Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,881 posts

All posts for March 2023

Greetings from Oz

Now been in Oz for ten days so far no problems,just keeping to my same doses of pred leflumonide apixaban etc. The warm sunshine helps, hear it's still cold...

Now been in Oz for ten days so far no problems,just keeping to my same doses of ...

Maryis80

•2 years ago

14 Replies

Actemra

Does anyone know if Actemra should be stopped for a UTI...? I suspect I might have one....on my 17th injection today....still waiting for Doc to submit...

Does anyone know if Actemra should be stopped for a UTI...? I suspect I might ha...

Joseph14612

•2 years ago

9 Replies

Rheumatology

Has anyone else been told that their Rheumatologist appointment will only be on the condition that they have reduced Prednisolone medication to zero? I'm 2...

Has anyone else been told that their Rheumatologist appointment will only be on ...

Hidden

•2 years ago

28 Replies

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GCA relapse

I am currently having a bad GCA relapse and have put my steroids up from 3.5 to 7.5 mg. What always surprises me is that if I have a hot bath, one where I am...

I am currently having a bad GCA relapse and have put my steroids up from 3.5 to ...

christine2715

•2 years ago

16 Replies

7 years in May since I was diagnosed.

I've been reminding myself how far I've come. Back in 2016 I was struggling to have enough energy to get dressed and spent many days in my PJ's. Most I...

I've been reminding myself how far I've come. Back in 2016 I was struggling to ...

IdasMum

•2 years ago

5 Replies

GCA and respiratory issues?

Hi everyone. I updated my profile to include my most recent flare/infection, but wanted to briefly share that info. with others who may experience respiratory...

Hi everyone. I updated my profile to include my most recent flare/infection, bu...

Preacherball

•2 years ago

10 Replies

pmr flare

Hi I just got down to 4.5/mg of prednisone and started to get stiffness in a number of areas. As I flared once before I am more careful now. I went up to 9 mg...

Hi I just got down to 4.5/mg of prednisone and started to get stiffness in a num...

Skier321

•2 years ago

6 Replies

Real problems getting back on track with tapering

I’m 2 years into my PMR journey and recently got down to 5.5 mg pred using one of the slow tapering methods. About 6 weeks ago I had a significant flare and...

I’m 2 years into my PMR journey and recently got down to 5.5 mg pred using one ...

Laineydee

•2 years ago

20 Replies

Prednisone quandary

Im looking for some advice please. I'm currently on 7mg or pred and have been for many years. However over the last week I've experienced difficulty in...

Im looking for some advice please. I'm currently on 7mg or pred and have been f...

Bobbury

•2 years ago

5 Replies

real ale

HI I am still at 6 mg pred in pain with my hands and fingers but Ive noticed if I have several beers on a Saturday the next day the pain is alot better from...

HI I am still at 6 mg pred in pain with my hands and fingers but Ive noticed i...

deeperpurple

•2 years ago

14 Replies

fed up

is anyone else catching every bug that’s going round . I’ve got a sore throat now as well as shingles😢yep I’m feeling sorry for myself 🫣

is anyone else catching every bug that’s going round . I’ve got a sore throat no...

Shaza123

•2 years ago

33 Replies

Starting dose of 12.5mg too low for PMR?

After reading an research paper on PMR that linked weight to starting dose of Prednisolone my GP agreed I could begin on 12.5mg. It wasn't a miracle cure but a...

After reading an research paper on PMR that linked weight to starting dose of Pr...

Oh-my

•2 years ago

22 Replies

Osteoporosis

Hello Everybody, I had a DEXA scan in 2020, as far as I can see the only worrying result was the neck of femur -2.7. I have just had another DEXA scan on a...

Hello Everybody, I had a DEXA scan in 2020, as far as I can see the only worr...

Hollyberry12

•2 years ago

79 Replies

The BSR is on our side

I know the Guidelines from the British Society for Rheumatology are on this site already, but there are here so many appalling stories of medical obtuseness...

I know the Guidelines from the British Society for Rheumatology are on this site...

Mayadill

•2 years ago

20 Replies

Two weeks since start of flare & still in pain

Hi folks. I'd got down to 7mgs of Pred with the aid of Actemra (started 5 months ago). After 2 weeks on 7mgs, pains returned - same pattern & symptoms as first...

Hi folks. I'd got down to 7mgs of Pred with the aid of Actemra (started 5 months...

strawclutching

•2 years ago

63 Replies

Can a flare improve with rest

Hi, I have been tapering off Pred for almost 2 years. I have had a couple of flare ups on the way but I’m now down to a daily dose of 2mg. I’ve had a very...

Hi, I have been tapering off Pred for almost 2 years. I have had a couple of f...

SunshineJSM

•2 years ago

14 Replies

Supplements

Has anyone used supplements to compliment medical treatment for PMR? I am considering Evening Primrose Oil alongside steroids.

Has anyone used supplements to compliment medical treatment for PMR? I am consid...

PhilFreeToAsk

•2 years ago

33 Replies

British Summer Time

Not really a PMR/GCA problem, but a reminder that in the UK this weekend, we move from Greenwich Mean Time to British Summer Tiime. The clocks go forward one...

