PMR remission maybe

[Mewy]

As I mentioned in an earlier post after spending 30 days for each reduction tapering from 15mg-12.5mg -10mg, my nurse practitioner put me on a taper of 1 mg every two weeks. This week I began the 1mg dose and over the tapering period I have not had any flares so far. I am happy to be finishing off the prednisone. 😊I can't say how much this site has meant to me. Thank you to the PRO 's and for the resources available here.

Thank you for all that you do!!

[DorsetLady PMRGCAuk volunteer]

Fingers crossed you won’t need us again…..

[Mewy in reply to DorsetLady]

I ha learned that a sister of a friend has PMR so I suggested she register for this sight.

[PMRpro Ambassador]

Fingers crossed but beware - 1mg can be plenty to keep the inflammation due to a very low level of disease activity under wraps, You can say it has gone when you've been off pred for 6 months without any sign of PMR. And hopefully you will get there.

[Mewy in reply to PMRpro]

Thanks for reminding me about the 6 months before it is gone.

[PMRpro Ambassador in reply to Mewy]

Some people are so excited about zero that they forget - and get into a proper flare instead of taking action at a stage where just 1 or 2 mg is enough, Don't want that happening! All the best

[Mewy in reply to PMRpro]

Yes I am not out of the woods yet. 🤞

[HeronNS]

Good luck.

When I started pred my doctor told me that some of her patients kept a supply of 1 mg on hand just in case they found they needed it. Don;t hesitate to take a 1 mg dose if you find after a few weeks that you are getting some niggles. Hopefully that won't happen, but better safe than sorry.

Still, you've done very well with the taper so looking good! Best wishes.

[Mewy in reply to HeronNS]

I have a part bottle of 1mg of PRED and the will stay with me. 💓