us of Smartwatches/equipment with Pacemakers and similar...

Hi all Please find the link below to a report by the BHF (British Heart Foundat...

Bcol

•1 year ago

2 Replies

Rheumatologist appt

Hi, just an update. Saw rheumatologist today, he doesnt think I have PMR (too young for that, in his opinion) and instead thinks "fibromyalgia" alongside with...

Hi, just an update. Saw rheumatologist today, he doesnt think I have PMR (too yo...

Monkey321

•1 year ago

10 Replies

Flare dosage advice please

Hi, any advice much appreciated ! Just recently I`ve suffered a flare in symptoms especially in the hips and hamstrings inner thighs , shoulders. etc....

Hi, any advice much appreciated ! Just recently I`ve suffered a flare in sym...

Marek1

•1 year ago

6 Replies

Help! I forgot to take my Omeprazole on holiday!

Can’t believe I have been so stupid as to forget to bring my Omeprazole capsules on holiday. I see I can buy Omeprazole from a chemist but not the capsules as...

Can’t believe I have been so stupid as to forget to bring my Omeprazole capsules...

Lclmlbls

•1 year ago

15 Replies

At last, GP who listens to patient, and not hooked up to pro forma reduction schedule

been a few weeks since last post. Struggled with random/unconcerned/unhelpful/inexperienced GPs within practice. After struggling with reduction from 20mg to...

been a few weeks since last post. Struggled with random/unconcerned/unhelpful/in...

Scarysit

•1 year ago

9 Replies

Three months on pred, now at 9 mg, loss of appetite now occurring. Has anyone else lost appetite?

Three months on pred, now at 9 mg, loss of appetite now occurring. Has anyone e...

darkred

•1 year ago

21 Replies

general question - what are chances of GCA returning

I’ve had or got GCA. I’ve googled the question of it returning but there seems to be conflicting opinions. Any advice?

I’ve had or got GCA. I’ve googled the question of it returning but there seems t...

Rosina1871

•1 year ago

14 Replies

Lilydunn

Tapering Issues.I am having problems when I taper below 3mgs. Dropped from 3 mgs to 2.5 over a 3 month taper.( This is 2nd attempt) Thought I was winning but...

Tapering Issues.I am having problems when I taper below 3mgs. Dropped from 3 mg...

lilydunn

•1 year ago

11 Replies

Smartwatch - A Useful Tool or Not?

Hi all. Smartwatches. Can I make clear, at this point that I have no affiliation with any technology company that makes, sells or designs mobile phones or...

Hi all. Smartwatches. Can I make clear, at this point that I have no affiliatio...

Bcol

•1 year ago

61 Replies

Tocilizumab - end of the year's treatment

I just thought I'd pass this on - I saw my consultant last week, just as I was coming to the end of my year's TCZ. (Exactly three years since I contracted...

I just thought I'd pass this on - I saw my consultant last week, just as I was c...

Frewen1

•1 year ago

20 Replies

Intermittent headaches

for the past two or three weeks I have experienced low grade headaches, predominantly on the left side over the eye, and temples. No scalp tenderness, and as...

for the past two or three weeks I have experienced low grade headaches, predomin...

Exflex

•1 year ago

13 Replies

Calcium citrate/D3 supplements.

I have just to look at calcium carbonate tablets for my digestion to stop working so on the basis that any calcium supp is better than none ; wise words from...

I have just to look at calcium carbonate tablets for my digestion to stop workin...

Sillydogsmum

•1 year ago

9 Replies

THB drops?

yes I use THN it calms me a bit but don’t take too much it sure does weird things to my mind. The N I am told is new and better than the THC??

yes I use THN it calms me a bit but don’t take too much it sure does weird thing...

Yogikay

•1 year ago

4 Replies

Another round of departments

I've joined several boards on here: initially PMR because that's what was diagnosed first, then the Lung board because after I saw the rheumatologist in...