Not really a PMR/GCA problem, but a reminder that in the UK this weekend, we mov...

Bcol

•2 years ago

74 Replies

hiya! how do you care for your feet, especially nail cutting?

hiya. still running with the bulls. 🐃🏃‍♀️🦓with the hip pain this sharp and not yet helped by medicine, i can't reach my toes long enough to get my nails cut...

hiya. still running with the bulls. 🐃🏃‍♀️🦓with the hip pain this sharp and no...

hazmatrec

•2 years ago

26 Replies

I’ve been diagnosed March 10 with Arterial Arteritis by my hematologist. It’s complicated.

Ive had symptoms I realize for a few years , mentioned them to neurologist and hematologist and rheumatologist, but we have thought they were due to my...

Ive had symptoms I realize for a few years , mentioned them to neurologist and h...

KellyInTexas

•2 years ago

15 Replies

Specialists in the Nottingham or East Midlands

Hi all Have any of you had a positive experience with a rheumatologist in Nottingham/East Midlands area, either NHS or private? I was diagnosed 18 months...

Hi all Have any of you had a positive experience with a rheumatologist in Notti...

Lottieandlola

•2 years ago

45 Replies

Raised CRP

Good morning . After some advice/ thoughts from you wise people. My CRP has been raised over my last 3 blood tests ( currently 37 and ESR 16) My...

Good morning . After some advice/ thoughts from you wise people. My CRP has ...

Rebsy

•2 years ago

20 Replies

Polymyligia rheaumatica

Started with P MR in December started treatment with 30mgs of prednisalone January ,then dropped down to 20mg prednisalone, then 15mg, this is when I saw...

Started with P MR in December started treatment with 30mgs of prednisalone Janua...

Alice70

•2 years ago

9 Replies

Questions on PMR & GCA

The visit to my new Rheumatologist was unusual, she looked at me and just said, you don't have PMR or GCA within 5 minutes of consultation. No poking or...

The visit to my new Rheumatologist was unusual, she looked at me and just said, ...

Triumph650

•2 years ago

57 Replies

Steroid timing and colonoscopy preparation medicine

I am due to have a colonoscopy on Monday afternoon. I have to take some bowel evacuation medicine at 7pm on Sunday night and again at 6 on Monday. I am...

I am due to have a colonoscopy on Monday afternoon. I have to take some bowel ev...

Hidcote

•2 years ago

7 Replies

PMR - CGA and Conflicting advice

I've lost time as the my so called diagnosis for PMR and partial loss of sight in my right eye with GCA, it is close to three years, I'm giving the system one...

I've lost time as the my so called diagnosis for PMR and partial loss of sight i...

Triumph650

•2 years ago

2 Replies

Visit to Rheumatologist.

Today I had my 6monthly appointment with my new rheumatologist Dr. Coath at Southend Hospital (I was seeing Prof Dasgupta but he's now retired from his NHS...

Today I had my 6monthly appointment with my new rheumatologist Dr. Coath at Sout...

Kendrew

•2 years ago

31 Replies

Talked to PCP about tapering, he says go from 20mg to 15mg prednisone using a pill splitter

I will see a rheumatologist on Jun 15. But my PCP also poo-pooed the idea of small dose pills of prednisone like 5mg, 2.5,g or 1mg which it seems some people...

I will see a rheumatologist on Jun 15. But my PCP also poo-pooed the idea of sma...

sdowney717

•2 years ago

28 Replies

Hello..wondering how many of you started on 15 mg, but needed 20 mg

to really knock this out. Hello, been on 15 mg since February 18th. I feel 75% better overall..all hip and flank pain is gone, but my neck pain seems to have...

to really knock this out. Hello, been on 15 mg since February 18th. I feel 75% ...

sidra1968

•2 years ago

58 Replies

Adrenals are working!

I had a ACTH Stimulation Test this morning and just got the results back from my Endo. She said even better than she expected. So now I can start tapering off...

I had a ACTH Stimulation Test this morning and just got the results back from my...

pmac22

•2 years ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2023

Greetings from Oz

Actemra

Rheumatology

GCA relapse

7 years in May since I was diagnosed.

GCA and respiratory issues?

pmr flare

Real problems getting back on track with tapering

Prednisone quandary

real ale

fed up

Starting dose of 12.5mg too low for PMR?

Osteoporosis

The BSR is on our side

Two weeks since start of flare & still in pain

Can a flare improve with rest

Supplements

British Summer Time

hiya! how do you care for your feet, especially nail cutting?

I’ve been diagnosed March 10 with Arterial Arteritis by my hematologist. It’s complicated.

Specialists in the Nottingham or East Midlands

Raised CRP

Polymyligia rheaumatica

Questions on PMR & GCA

Steroid timing and colonoscopy preparation medicine

PMR - CGA and Conflicting advice

Visit to Rheumatologist.

Talked to PCP about tapering, he says go from 20mg to 15mg prednisone using a pill splitter

Hello..wondering how many of you started on 15 mg, but needed 20 mg

Adrenals are working!

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