Liver problems

[Phoebess]

I feel quite sorry for myself. After a weekend of severe pain and vomiting, it turns out my liver isn't doing so well. I'm in hospital atm, and consultant initially thought I had cholecystitis, but that doesn't appear to be the case although the presentation certainly looked that way.Theyve stopped my Mycophenolate as that may be causing the liver problem, but I've already tried Methotrexate and Leflunomide without success due to side effects. I suppose Rifampicin is next, although all of these are not kind to liver.

Consultant speaking to liver specialist and my fabulous rheumatologist to discuss next steps.

Just needed a rant and a kind listening ear x

[PMRpro Ambassador]

Hard luck - get well soon.

Bit confused by your mention of rifampicin - that is an antibiotic, nothing to do with LVV.

[Phoebess in reply to PMRpro]

My brain is fuddled after losing so much sleep Think I mean Rituximab

[PMRpro Ambassador in reply to Phoebess]

I meant to ask that - I thought you may have,

[Kendrew]

Hi Phoebess,

So sorry you're having a challenging time at the moment. You must be feeling pretty uncomfortable if you've symptoms similar to an inflamed gallbladder.

I hope you get sorted quickly so you can begin to feel better soon.

Best Wishes.

[Wouldlovetorun]

Get Better Soon 💐X

[SheffieldJane]

And a hug by the sound of things. Safe hands. X🙏

[Phoebess]

Thanks peeps.....I feel as if I've had a virtual hug

[JanetRosslyn]

Big virtual hug x

[Bagadash]

Very sorry to hear about your problems. I do hope they are sorted out soon. Best wishes.

[keeptalking]

Sorry you’re suffering at present. Hope it soon gets sorted and you have a speedy recovery.

[Jackoh]

Sorry you’re suffering at the moment. Prayers and virtual hug. Xx💐

[Tiggy70]

Sorry to hear you’re going through a rough patch. A virtual hug is on its way to you 🫂🌸

[whitefishbay]

I hope you brought ear plugs as hospitals are so noisy. Get well soon!

[MarksPoint]

So many people are thinking of you and wishing you well.....hang in there. ❤️

[Rachmaninov2]

Hope you feel better very soon Phoebess. 🌷

[calibriel]

So sorry to hear you’re going through all this - makes my conditions and symptoms seem trivial. Hope things get better for you. At least it sounds as if you’re getting the care you need.

[Dambusters]

So sorry to read your news. I pray they find a way to help.I just had good news about my cancer being stable and was then hit with chronic pain that turned ouy to be pancreatic stones.

Hoping they are controlling your pain. Will keep you in my thoughts annd prayrrs.

[Phoebess in reply to Dambusters]

Ouch dambusters....so painful. Can they blast them with ultrasound like they do gall stones?

[Orangecakes]

Hi Phoebess, Poor you. Wishing for you a speedy recovery.

[Broseley]

They will sort you out, I'm sure. Fingers crossed for you, and a big hug.

[Croft9232]

Thinking of you x Get people watching to pass the time if you feel well enough !

[Phoebess in reply to Croft9232]

My favourite pastime. You certainly see the world go round. My jaw drops sometimes!!!😬

[Missus835]

We're all here for you. Hugs Phoebess. {{{{hugs}}}}

[Motida]

Thinking of you Phoebess and hope the clinicians are all experienced and kind as well. {}s

[Skysey]

Hope you feel better soon. We need these meds but they can cause so many other issues.

[Plantingwithfaith]

thinking of you ❤️

[Phoebess]

Great teleconsult with my rheumatology team today.I have so much respect for their professional knowledge, and they're really nice people too.My liver tests are normalising and pain is significantly reduced. Rheaumy consultant doubts it was related to Mycophenolate as that wouldnt raise my CRP, but I can't restart it until my liver bloods are normal again.

So thank you all so much for sending me positivity and healing vibes.

Bad news, is that I now know I have gall stones 🥴

[Stills in reply to Phoebess]

knowledge is power though, wishing you a better day tomorrow 🌹

[PMRpro Ambassador in reply to Phoebess]

Mycophenolate can cause inflammation - Genetech says so!

"Some people taking CELLCEPT may have an inflammatory reaction with fever, joint stiffness, joint pain, and muscle pain. Some of these reactions may require hospitalization. This reaction could happen within weeks to months after your treatment with CELLCEPT starts or if your dose is increased."

gene.com/patients/medicines....

Under What are the possible side effects? Inflammatory reactions.

[Phoebess]

That wasn't disputed, but my specialist said it wouldn't raise my CRP ( it was 60 yesterday, 26 today) . Is my faith in them unjustified..... I really value your opinion and knowledge. ( I've to stay off it anyway until my liver enzymes return to normal parameters)

[PMRpro Ambassador in reply to Phoebess]

I doubt they can be that definite. Had you had a chesty cold? That can sent CRP into the stratosphere too.

[Phoebess in reply to PMRpro]

Nothing to indicate any infection, although I did develop a fever and my crp went up

[PMRpro Ambassador in reply to Phoebess]

Inflammation does not necessarily mean infection - but it will raise CRP.

[Hunter134]

Sorry to hear about your issues Hope they get it sorted out real soon.Hugs to you❤️

[emsscot]

I’m so sorry to hear this. Sometimes it all just feels so overwhelming. Hang in there and huge hugs going your way 🤗🤗

[ab58sf]

So sorry to hear about these side effects. Praying for healing. Is prednisone actually worse than all these other meds? I don't know, but have been on prednisone for a year now at low dose. However, a flair did make me go up in dosage. Trying to taper very slowly.