Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,086 members • 39,890 posts

All posts for August 2022

pains

I have been off prednisolone since march. Hooray. but I am in agony,yes agony withmy groin knees and mostly left left leg down the side which seems to have...

I have been off prednisolone since march. Hooray. but I am in agony,yes agony ...

Hidden

•2 years ago

15 Replies

Between a rock and a hard place

Good morning, My GP sent me to a endocrinologist due to adrenal insufficiency which was diagnosed after a fasting blood test. I have a lot of hip and leg pain...

Good morning, My GP sent me to a endocrinologist due to adrenal insufficiency wh...

Crochetgardener

•2 years ago

13 Replies

A couple of GCA questions

Hello! A couple of GCA question: Has anyone with GCA, and reducing Pred, experienced double vision again without a sore jaw and scalp? And was this...

Hello! A couple of GCA question: Has anyone with GCA, and reducing Pred, expe...

PuttyPenguin

•2 years ago

10 Replies

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Suspected flare and following my instincts

I've been on prednisone and methotrexate for GCA and PMR since January 2019. Mostly the tapering has gone smoothly apart from early this year when I had a lot...

I've been on prednisone and methotrexate for GCA and PMR since January 2019. Mos...

bright-horizon

•2 years ago

12 Replies

Pain before Tapering

Hi Now tapering down on second week at 12.5 was on 15 for 3 weeks majority of pain disappeared at 15 though still had pain in lower back buttock and leg...

Hi Now tapering down on second week at 12.5 was on 15 for 3 weeks majority o...

rachelbell

•2 years ago

27 Replies

Is this a flare

Hi all thought I’d update you on my post is this a flare!!!! As no painkillers helped just wondered if I was having a flare but thank goodness no I’m not....

Hi all thought I’d update you on my post is this a flare!!!! As no painkillers ...

Reddev

•2 years ago

3 Replies

Operation booked

We’ll my husband has finally been given a date to have a vp shunt fitted on the 30th August. He has been waiting ages for this but obviously due to the nature...

We’ll my husband has finally been given a date to have a vp shunt fitted on the ...

Suet3942

•2 years ago

23 Replies

You are not an island - the importance of having support, and giving it

I got these links sent to me today. Normally with such things I glance at the title and say yeah I'll come back and read this sometime, and then it stays in...

I got these links sent to me today. Normally with such things I glance at the t...

tangocharlie

•2 years ago

7 Replies

so what is better???

I have lesrned so much.in the few days I have been here. I was diagnosed in May after weeks of severe pain and confusion..."what the hell is this? " because...

I have lesrned so much.in the few days I have been here. I was diagnosed in M...

Wallysma

•2 years ago

13 Replies

Slowly getting a bigger belly even though dropped to 2 mg

I am now on 2 mg. but I am sunrised That I am slowly putting on more around my stomach bum etc. And moods are not getting any better. I thought I would...

I am now on 2 mg. but I am sunrised That I am slowly putting on more around m...

zoey12

•2 years ago

68 Replies

Tapering Detail

I have a question regarding tapering. I was diagnosed with PMR quickly by my GP in June 2022. I am 69 years old and have been taking it very easy. The...

I have a question regarding tapering. I was diagnosed with PMR quickly by my GP ...

LabradorH

•2 years ago

36 Replies

Flaring

Hi everyone I wonder if anyone can help me. I have learned so much from this forum and absolutely nothing from my rheumatologist I have had PMR for 12...

Hi everyone I wonder if anyone can help me. I have learned so much from this...

Storm-boy

•2 years ago

23 Replies

Can Blindness be caused by using Aldara (Imiquimod) with GCA?

My dermatologist is once again pushing Aldara (in the US, it's called Imiquimod) to help control my pre-cancerous skin "spots" (Actinic Keratosis) on my head....

My dermatologist is once again pushing Aldara (in the US, it's called Imiquimod)...

LIVEORDIEHEREIAM

•2 years ago

4 Replies

Well I'll be damned!

Well, as a follow up to my post 3 weeks ago, I had my Rheumy appt. this morning. She spent ages with me. I told her all my woes, and she thoroughly...

Well, as a follow up to my post 3 weeks ago, I had my Rheumy appt. this mornin...

Groovykindoflove1992

•2 years ago

67 Replies

Right hip pain

So as I've written here before what I thought was perhaps a stress fracture in my right hip I have since learned through an MRI that it is not. I have...

So as I've written here before what I thought was perhaps a stress fracture in...

Amkoffee

•2 years ago

24 Replies

water tablets

I’ve recently had a hospital appointment of a pre-op for left knee replacement. Amongst the many issues I have with complying with all the requirements for...

I’ve recently had a hospital appointment of a pre-op for left knee replacement....

Esradral

•2 years ago

27 Replies

Down to 1mg

So if I am down to one mg does that mean my adrenal glands are working? I have been tired but I would not say it is fatigue! My head had felt like it is in a...

So if I am down to one mg does that mean my adrenal glands are working? I have ...

nallen11

•2 years ago

5 Replies

The antivirals run around

I tested positive for Covid on July 23rd and 3 days later started an antiviral course without which I must admit I might have ended up in hospital. A clinician...

