Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,086 members • 39,888 posts

All posts for December 2022

Just a thank you

I continue to be amazed at the knowledge I have learned from some of you (PMRpro, DorsetLady, Kendrew, SheffieldJane, just to name a few.) I have learned so...

I continue to be amazed at the knowledge I have learned from some of you (PMRpro...

nallufl24

•2 years ago

9 Replies

https://www.bbc.co.uk/news/uk-64074088

Forty minutes ago on BBC People have been urged to avoid mixing with vulnerable relatives if they feel unwell this Christmas. BBC News - Flu and Covid:

Forty minutes ago on BBC People have been urged to avoid mixing with vulnerable ...

Bcol

•2 years ago

43 Replies

PMR/GCA Weight Loss

Morning everyone, I'd like to wish you all a very Merry Christmas and Happy, Healthy New Year. Question: Has anyone gained weight once they first started on...

Morning everyone, I'd like to wish you all a very Merry Christmas and Happy, Hea...

Hidden

•2 years ago

13 Replies

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Belated thanks and antiviral question

Thanks so much for the kind informative and supportive replies to my recent post. Apologies that I didn’t get to reply personally to all but life got a bit...

Thanks so much for the kind informative and supportive replies to my recent post...

Grannyasbo

•2 years ago

4 Replies

PMR & Costochondritis

Can these conditions be related.

HamishPMR

•2 years ago

12 Replies

thank you…

thanks to everyone who commented on my post , it’s good to be able to chat to people in similar situations 👍🏻 I will give the Famotidine a try and see how...

thanks to everyone who commented on my post , it’s good to be able to chat to pe...

KC6755

•2 years ago

Be the first to reply

fuzzy head

does anyone else get a fuzzy head about an hour after taking prednisolone. This can last fro a couple of hours to all day, and is something I have suffered...

does anyone else get a fuzzy head about an hour after taking prednisolone. This ...

Meggs01

•2 years ago

17 Replies

Back up to 5mg pred

Hi, been on 1 mg for over a year and was then told to finish taking them . Seemed okay for a couple of months but due to a flair GP put me back up to 5mg....

Hi, been on 1 mg for over a year and was then told to finish taking them . Seeme...

KCRoyals

•2 years ago

19 Replies

Will covid spoil Christmas or am I not at high risk anymore?

We were expecting OH's parents, niece and nephew for Christmas, but the niece has just tested positive for Covid having felt unwell for a few days. When I was...

We were expecting OH's parents, niece and nephew for Christmas, but the niece ha...

Broseley

•2 years ago

109 Replies

Follow-up from ~"What Now? post

Result of Rheumy Consultation I thought you might like to know the outcome of my consultation with a Rheumy yesterday. Following the sound advice you offered...

Result of Rheumy Consultation I thought you might like to know the outcome of m...

pamela4215

•2 years ago

3 Replies

steroid induced thin skin treatment

mums skin is now quite fragile and thin. Are there particular moisturisers people have found helpful? District Nurse commented on it this am. She drinks...

mums skin is now quite fragile and thin. Are there particular moisturisers peopl...

RT18

•2 years ago

8 Replies

Blood tests

Are you surpose to have blood tests every now and again? Because I haven't had any since first starting this journey in August . I have started tapering from...

Are you surpose to have blood tests every now and again? Because I haven't had a...

Caulkhead63

•2 years ago

41 Replies

Health concern

I have been on steroids for 3.5 months and so far have been asymptomaticHowever over the last week have experienced a dull ache over my temporal region and...

I have been on steroids for 3.5 months and so far have been asymptomaticHowever ...

Healthworker

•2 years ago

17 Replies

Pred and sudden low blood pressure

Hi, The last two separate occasions that I’ve taken Pred, 20mg and 15mg, my blood pressure has become much lower than usual and my heart feels like it’s...

Hi, The last two separate occasions that I’ve taken Pred, 20mg and 15mg, my bl...

Bramble2000

•2 years ago

6 Replies

The result - PMR!

after all this faffing around, the pet/Ct scan shows PMR, no evidence of GCA. Starting on 15mg Pred for a week, then 12.5mg for a month, then 10, 9, 8 etc...

after all this faffing around, the pet/Ct scan shows PMR, no evidence of GCA. S...

Bramble2000

•2 years ago

13 Replies

Hot Air Balloon ride

I'm in Namibia, visiting family. We're going for a hot air balloon ride after New Year. I brought 5mg Pred with me, that's what I'm on just now, not planning...

I'm in Namibia, visiting family. We're going for a hot air balloon ride after N...

ChrisinNam

•2 years ago

3 Replies

Update Belated telephone call

GPrang to say my markers are low. My potassium is low most prob due to Steroids. We need to get you off Pred ASAP. You have been on them a long time . Am...

