Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,235 posts

All posts for March 2023

Great News and a question

I have always been good at getting my yearly checkups. As I approached my 80s I figured I would eventually get test results below normal. At nearly 81 all my...

I have always been good at getting my yearly checkups. As I approached my 80s I ...

Dydee

•2 years ago

11 Replies

kenzara

I’ve just been prescribed kenzara for my PMR Has anyone tried this to wean off prednisone? Or heard anything about it?

I’ve just been prescribed kenzara for my PMR Has anyone tried this to wean off ...

carolpatriarco01

•2 years ago

6 Replies

Help - I've mistakenly doubled my lunchtime dose!

I am on 10 mgs a day - 5mgs at 2 am and 5 at 2pm. I can certainly feel the difference as I have taken a double dose... rather hyper. Should I leave it 24 hours...

I am on 10 mgs a day - 5mgs at 2 am and 5 at 2pm. I can certainly feel the diffe...

Alchemy8

•2 years ago

23 Replies

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Vision Issues

I'm a GCA patient since AUG 2022, having started with 60 MG PRED and decreased slowly to 20 MG PRED at this time. Ever since starting the PRED, I have noticed...

I'm a GCA patient since AUG 2022, having started with 60 MG PRED and decreased s...

montebello

•2 years ago

34 Replies

Any tips/guidance on taking pred when you can't hold anything down?

Managed to catch a nasty strain of D&V from my grandson and not managed to even keep a cup of tea down for more than an hour. This is day 3 and I've just...

Managed to catch a nasty strain of D&V from my grandson and not managed to even ...

Sophiestree

•2 years ago

7 Replies

PMR polymyalgia rheumatica

hello, I am a newcomer and would like to learn experiences with prednisone methoxerate combination , Presently up from 4 mg Prednisone to 10mg And refusing...

hello, I am a newcomer and would like to learn experiences with prednisone meth...

Soubifirst

•2 years ago

7 Replies

PMRGCAuk Facebook Post

I saw this on the PMRGCAuk charity Facebook page and as not everyone has Facebook I thought it would be good to share on here to reach a wider audience and...

I saw this on the PMRGCAuk charity Facebook page and as not everyone has Faceboo...

Estellemac

•2 years ago

6 Replies

facial flashing

Hello; Thank you for this group where I’ve found answers and support when I can’t even get through to my GP surgery. I was diagnosed by a rheumatologist in...

Hello; Thank you for this group where I’ve found answers and support when I ca...

Earthangel59

•2 years ago

14 Replies

numbness

hi there I’m new to the group ! Was diagnosed with PMR January 23 . Has anyone experienced numbness to feet or legs ?

hi there I’m new to the group ! Was diagnosed with PMR January 23 . Has anyone e...

123greentortoise

•2 years ago

4 Replies

Reduction of Prednisolone and Anxiety

Hello, I was diagnosed with GCA in June 2022, after the condition was missed by 3 doctors so the condition was allowed to brew for some time. I was prescribed...

Hello, I was diagnosed with GCA in June 2022, after the condition was missed by ...

Ellie11711

•2 years ago

7 Replies

Opinions needed ref Aledronic Acid

Having recently been diagnosed with bone marrow oedema and a subchondral insufficiency fracture in my knee, I am wondering whether or not I should consider...

Having recently been diagnosed with bone marrow oedema and a subchondral insuffi...

marionofnorwich

•2 years ago

8 Replies

Fosamax (Alendronate) Question

Hi again, I'm a GCA patient that was diagnosed in AUG 2022, started at 60 mg PRED and finally down to 20 MG after 7 months. I was a previous PMR patient...

Hi again, I'm a GCA patient that was diagnosed in AUG 2022, started at 60 mg P...

montebello

•2 years ago

17 Replies

Prednisone Tapering questions

While I had minor symptoms back in Nov-Dec '22, it really hit me in early Jan '23. GP diagnosed PMR after many tests, etc. Started me on 10mg Prednisone...

While I had minor symptoms back in Nov-Dec '22, it really hit me in early Jan '2...

musclesinflamed

•2 years ago

8 Replies

Migraine on tapering

Just a quick question - I began DL's slow taper from 9mg to 8.5mg on Saturday 18/3/23 and suffered a migraine aura so took a sumatriptans tablet. Gradually...

Just a quick question - I began DL's slow taper from 9mg to 8.5mg on Saturday 18...

Miserere

•2 years ago

34 Replies

Frequently asked questions - FAQs

There is so much information to be found here on our forum. A really good place to start is with our FAQs that have been compiled by MrsNails with lots of...

There is so much information to be found here on our forum. A really good place...

Fran_Benson

Partner•2 years ago

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Increase in fatigue as reducing?

See bio for full story, but reduced from 17mg Pred to 16mg on 1st March. Only slight increase in stiffness in shoulders but very noticeable increase in...

See bio for full story, but reduced from 17mg Pred to 16mg on 1st March. Only sl...

Lyra42

•2 years ago

8 Replies

Sapphire Clinics medical cannabis

Has anyone looked into this at all? I mean specifically Sapphire Clinics for medical cannabis. Someone just suggested it to me to help with pain management. I...

