Actemra

[Joseph14612]

Does anyone know if Actemra should be stopped for a UTI...? I suspect I might have one....on my 17th injection today....still waiting for Doc to submit authorization for urine sample

[Devoid]

hi I would say not to inject until you have had it checked out, definitely stop if you need antibiotics

[Joseph14612 in reply to Devoid]

I wasn't sure...the docs don't open for a few hours here in the US, so I have to wait for a response...but I will wait and see what they say...Thank you, I was kind of thinking the same thing..

[PMRpro Ambassador]

The first time I had one on Actemra I was told by a rheumatologist to miss that week until the symptoms improved. I have had symptoms of a UTI several times but usually I take D-mannose immediately I notice any frequency and that has been plenty to avoid it getting worse each time. If I have no symptoms when the injection is due, I do it.

[PMRpro Ambassador in reply to PMRpro]

PS - my own rheumatologist said the good thing with Actemra is that you can delay the jab by a day or two to get over minor symptoms and just change your day. I had been injecting on Wednesdays but wondered if I was getting a cold so waited, by Friday I decided I wasn't and injected and now use Friday as "the day".

[Joseph14612 in reply to PMRpro]

I read that Actemra has a half life after 8 days and takes about 3 months to be completely out of your system....thank you again PMR Pro...your advise is never taken lightly,,,

[Joseph14612 in reply to PMRpro]

Do you take this daily? Or just when you have symptoms? The lab came back positive but "low colony" and I will start Amoxicillian for 7 days...meanwhile I will receive the D-Mannose today. The rheumatologist said skip Actemra this week.

[PMRpro Ambassador in reply to Joseph14612]

Do I take what daily? Not clear what you mean,

I assume D-mannose? I take it if I notice symptoms - 2 or 3 doses of 3 capsules the first day and the second if the symptoms don't go away. Some people take it daily, I don't, a bit expensive here.

[Joseph14612 in reply to PMRpro]

yes, sorry, I replied to an old post… I will probably just use as needed. Thank you again..

[PMRpro Ambassador in reply to Joseph14612]

No apology needed - it's the way HU works, can be very confusing!