GPrang to say my markers are low. My potassium is low most prob due to Steroids...

Suffererc

•2 years ago

24 Replies

Reducing advice from high steroids following GCA scare please

I had my scan yesterday so awaiting results. GP also rang a couple of days ago to say that my bloods from last week have come back much better. ESR had dropped...

I had my scan yesterday so awaiting results. GP also rang a couple of days ago t...

Jlml

•2 years ago

3 Replies

shingles

hello, I am currently on 4mg of pred. and have adrenal insufficiency. Just been diagnosed with shingles. Any help, advice, increasing steroids etc , anything...

hello, I am currently on 4mg of pred. and have adrenal insufficiency. Just been ...

Crochetgardener

•2 years ago

14 Replies

chicken pox and PMR

My grandson has chicken pos symptoms appeared last Sunday. He and his parents are coming to stay with me on the 28th Dec. For two days (one weeks time) at...

My grandson has chicken pos symptoms appeared last Sunday. He and his parents ar...

Fetlar73

•2 years ago

9 Replies

extra pred

hi - haven’t been on for a while. Been coping in two pred per day. Had covid in oct - no problem at all! Then sixth jab recently. Have got a terrible bug (not...

hi - haven’t been on for a while. Been coping in two pred per day. Had covid in...

Pongo13

•2 years ago

3 Replies

Has anyone got any experience in coming off Tocilizumab to start on Methotrexate?

I have been on Tocilizumab since August 2021 but the funding for this is being withdrawn. I have been off steroids now for over 2 months so without the Toci I...

I have been on Tocilizumab since August 2021 but the funding for this is being w...

sequeluk

•2 years ago

19 Replies

Has anyone heard this before?

Good morning everyone, I did post previously when I worked for an arthritis charity which is when is was diagnosed with PMR. I was about 51.All the classic...

Good morning everyone, I did post previously when I worked for an arthritis char...

annieg1890

•2 years ago

10 Replies

Claudication and blood pressure medication

It's very likely I have claudication. I've always been active and a bit of a walker (about 40 mins each day) but since September my calf muscles have been...

It's very likely I have claudication. I've always been active and a bit of a w...

Pr0jection

•2 years ago

6 Replies

… Omeprazole problems

Hello . Wondering if you had any advice on Omeprazole and taking an alternative as it has given me untold gastric issues . GP has now prescribed Famotidine...

Hello . Wondering if you had any advice on Omeprazole and taking an alternative ...

KC6755

•2 years ago

16 Replies

Is your daily Omeprazole really necessary?

After a bumpy 4 year journey I have reached 5mg Prednisalone daily for pmr. I'm in the UK and although the NHS Medical Centre take good care of me, I seem to...

After a bumpy 4 year journey I have reached 5mg Prednisalone daily for pmr. I'm ...

Purple-Owl

•2 years ago

17 Replies

Taking statins while on Pred.

About a week or so ago I reported more aches and stiffness than usual and was putting it down to coming down too quickly off Pred, and a doctor's view that I...

About a week or so ago I reported more aches and stiffness than usual and was pu...

Stargiver

•2 years ago

14 Replies

Covid and Pred

Tested positive for covid; should I maintain or increase pred?

salparadise127

•2 years ago

3 Replies

Thank you!

I just want to thank everyone who participates on this forum. I am more of a “silent participant” but read the concerns and replies regularly, and am very...

I just want to thank everyone who participates on this forum. I am more of a “si...

Strelitzia

•2 years ago

4 Replies

Welcome Christmas gift

I've just received an email from Movement for Good saying that "PMRGCAuk has been awarded £1,000 thanks to your support." Well, not just my support of course,...

I've just received an email from Movement for Good saying that "PMRGCAuk has bee...

Marijo1951

•2 years ago

2 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for December 2022

Just a thank you

https://www.bbc.co.uk/news/uk-64074088

PMR/GCA Weight Loss

Belated thanks and antiviral question

PMR & Costochondritis

thank you…

fuzzy head

Back up to 5mg pred

Will covid spoil Christmas or am I not at high risk anymore?

Follow-up from ~"What Now? post

steroid induced thin skin treatment

Blood tests

Health concern

Pred and sudden low blood pressure

The result - PMR!

Hot Air Balloon ride

Update Belated telephone call

Reducing advice from high steroids following GCA scare please

shingles

chicken pox and PMR

extra pred

Has anyone got any experience in coming off Tocilizumab to start on Methotrexate?

Has anyone heard this before?

Claudication and blood pressure medication

… Omeprazole problems

Is your daily Omeprazole really necessary?

Taking statins while on Pred.

Covid and Pred

Thank you!

Welcome Christmas gift

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