I tested positive for Covid on July 23rd and 3 days later started an antiviral c...

AnniesRyder5

•2 years ago

15 Replies

AdCal supplement

I’m on 4mg Prednisolone daily. Is it safe to stop taking AdCal supplements?

HCOYS

•2 years ago

14 Replies

tooth extraction advice please

hi. Am sitting in dentist chair just been told I need to have a tooth extracted. Yikes. Am on 7mg a day and was about to do slow slow dead stop reduction to...

hi. Am sitting in dentist chair just been told I need to have a tooth extracted....

Grannyasbo

•2 years ago

11 Replies

A thank you for replying.

I am going to do one big thank you for all your help in is this a flare. I’m in hispital in agony so making it easier for me. Thank you all.

I am going to do one big thank you for all your help in is this a flare. I’m in ...

Reddev

•2 years ago

6 Replies

blood test results

Hi PMR people! This site is an amazing source of info - thank you! This is my first post and I’d appreciate your thoughts. I’ve just had a blood test before I...

Hi PMR people! This site is an amazing source of info - thank you! This is my fi...

Rebsy

•2 years ago

9 Replies

Weak legs - update

thanks to those who replied yesterday. I said I would post following my GP appointment. I saw a GP who was surprisingly knowledgeable about PMR. She listened...

thanks to those who replied yesterday. I said I would post following my GP appoi...

Janet57

•2 years ago

14 Replies

in A& E now not holding my breath ☹️

ambiance man says o you haven’t got that 🤷‍♂️😱l said o your an heart specialist

ambiance man says o you haven’t got that 🤷‍♂️😱l said o your an heart specia...

Ronzy

•2 years ago

21 Replies

hurting feet

Hi I have read that PMR does not affect your feet. But aching/painful soles of both my feet are driving me mad, alto my big toe.not when I'm walking but...

Hi I have read that PMR does not affect your feet. But aching/painful soles ...

Purplecheeks

•2 years ago

23 Replies

jaw ache,just tapered.

l have recently tapered form .65 to m6g pred and thought l was doing ok on 6.5 with minor niggles,so minor l can't describe them but l felt good enough to...

l have recently tapered form .65 to m6g pred and thought l was doing ok on 6.5 ...

Elbowpiece

•2 years ago

8 Replies

is it a flare?

severe back pain on Wednesday. Started on codeine. Not working Friday started on tramadol plus bloods taken. ESR 35 CRP 8 white blood count raised. Is it a...

severe back pain on Wednesday. Started on codeine. Not working Friday started on...

Reddev

•2 years ago

13 Replies

inflammation markers

Does anyone know? Generally How far behind real time can/do inflammation markers lag? Is it the same for ESR and CRP results? thankyoy

Does anyone know? Generally How far behind real time can/do inflammation marker...

Albyn32

•2 years ago

3 Replies

Are there any advise in treatment of ruptured tendons in the shoulder

More than a week ago I strained my left shoulder. It hurt off and on through the weeks. Yesterday I was helping cut up a melon and I heard and felt a very...

More than a week ago I strained my left shoulder. It hurt off and on through the...

singingloud

•2 years ago

14 Replies

How long will I be ‘stuck’

I know, I know - how long is a piece of string!! I have been trying to reduce down from 7mg since April and my body just doesn’t want to know. After a week...

I know, I know - how long is a piece of string!! I have been trying to reduce ...

jaycee444

•2 years ago

22 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2022

pains

Between a rock and a hard place

A couple of GCA questions

Suspected flare and following my instincts

Pain before Tapering

Is this a flare

Operation booked

You are not an island - the importance of having support, and giving it

so what is better???

Slowly getting a bigger belly even though dropped to 2 mg

Tapering Detail

Flaring

Can Blindness be caused by using Aldara (Imiquimod) with GCA?

Well I'll be damned!

Right hip pain

water tablets

Down to 1mg

The antivirals run around

AdCal supplement

tooth extraction advice please

A thank you for replying.

blood test results

Weak legs - update

in A& E now not holding my breath ☹️

hurting feet

jaw ache,just tapered.

is it a flare?

inflammation markers

Are there any advise in treatment of ruptured tendons in the shoulder

How long will I be ‘stuck’

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

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Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2022

﻿pains

Between a rock and a hard place

A couple of GCA questions

Suspected flare and following my instincts

﻿Pain before Tapering

Is this a flare

Operation booked

You are not an island - the importance of having support, and giving it

﻿so what is better???

Slowly getting a bigger belly even though dropped to 2 mg

Tapering Detail

Flaring

Can Blindness be caused by using Aldara (Imiquimod) with GCA?

﻿Well I'll be damned!

﻿Right hip pain

water tablets

Down to 1mg

The antivirals run around

AdCal supplement

tooth extraction advice please

A thank you for replying.

blood test results

Weak legs - update

in A& E now not holding my breath ☹️

﻿hurting feet

﻿jaw ache,just tapered.

is it a flare?

inflammation markers

Are there any advise in treatment of ruptured tendons in the shoulder

How long will I be ‘stuck’

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

pains

Pain before Tapering

so what is better???

Well I'll be damned!

Right hip pain

hurting feet

jaw ache,just tapered.