Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for March 2023

Updated profile,to emerg again Mar 1 2023

Updated profile, but have made some errors, not sure how to correct, one comment posted under wrong category, re pregnancy!! and started at 40 mgs when...

Updated profile, but have made some errors, not sure how to correct, one comment...

•1 year ago

Adrenals

Hi I will try and explain in as few words as I can !Last July I lowered to 5mg started (20mg July 2021) began to feel unwell, really bad headaches, spaced out,...

Hi I will try and explain in as few words as I can !Last July I lowered to 5mg s...

•1 year ago

timing of pred when on a low dose , slow taper

Now down to 2 mg / 3 mg taper , and weekly Toc. Just wondering if the timing is still important or if I could take it later in the day. I’m not sleeping...

Now down to 2 mg / 3 mg taper , and weekly Toc. Just wondering if the timing is ...

•1 year ago

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Worsening burning, restless, pins and needles in both feet and calves - is this related to the prednisolone, PMR, or something related?

I cannot fathom why this is happening and why it is becoming worse. I just cannot sleep for this. I take Magnesium Glycenate each day, and have not been...

I cannot fathom why this is happening and why it is becoming worse. I just ca...

•1 year ago

A tale of probable adrenal insufficiency at 1.75mg / 1.5mg

Having caught a cold recently, resulting in nasty cough, I’m under the weather (still ongoing, but slightly better). On Tuesday evening I began shaking...

Having caught a cold recently, resulting in nasty cough, I’m under the weather ...

•1 year ago

Adrenals - just wondering

Hello to all. Taking 3.5mgs prednisolone (down from 15, 6 years ago) now noticing that I can take them later and later each morning thereby lengthening time...

Hello to all. Taking 3.5mgs prednisolone (down from 15, 6 years ago) now noticin...

•1 year ago

Omeprazole capsules

Why is it capsules rather than tablets? Can you use tablets short term if you run out if your away for example? You can get the tablets over the counter can't...

Why is it capsules rather than tablets? Can you use tablets short term if you ru...

•1 year ago

New Treatment for PMR authorized in US

Hi All, I just saw this article today and thought I’d share in case it hasn’t come to anyone’s attention yet:......

Hi All, I just saw this article today and thought I’d share in case it hasn’t...

•1 year ago

Recently diagnosed with GCA

I was diagnosed with GCA 5 weeks ago. Never heard of it, so it was such a shock. I'm 64 fit and healthy, eat a good diet etc but then started with the...

I was diagnosed with GCA 5 weeks ago. Never heard of it, so it was such a shock...

•1 year ago

Lowering pred

Hi all just had a unexpectedly phone call from doctor, said they had been intouch with rheumatologist about me they said pmr can last for several years and I...

Hi all just had a unexpectedly phone call from doctor, said they had been intouc...

•1 year ago

Back at 10mg what to do now?

Was on 2mg went on holiday and had a flare. Increased to 7 for 8 days, dropped to 2.25 for 5 days, then 2.5 for 3 days, then 7.5 proved to not be enough.Had a...

Was on 2mg went on holiday and had a flare. Increased to 7 for 8 days, dropped ...

•1 year ago

LDN and prednisone

My doctor has prescribed LDN and I will be receiving it soon from a compounding pharmacy. I am tapering prednisone, now at 12.5 (from 20 over 4 months) with no...

My doctor has prescribed LDN and I will be receiving it soon from a compounding ...

•1 year ago

Intro (I'm new here)

While I started having some symptoms of PMR as early as last November, I wasn't diagnosed with PMR until early January. I was put on 10mg of Prednisone which...

While I started having some symptoms of PMR as early as last November, I wasn't ...

musclesinflamed

•1 year ago

Persistent headache

Hi, I was diagnosed with Temporal Arteritis in 2019 and have been on a reducing dose of Prednisolone since then. I've been on 2mg per day for the past 6...

Hi, I was diagnosed with Temporal Arteritis in 2019 and have been on a reducing...

•1 year ago

tapering

Thanks to PMR pro and Dorset Lady, among others, I have tapered from 15 to 12.5 mg prednisolone a day. I used the dead slow nearly stop method of tapering. Im...

Thanks to PMR pro and Dorset Lady, among others, I have tapered from 15 to 12.5 ...

•1 year ago

Department of Health Rare Diseases Action Plan

Saw this yesterday, don’t know if it will impact anyone with PMR but thought quite interesting read...

Saw this yesterday, don’t know if it will impact anyone with PMR but thought qui...

•1 year ago

Diagnosis of Sigmoid volvulus 3 weeks ago and an emergency operation via colon righted it temporarily.

I am recovering slowly from the shock of the above diagnosis. The surgeon said he will have to do a major abdominal operation (which he is reluctant to do...

I am recovering slowly from the shock of the above diagnosis. The surgeon said ...

•1 year ago

Update on telephone appointment with my Rheumatologist

My last post commented on finding an previously unknown appointment on the NHS app - luckily by reading a post on here I had found out that I should check my...

My last post commented on finding an previously unknown appointment on the NHS a...

•1 year ago

Dosage advice with Flares Please

I have had PMR since 2016 and have reduced successfully using your go slow method untill I reached 5mg,where after several attempts I have been stuck stuck for...

I have had PMR since 2016 and have reduced successfully using your go slow metho...

•1 year ago

Which spa therapy is best?

OK, I know this sounds like a post from a point of privilege, when many of the people who post on here do so from a place of pure agony, but bear with me … my...

OK, I know this sounds like a post from a point of privilege, when many of the p...

•1 year ago

Advice after going on a “ trip”

Well I Saturday I had the most horrendous fall.I got out of the car at my mother’s nursing home very near a curb and plant patch. I thought I could traverse...

Well I Saturday I had the most horrendous fall.I got out of the car at my mother...

•1 year ago

UPDATE; Overwhelmed; unbearable pain with a 'cascade of subsequent pain', can't figure out anything anymore? Does anybody else get this?

I would like to say a huge, heartfelt thank-you to everybody who has replied to my post in the last 48 hours. The incredible expression and wave of care and...

I would like to say a huge, heartfelt thank-you to everybody who has replied to ...

•1 year ago

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