Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for March 2023

30mg Pred a day for 6 days then ?

I would like some advice, I have had PMR for 3 years and struggled to reduce my pred and for now I am at 1 1/2 mg a day. My question is regarding my wife. She...

I would like some advice, I have had PMR for 3 years and struggled to reduce my ...

paintpots

•1 year ago

14 Replies

Tapering after surgery

Hi I have been on prednisolone since 2015 when I was on 60mg and also methotrexate and it has taken me till now to reduce to 3mg a day. On the 14th March I...

Hi I have been on prednisolone since 2015 when I was on 60mg and also methotrex...

Sorop

•1 year ago

8 Replies

Muscle fatigue post prednisolone

Hi everyone, it took me 2 years to get off prednisolone for PMR and it has been 10 months since I last took any. I try to keep fit by working out at home, dog...

Hi everyone, it took me 2 years to get off prednisolone for PMR and it has been ...

selkie2019

•1 year ago

17 Replies

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why is my hip pain so severe?

I seem to be experiencing a flare because I have had severe hip pain now for several weeks. This may have been triggered by walking for too long on three...

I seem to be experiencing a flare because I have had severe hip pain now for sev...

Raga72

•1 year ago

24 Replies

hydrocortisone or prednisone?

I am wondering which steroid is better for GCA? I was switched over to hydrocortisone by an endocrinologist to “nudge my adrenal glands into waking up” and...

I am wondering which steroid is better for GCA? I was switched over to hydrocort...

pmac22

•1 year ago

3 Replies

Possible adrenal wake up?

Diagnosed Sept 22 with PMR, started at 15mg now just down to 7.5 mg. Noticing occasional short periods of what seems like quickened heart rate, almost...

Diagnosed Sept 22 with PMR, started at 15mg now just down to 7.5 mg. Noticing ...

Windy183

•1 year ago

19 Replies

Hey up x

Many of you read my story regarding being diagnosed with Fibro and questioning the diagnosis on account of having a sister who has responded to steroids for...

Many of you read my story regarding being diagnosed with Fibro and questioning t...

Northernnugget

•1 year ago

27 Replies

Should I increase my pred??

Hi I’m currently on 7.5 pred, have been for about six weeks. A couple of weeks ago, I tried to alternate between 7, and 7.5, but had some not so good days, so...

Hi I’m currently on 7.5 pred, have been for about six weeks. A couple of weeks ...

Carathedog

•1 year ago

20 Replies

ESR CRP Results

I had a blood test four weeks ago and my CRP was 12.6; at that stage I was on 6.5mg a day prednisone, tapering (using DL's plan) from my original dose rate of...

I had a blood test four weeks ago and my CRP was 12.6; at that stage I was on 6....

Hankb

•1 year ago

4 Replies

PTH low

Good morning. 3 months ago my consultant decided to do a PTH test with my normal blood tests. It showed low PTH result of17.10pg/ml so she told me to stop...

Good morning. 3 months ago my consultant decided to do a PTH test with my normal...

Pawscat11

•1 year ago

3 Replies

predisolone dosage while undergoing surgery

I’m due to have major surgery soon. Currently I’m on 5mg pred. Should I increase the dosage for the time of the operation?

I’m due to have major surgery soon. Currently I’m on 5mg pred. Should I increase...

Sumojo

•1 year ago

4 Replies

Prednisolone reduction and Anxiety

I have been taking prednisone for 9 months now for GCA I began with 60 my per day and have reduced to 8mg per day. My consultant increased my dose to 10mg a...

I have been taking prednisone for 9 months now for GCA I began with 60 my per d...

Ellie11711

•1 year ago

20 Replies

methotraxate for polymialgia

I saw a Spanish rheumatologist today and on the basis that I have been on steroids for four and a half years, currently at 13.5 mgs deflazacort (pred...

I saw a Spanish rheumatologist today and on the basis that I have been on steroi...

bBarnabus

•1 year ago

7 Replies

prednisolone - calcium

Hi ! yes I was on 60 mg prednisolone it’s taken me 3 years to reduce I’m now steroid free 👍 I’m now taking calci D and a bone tablet once a week as it has...

Hi ! yes I was on 60 mg prednisolone it’s taken me 3 years to reduce I’m now ste...

Touting

•1 year ago

5 Replies

Would dose timing help this?

I’ve been on pred since 11/2015 - a long time. Was down to 4.5 when hospitalized with asthma. The heavy steroid doses set my taper back. I haven’t had any...

I’ve been on pred since 11/2015 - a long time. Was down to 4.5 when hospitalized...

Karenjaninaz

•1 year ago

4 Replies

Adventures in decreasing prednisone

I have been decreasing pred using very slow method for about 6 months, after being on pred for 6&1/2 years at approximately 15 mg daily. Everything was going...

I have been decreasing pred using very slow method for about 6 months, after bei...

Linny3

•1 year ago

8 Replies

Cataract Surgery: NHS referral for fast treatment

I’m aware that cataracts are a common side effect of steroids. I’ve developed cataracts in both eyes, rapid growing and last week had surgery for replacement...

