tappering: Hi I’ve had pmr for approx 9 years down... - PMRGCAuk

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tappering

Sufferingpoly profile image
10 Replies

Hi I’ve had pmr for approx 9 years down to half a mg a day for last 3months . Can I stop taking or should I tapper some more . Advice please

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Sufferingpoly profile image
Sufferingpoly
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10 Replies
PMRpro profile image
PMRproAmbassador

We would say do another taper for that last half mg - it really can be enough to keep things quiet where zero doesn't. If it were me I'd probably hang on to it as a sort of talisman! But brilliant you have got this far after 9 years.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

You could try a slower tapering plan from 1/2mg to zero, but as PMRpro says and many have found 1/2mg can make a big difference to PMR, with almost zilch in the side effects line..

But don’t just stop, taper off slowly if you decide to give it a go.

Sufferingpoly profile image
Sufferingpoly in reply toDorsetLady

thank you Dorst lady . From Dorset man

piglette profile image
piglette

I would drop to zero for a day then carry on at 0.5mg for say five days then zero then 0.5mg for four days etc etc and stop if it does not work. Good luck.

Exflex profile image
Exflex

I’m heading towards 1/2mg from 3/4mg using the DL 5W plan. If and when I get to 1/2mg my plan is to use an extended taper (7W) to 1/4mg, and then the same again to 0mg.

Best of luck to you!

Gossiplady profile image
Gossiplady in reply toExflex

hi Exflex! Yes, I too am on 0.75 mgs and taking life very slowly on tapering. I understand from this site at these low doses there are very few side effects, As PMRpro says, keep it as a talisman. We are getting there eventually! Keep smiling!

Alice70 profile image
Alice70 in reply toExflex

Will you send me the link to the D L plan of tapering preds thank you

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toAlice70

Here -

healthunlocked.com/pmrgcauk...

Alice70 profile image
Alice70 in reply toDorsetLady

Thank you so much

Exflex profile image
Exflex

I see DorsetLady has provided the link; she’s on the ball and a true star!

I constructed a spreadsheet using Monday as my starting point, and I follow it religiously.

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