fuzzy head

[Meggs01]

does anyone else get a fuzzy head about an hour after taking prednisolone. This can last fro a couple of hours to all day, and is something I have suffered with since my diagnosis in March. I can have periods of having no problems and then it will start again. I am currently on 8 mg and my GP says it should improve the lower I get.

[PMRpro Ambassador]

I know of a few people who have a reaction to the pred as it gets into the system - mostly the wobbles! Some of them solved it by taking the pred before bed and sleeping trough it

[Meggs01 in reply to PMRpro]

I had wondered about that. I’m not dizzy or lightheaded, it is more like the feeling you get when you have one glass too many, more a spaced out feeling 🤣

[PMRpro Ambassador in reply to Meggs01]

I suppose that would describe my reaction - just it was that feeling in your legs when you've had a glass too many!

[Ps99s in reply to PMRpro]

this is my feeling too , wobbles

[Charlie1boy]

I think that’s par for the course with pmr! All the time I was taking prednisolone for pmr, I would get days like you describe. Gradually it got less and less, but, even now, when I’ve been off pred for nearly three months, I can still get days when I feel woozy.

[SnazzyD]

I felt pretty squiffy after my Pred dose, a bit like being drunk without the nice bit. It came on 1-2 hours after taking it for a couple of hours. It got better as the dose went down. Under 10mg it was much improved but I could still tell.

[Janstr]

I had this when on 40mg, sometimes having to hold onto the wall to keep my balance.

[2013mayo]

hi,

I don’t feel dizzy but I do feel very nauseas, it last for about an hour, terrible feeling, maybe thou could take them in bed and wait a while before getting up.

Take care

[Karenjaninaz in reply to 2013mayo]

Nausea can be from stomach irritation from pred.

[Wallysma]

Hi Meggs01. I have this issue a lot....actually this morning particularly bad. I take my pred around 2 and tend to get up around 4:30...so the timing is about right. I have some level of it all day though. I always feel like I could faceplant at any moment. It is annoying. I also have the brain fog bad....waiting for the day when I go outside with my underwear on my head! I feel stupid...there's no other way to say it. Ahhh the joys of PMR and pred. Good luck....hang tight on to those walls! I hope you continue to heal. Be well.

[Meggs01 in reply to Wallysma]

I’m so glad it’s not just me, but sorry you are also suffering. Can I ask what dose you are on?

[Mewy]

Meggs01Yes I have the same experience! I am on 15 mg Pred and this happens almost every day for a few hours. My NP said the same thing as your GP.

I will start tapering on 28 Dec. after 2 months on my current dose. I am hoping as I taper the light headedness and the trembling will diminish. Funny thing is when I had my first bout with PMR years ago the Pred didn't cause me to react this way. I guess every time is a new journey. I am just thankful that I am free from pain and stiffness.

Mewy

[montebello]

Oh yes! I'm currently on 50 mg for GCA, and walk around like a zombie. Hard to describe. Not drunk, not dizzy, just out of it.

[Merryfield]

you are not alone in fuzzy land. the pred plus 5mg of zolpidem a night does it to me.

[Hidden]

Hello Meggs,I've had a fuzzy head most of the time since my diagnosis in June 2021. It's good to compare notes as you don't feel that you are the only one with these symptoms.

I'm also on 8mg, but get pressure around my head if I go lower. I've had an ultrasound, but they couldn't find any GCA and think the head pressure comes from my neck, which means another scan 👀.

Anyway, Happy Christmas and a much better New Year to you and also to all the people in the forum who have been so helpful over my year and a half of polymyalgia. 🍾🍾 ⛄

[Meggs01 in reply to Hidden]

thank you bluepuddy, we seem to have very similar symptoms, and I too suffer with my neck which radiates up into my head. I have just had an X-ray to rule out cervical spondylosis but it just showed wear and tear much to my relief!

I will be trying to reduce to 8 1/2 mg in the New Year so fingers crossed 🤞

[Hidden]

Hello,

Some years ago I was diagnosed with stenosis and osteoarthritis in the lower back. I have some brilliant stretching exercises from the physio that I try to do every day and these stop me from getting backache and curvature of the spine. I’m glad that you haven’t got cervical spondylitis.

Good luck with your steroid reduction, and it’s sensible to wait until the New Year, so that you can enjoy the festivities on your usual dose. That’s what I’m doing 😀.

Have a very Happy Christmas, eat, drink and be merry 🎂🥂.