I continue to be amazed at the knowledge I have learned from some of you (PMRpro, DorsetLady, Kendrew, SheffieldJane, just to name a few.) I have learned so much about a disease I never heard of before. I’m only sorry I didn’t find you til I was 3 months in to GCA. I followed my doctors orders exactly and relapsed at 10 mg. I think that might have not happened if I knew about you. I was so happy reducing prednisone so quickly until it all came crashing down.
I’m angry at all these doctors who seem to know so little. I realize they are only human and can’t be all knowing but at times I suffered needlessly because of their ignorance. I was tired of rheumatologist telling me many of my side effects were not from prednisone, GCA or Actemra only to find out on here that many others suffered the same things.
Anyway, I have learned so much and still have a long way ahead.
Merry Christmas to all of you!