advice on not taking meds for a day: hi me again... - PMRGCAuk

PMRGCAuk

21,302 membersā€¢40,389 posts

advice on not taking meds for a day

lennysmummy profile image
ā€¢17 Replies

hi me again, can anyone advise me on this. I have a gastroscope booked for tomorrow with sedation. I had a pre assessment today and they had no idea what GCA is and was going to Google it. šŸ™ˆ They have told me not to take my steroidā€™s tomorrow and it will not matter. Iā€™ve tried to contact the the rheumatologistā€™s secretary and also the nurses helpline but not got hold of anyone. Iā€™m in a quandary as I really do not know what I should do and whether a day of no prednisolone will matter. Anyone? šŸ™ā¤ļø

Written by
lennysmummy profile image
lennysmummy
To view profiles and participate in discussions please or .
Read more about...
17 Replies
ā€¢
PMRpro profile image
PMRproAmbassador

It is just the same as forgetting it for a day and almost everyone does that at some point. What time is the appointment and what dose are you on?

lennysmummy profile image
lennysmummyā€¢ in reply toPMRpro

My appointment is at 2.50pm and I am on 8 and a half.

PMRpro profile image
PMRproAmbassadorā€¢ in reply tolennysmummy

I would take about half before bed tonight and the rest immediately after the procedure is done. Thinking about it - I'd take 5mg tonight, that should be fine and well before their cut-off for fasting?

It never ceases to amaze me the downright ignorance on the part of HCPs in the UK - I have yet to meet someone here who doesn't know what GCA is!!!!

lennysmummy profile image
lennysmummyā€¢ in reply toPMRpro

I know itā€™s quite scary isnā€™t it. Itā€™s not reassuring at all. šŸ™‚

DorsetLady profile image
DorsetLadyPMRGCAuk volunteerā€¢ in reply tolennysmummy

Agree with PMRpro in taking 5mg tonight - and rest later tomorrowā€¦ good luck with procedure.

lennysmummy profile image
lennysmummyā€¢ in reply toDorsetLady

Thank you. šŸ™

SheffieldJane profile image
SheffieldJane

The test should only last 15 minutes. Can you not take it afterwards?. On the day a doctor is sure to know about this fairly usual issue, otherwise they are a pretty odd sort of doctor. Perhaps if it was nurses who did your pre-assessment, they didnā€™t know. It doesnā€™t fill you will confidence does it? Hydrocortisone was added via my cannula when I had a colonoscopy. No doctor wants an Adrenal crisis on their hands ( unlikely though). They just donā€™t want anything obscuring or altering the view I guess. Good luck! I am sure the anticipation is the worst bit.

lennysmummy profile image
lennysmummyā€¢ in reply toSheffieldJane

Yes it was the nurses. Obviously although Iā€™m there at 2.50 I probably wonā€™t go down until a lot later. If I took them later in the evening I wouldnā€™t sleep. Iā€™m just worried about the effects the sedation would have taking steroids soon after. šŸ˜

Thelmarina profile image
Thelmarinaā€¢ in reply tolennysmummy

I had to miss a dosage for a procedure - I was on 8mgs - and it had no impact on my PMR at all. Donā€™t worry! Lots of people miss a dose and survive ok. Good luck. šŸ‘šŸ˜€

lennysmummy profile image
lennysmummyā€¢ in reply toThelmarina

Itā€™s not PMR itā€™s the GCA. Got advice last night and was told not to miss the dose. X

Thelmarina profile image
Thelmarinaā€¢ in reply tolennysmummy

So sorry - thatā€™s a different situation. I rushed into reassure too soon! X

SheffieldJane profile image
SheffieldJane

They told me I had sedation. I felt nothing from it. I guess the hydrocortisone cancelled it out. However, I was calm enough to be interested in watching my insides on a screen, including the removal of 6 polyps. So maybe I was calm, just not woozy. I hope this is just a failure in communication and it works out just fine. We just have to trust that they know what they are doing. šŸ€

lennysmummy profile image
lennysmummyā€¢ in reply toSheffieldJane

It is about having the trust..

Ann1A profile image
Ann1Aā€¢ in reply tolennysmummy

Yes, but it's also about making sure they have (in a the most polite way) the information, and understanding of it, to deal safely with your conditionS

lennysmummy profile image
lennysmummyā€¢ in reply toAnn1A

Yes I know. Well rheumatologist has just phoned and has advised I take them as normal. She did say that they could refuse to do the scope but it would be very unlikely.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteerā€¢ in reply tolennysmummy

Makes senseā€¦ as your procedure is in the afternoon, the Pred will have got through your systemā€¦ think usual cut off time is around 6 hours prior to procedures.

lennysmummy profile image
lennysmummyā€¢ in reply toDorsetLady

Yes it is.

Not what you're looking for?

You may also like...

Late taking meds

OMG I won't do this again in a hurry! I am currently on a reducing scale from 60mg pred and went...
Chihuahua1 profile image
ā€¢

Advice on taking Leflunomide

Hi Iā€™m new to the forum but have reading all your posts and do not feel alone in this awful...
ā€¢

Help. On 25 mg of Pred for GCA moving onto methotrexate - advice on metho please :)

hello friends, I have not been on here since Christmas, which came and went. I have now got down...
Fieldofdreams profile image
ā€¢

Smartwatch - A Useful Tool or Not?

Hi all. Smartwatches. Can I make clear, at this point that I have no affiliation with any...
Bcol profile image
ā€¢

My GP told me, she will not send me for a Biopsy on my TA

29th April 2015 This morning, I went to GP to ask for Biopsy, as the rheumatologist asked me to,...
Old_Bedfordian profile image
ā€¢

Moderation team

SophieMB profile image
SophieMBPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.