I've joined several boards on here: initially PMR because that's what was diagno...

ladygigger

•1 year ago

14 Replies

can I take .25 Pred daily, just to sustain? (even though Haven't taken any for over a year)

Your advice appreciated. I am doing an overeseas trip to UK next month, and although haven't taken any meds for the last year (stopped Pred and TCZ a year...

Your advice appreciated. I am doing an overeseas trip to UK next month, and alth...

jarn

•1 year ago

27 Replies

Finally off Pred

Have not taken any Pred for 2 weeks. I feel good but very tired all the time. No pain related to PMR just a constant back ache for which I am to see a...

Have not taken any Pred for 2 weeks. I feel good but very tired all the time....

Suffererc

•1 year ago

18 Replies

How do I know when in remission?

I have PMR and GCA. Wondering how we know if in remission? All treatments suppress markers so control don't cure. Do we simply come off medications and see if...

I have PMR and GCA. Wondering how we know if in remission? All treatments suppr...

WaltzG

•1 year ago

11 Replies

fatigue

18 months in and on 8 mg. When can I expect some relief from the fatigue? It seems like it’s getting worse not better.

18 months in and on 8 mg. When can I expect some relief from the fatigue? It s...

Hidden

•1 year ago

16 Replies

lynnj

hi all Newly diagnosed. 2 months. Still in Shock ! GP excellent so far and referring to a rheumatologist but he’s querying my wrist hand pains. Stiffness...

hi all Newly diagnosed. 2 months. Still in Shock ! GP excellent so far and r...

Kerr2

•1 year ago

32 Replies

UPDATE: TODAY'S ER VISIT

The mystery of back pain has been solved. Two fragility compression fractures at L1, L2. Which were found in the ct scan of July 7th. My rheumy never read the...

The mystery of back pain has been solved. Two fragility compression fractures at...

Missus835

•1 year ago

47 Replies

Return of the Living Dead

Four months after finishing pred and despite TCZ, I can now hardly move. Pain can only be expressed with the rudest possible words, as you all know, and sleep...

Four months after finishing pred and despite TCZ, I can now hardly move. Pain ca...

Sharitone

•1 year ago

31 Replies

Does anyone else get this odd symptom?

I used to get this a lot pre-diagnosis/Pred starting, once I was hit with the 40mg of Pred it stopped completely, but seemed to restart once I got down to...

I used to get this a lot pre-diagnosis/Pred starting, once I was hit with the 40...

Allotmental

•1 year ago

29 Replies

Alternative strategies for dealing with PMR

Are there any examples out there of PMR sufferers who’ve managed the condition without steroids? …and if so, what were they, and how long did it take! And...

Are there any examples out there of PMR sufferers who’ve managed the condition w...

MerryMiller

•1 year ago

18 Replies

FAQ. PMRGCAUK

where do I find faqs please

Suffererc

•1 year ago

2 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2023

Legs thighs and calfs pain

Diagnosis and Dose

Abandoned?

Not allowed back on pred with TCZ

Rheumatologist Appointment

GCA after PMR

Follow up Post to Smartwatches. Regarding their Use with Pacemakers

Rheumatologist appt

Flare dosage advice please

Help! I forgot to take my Omeprazole on holiday!

At last, GP who listens to patient, and not hooked up to pro forma reduction schedule

Three months on pred, now at 9 mg, loss of appetite now occurring. Has anyone else lost appetite?

general question - what are chances of GCA returning

Lilydunn

Smartwatch - A Useful Tool or Not?

Tocilizumab - end of the year's treatment

Intermittent headaches

Calcium citrate/D3 supplements.

THB drops?

Another round of departments

can I take .25 Pred daily, just to sustain? (even though Haven't taken any for over a year)

Finally off Pred

How do I know when in remission?

fatigue

lynnj

UPDATE: TODAY'S ER VISIT

Return of the Living Dead

Does anyone else get this odd symptom?

Alternative strategies for dealing with PMR

FAQ. PMRGCAUK

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