Has anyone looked into this at all? I mean specifically Sapphire Clinics for med...

SusyTe

•2 years ago

19 Replies

PMR and CLL

Hello Experts on the Forum, it's been a while since I posted. I was originally diagnosed with PMR in March 2021 after a year of fatigue, pain and immobility....

Hello Experts on the Forum, it's been a while since I posted. I was originally d...

Pocketdog

•2 years ago

31 Replies

Steroid Withdrawal at lower levels of Prednisone

I just started to taper from 5 mg to 4.5 mg, taking my first 4.5 mg dose this past Monday, using the DSNS tapering plan. Besides being very tired the last two...

I just started to taper from 5 mg to 4.5 mg, taking my first 4.5 mg dose this pa...

LucilleG

•2 years ago

19 Replies

Medication change prior to surgery?

I’m wondering if it is a good idea to increase my prednisone dose ahead of cataract surgery next week?. It’s expected to be a routine and ‘non invasive ‘...

I’m wondering if it is a good idea to increase my prednisone dose ahead of catar...

bright-horizon

•2 years ago

9 Replies

acupuncture ?

Does anyone have any thoughts on this to reduce pain and /or help with underlying inflammation. I am concerned it may have triggered my flare ….

Does anyone have any thoughts on this to reduce pain and /or help with underlyi...

Sydney0503

•2 years ago

15 Replies

pain returned at low dose of pred - what to do as I go on holiday on Sunday ?

Hi , I am fed up ! I’m caught between 2 rheumatologists who dispute I have or even had PMR and tell me to just get off the pred and the GP who says you must...

Hi , I am fed up ! I’m caught between 2 rheumatologists who dispute I have or ev...

Sydney0503

•2 years ago

12 Replies

Sore muscles and tendons

I was instructed to come off pred in rather a hurry when I got down to 1.5mg. I negotiated a couple of weeks to do it and I finally took the last little bit a...

I was instructed to come off pred in rather a hurry when I got down to 1.5mg. I ...

Sharitone

•2 years ago

71 Replies

Biological next step

tapered to 11.5 by the slow method. Now a flare. Rheumy wants me to start with Embrel a biological with proven records. I hope insurance gives the go ahead...

tapered to 11.5 by the slow method. Now a flare. Rheumy wants me to start with E...

Pass7

•2 years ago

22 Replies

Taper Discomfort

Hello, Just need a little advice on current taper. I have been on the slow taper plan from this site. Basically for around 6 months now I have been tapering...

Hello, Just need a little advice on current taper. I have been on the slow tape...

Southmead

•2 years ago

26 Replies

rheumatologist locum visit for prednisone refill

I was diagnosed by my rheumatologist in December 2022 with a fairly aggressive tapering schedule that I had to abandon at 6 mg. When she diagnosed me, she did...

I was diagnosed by my rheumatologist in December 2022 with a fairly aggressive t...

clhclh

•2 years ago

24 Replies

Rheumatologist

It is now 12 months since first being told by GP (also first time I had ever heard of it !!!) that I had PMR. My Prednisolone journey so far has been;-...

It is now 12 months since first being told by GP (also first time I had ever he...

Golf-1

•2 years ago

46 Replies

Tapering query

I started, reluctantly, on 15 February 15 mg of pred and omeprozole which took away my symptoms within days. Apart from a few days of pain due to overdoing the...

I started, reluctantly, on 15 February 15 mg of pred and omeprozole which took a...

Lclmlbls

•2 years ago

6 Replies

Covid/PMR Questions

My husband just tested positive for Covid. My doctor had warned me that because of the prednisone, I needed to contact her if I had exposure to or showed...

My husband just tested positive for Covid. My doctor had warned me that because ...

Donna5658

•2 years ago

32 Replies

Intense groin pain

Thank you everyone for your comments. My surgery confirm OA and general wear and tear of hip and yes I understand about referred pain in the groin but I have...

Thank you everyone for your comments. My surgery confirm OA and general wear a...

Oboes22

•2 years ago

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Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2023

Great News and a question

kenzara

Help - I've mistakenly doubled my lunchtime dose!

Vision Issues

Any tips/guidance on taking pred when you can't hold anything down?

PMR polymyalgia rheumatica

PMRGCAuk Facebook Post

facial flashing

numbness

Reduction of Prednisolone and Anxiety

Opinions needed ref Aledronic Acid

Fosamax (Alendronate) Question

Prednisone Tapering questions

Migraine on tapering

Frequently asked questions - FAQs

Increase in fatigue as reducing?

Sapphire Clinics medical cannabis

PMR and CLL

Steroid Withdrawal at lower levels of Prednisone

Medication change prior to surgery?

acupuncture ?

pain returned at low dose of pred - what to do as I go on holiday on Sunday ?

Sore muscles and tendons

Biological next step

Taper Discomfort

rheumatologist locum visit for prednisone refill

Rheumatologist

Tapering query

Covid/PMR Questions

Intense groin pain

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