I’m aware that cataracts are a common side effect of steroids. I’ve developed c...

Hulotsholiday

•1 year ago

18 Replies

Newly Diagnosed Jan 23

Hi all, After suffering for months with horrendous aches and pains and feeling like i was 100 yrs old , I was diagnoised in Jan with PMR at 52, after taking...

Hi all, After suffering for months with horrendous aches and pains and feeling l...

Davies71

•1 year ago

20 Replies

Does PMR ever go away?

Good morning! I was diagnosed two years ago. Really just looking for some hope. Does this ever go away? How many people would you estimate are able to get off...

Good morning! I was diagnosed two years ago. Really just looking for some hope. ...

Bambi1234567

•1 year ago

29 Replies

should I ask for DXA scan?

Had a temporal biopsy a week ago, awaiting results. Pre-op ultrasound to mark artery pathway showed some inflammation. Putting that with my symptoms ( and now...

Had a temporal biopsy a week ago, awaiting results. Pre-op ultrasound to mark ar...

tweety_pie

•1 year ago

23 Replies

3mg is not enough

Having taken 10mg for 10 days, 8 for 5, 5 for 5, 3 for 5 and stayed on 3mg for a further 10 days, I am in pain again.Both upper arms, right shoulder and left...

Having taken 10mg for 10 days, 8 for 5, 5 for 5, 3 for 5 and stayed on 3mg for a...

Mazxstitch

•1 year ago

6 Replies

Medications that reduce an overactive bladder

Since I've been on prednisolone my trips to the loo during the night have increased tremendously. I'm not sure if this is due to waking frequently and my body...

Since I've been on prednisolone my trips to the loo during the night have increa...

Pr0jection

•1 year ago

21 Replies

Need for Calcium supplements?

I have been on prednisolone for 10 months for PMR, recent flare at 7mg so now on 10mg until resolved. My Dexa scans show no significant bone loss, currently...

I have been on prednisolone for 10 months for PMR, recent flare at 7mg so now on...

Flinders61

•1 year ago

16 Replies

Immune system and SARS-CoV-2

Couldn't be sure where to post this in our FAQ Covid section but I think it's important. Confirms what a lot of us have been suspecting:...

Couldn't be sure where to post this in our FAQ Covid section but I think it's im...

HeronNS

•1 year ago

24 Replies

Exercise

Having just started on steroids 2 weeks ago, I have been wondering about exercise in helping recovery. Any recommendations on how much to do?What type of...

Having just started on steroids 2 weeks ago, I have been wondering about exercis...

PhilFreeToAsk

•1 year ago

49 Replies

Hey everyone, my SED actually went UP since started the 15 mg

So after posting to all of you about wanting to go up to 20 mg since I still had some pain, but being worried the Dr. wouldn't agree at my appt. this...

So after posting to all of you about wanting to go up to 20 mg since I still had...

sidra1968

•1 year ago

2 Replies

Was I wise

Currently on 3.5mg. Rheumatoid arthritis has shown itself in both hands and is very painful. GP said 'I could give you a steroid injection but I don't expect...

Currently on 3.5mg. Rheumatoid arthritis has shown itself in both hands and is ...

ChinaWuntoo

•1 year ago

15 Replies

GCA turned into PMR?

I guess this is not unusual. I tapered off Pred last November, and hoped I was clear of GCA. But I slowly began to develop muscle aches around my shoulders...

I guess this is not unusual. I tapered off Pred last November, and hoped I was c...

Lutra2

•1 year ago

6 Replies

Is this a flare?

For the last month or so I've been getting stiff in my left hip/groin area. It doesn't get better during the day. I really noticed it last week when I couldn't...

For the last month or so I've been getting stiff in my left hip/groin area. It d...

Broseley

•1 year ago

23 Replies

GCA in Lincolnshire?

Just wondering if there is anyone out there who has GCA who lives in Lincolnshire? I was diagnosed at the end of January this year and would love to know if...

Just wondering if there is anyone out there who has GCA who lives in Lincolnshir...

Janeval

•1 year ago

11 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2023

30mg Pred a day for 6 days then ?

Tapering after surgery

Muscle fatigue post prednisolone

why is my hip pain so severe?

hydrocortisone or prednisone?

Possible adrenal wake up?

Hey up x

Should I increase my pred??

ESR CRP Results

PTH low

predisolone dosage while undergoing surgery

Prednisolone reduction and Anxiety

methotraxate for polymialgia

prednisolone - calcium

Would dose timing help this?

Adventures in decreasing prednisone

Cataract Surgery: NHS referral for fast treatment

Newly Diagnosed Jan 23

Does PMR ever go away?

should I ask for DXA scan?

3mg is not enough

Medications that reduce an overactive bladder

Need for Calcium supplements?

Immune system and SARS-CoV-2

Exercise

Hey everyone, my SED actually went UP since started the 15 mg

Was I wise

GCA turned into PMR?

Is this a flare?

GCA in Lincolnshire?

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