Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,086 members • 39,890 posts

All posts for August 2022

My Movies62

I live in Australia. I am 81 yrs old. I was diagnosed PMR end of February, 2022. Started 15 mg Prednisone beginning of March. Increased on 27/7/22 to 20 mg. I...

I live in Australia. I am 81 yrs old. I was diagnosed PMR end of February, 2022....

62movies

•2 years ago

3 Replies

low heart rate and prednisone

Good morning, has anyone experienced low heart rate while on prednisone? About two weeks ago I ended up I the hospital where I received a IV drip of 500 mg of...

Good morning, has anyone experienced low heart rate while on prednisone? About t...

Plains

•2 years ago

8 Replies

wobbly and weak legs?

I was first diagnosed with PMR in 2013, so it’s been a long, but not bad journey. I did reduce my Prednisolone to 3mg but it’s currently at 5mg. In the last...

I was first diagnosed with PMR in 2013, so it’s been a long, but not bad journey...

Janet57

•2 years ago

12 Replies

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New to pmr, advice please

When I was first diagnosed with pmr, I was put on 15mg pred, I felt better so I tried to taper down to 10mg ….big mistake! The pmr came back with a vengeance...

When I was first diagnosed with pmr, I was put on 15mg pred, I felt better so I ...

Sueloobyloo

•2 years ago

17 Replies

Can Eliquis cause a flair of PMR

Eliquis was prescribed because of my AFIB and being 76 years old. I am active and not overweight, walk three miles most days, never had a heart attack or...

Eliquis was prescribed because of my AFIB and being 76 years old. I am activ...

Predniso141

•2 years ago

1 Reply

A very important question

how do I know when dose is too low as I feel mine is now but we’re all desperate To get down. At the moment on this dose Terrible simtoms come back by 8 pm...

how do I know when dose is too low as I feel mine is now but we’re all desperate...

Ronzy

•2 years ago

18 Replies

Anyone with Aortitis have mid-back pain?

Hi, I am a newbie here. I have been diagnosed with extracranial GCA because a PET scan showed FDG uptake along the aorta "concerning for aortitis". I have no...

Hi, I am a newbie here. I have been diagnosed with extracranial GCA because a ...

BillyScreamingGoat

•2 years ago

15 Replies

Need to check in with you all

I know I only seem to appear when I need your help but I do lurk in the early hours as well. As I mentioned before but don't expect you to remember, I have two...

I know I only seem to appear when I need your help but I do lurk in the early ho...

DogAgilityObsessed

•2 years ago

9 Replies

a mug shot before Medication

much better now 🤷🏽‍♂️

Ronzy

•2 years ago

5 Replies

Practical Travel Matters

Has anyone any advice about travel when taking prednisolone ? Is it sufficient just to take a prescription list in case it is needed for production at...

Has anyone any advice about travel when taking prednisolone ? Is it sufficient...

Nominem

•2 years ago

65 Replies

a bad mug shot brase your selve 😱

me this morning before medication

Ronzy

•2 years ago

13 Replies

symptoms in hot weather

I’m wondering whether there’s a link between extremely hot weather, and symptoms of PMR/pred side effects? I’m normally well and virtually symptom-free on 3mg...

I’m wondering whether there’s a link between extremely hot weather, and symptoms...

calibriel

•2 years ago

65 Replies

can eliquis cause PMR flair up

Eliquis and PMR

Predniso141

•2 years ago

5 Replies

yet another tapering query

I had to up pred from 2.5 to 4 mg 4 weeks ago. CRP and ESR back down to “ acceptable “ levels so can I go back to 2.5 mg or should I go through the slow...

I had to up pred from 2.5 to 4 mg 4 weeks ago. CRP and ESR back down to “ accept...

Bubble56

•2 years ago

7 Replies

Continuing with hydrocortisone after synacthen test or go back to pred? Dilemma 🙄

I’m not feeling great on hc & wondering if I can switch back to my 3.5mg pred as my appointment to speak to the endo is not for another month & the...

I’m not feeling great on hc & wondering if I can switch back to my 3.5mg pred as...

Pollyanna16

•2 years ago

13 Replies

Hand pain.

Hi been on pred for 5 years plus,got down to mg 3 a month ago but upped to 6 mg about a month ago due to increased pain in arms and hands plus general...

Hi been on pred for 5 years plus,got down to mg 3 a month ago but upped to ...

SRIXON

•2 years ago

27 Replies

Heavy limbs

I've been trying to explain to my v patient hubby how I feel . At the moment my limbs feel like lead, v heavy and walking is an effort . He suggested...

I've been trying to explain to my v patient hubby how I feel . At the moment my...

Jigsawlass

•2 years ago

28 Replies

Newswire

has anyone had their online copy of this please. Wondering if I have missed it. Thanks

has anyone had their online copy of this please. Wondering if I have missed it....

Koalajane

•2 years ago

10 Replies

CALCUIM AND VIT

Has anyone been onCalcuim and Vit D for a long time,

Harrywogan

•2 years ago

21 Replies

chicken pox

I would appreciate advice on chicken pox I had chicken pox as an adult when my children got it. I have also had a shingles vaccine. My grandson is just...

I would appreciate advice on chicken pox I had chicken pox as an adult when my...

Ana-16

•2 years ago

11 Replies

No Alendronic Acid!

So this month's prescription for Alendronic Acid hadn't been done very -unusual for our very efficient pharmacy. Pharmacist explained to me that there is...

So this month's prescription for Alendronic Acid hadn't been done very -unusu...

artisam

•2 years ago

31 Replies

Budesonide

Having been diagnosed with colitis my doctor has taken me off pred overnight and put me on budesonide. Have tapered pred down to 2mg. Does anyone know of any...

Having been diagnosed with colitis my doctor has taken me off pred overnight and...

Joanbill13

•2 years ago

19 Replies

Taper 5.5 to 5 with a little pain. Continue?

I am slow tapering 5.5 to 5 mg Pred. My question is about the aches I am feeling. Not too bad when I take tylenol. Maybe about 10% of what I was originally...

I am slow tapering 5.5 to 5 mg Pred. My question is about the aches I am feeling...

spacevoyager

•2 years ago

4 Replies

tablets.

hi.just want some advice my rheum,wants to put me me on two lots of different tablets,after I have got down til 1mg.they are methotrexate and Leflunomide.can...

hi.just want some advice my rheum,wants to put me me on two lots of different t...

Flosy

•2 years ago

12 Replies

Sleep Apnoea!

Some will remember that I have posted a few times about my trouble with sleeping, especially withdrawing from Amitriptyline when that wasn’t helping the sleep...

Some will remember that I have posted a few times about my trouble with sleeping...

suzy1959

•2 years ago

18 Replies

aches and pains on 3mg pred

I’ve been experiencing some bilateral aches and pains so had my crp checked. It’s normally 2 but is now 8 so I’ve upped my dose to 5mg which is where I felt...

I’ve been experiencing some bilateral aches and pains so had my crp checked. It’...

Rosina1871

•2 years ago

36 Replies

Hi does anyone else get a night time headache? i have had mri and nothing sinister has shown up .headache wake me up most nights.

night time headache

eyeBRing

•2 years ago

4 Replies

62 Movies

I just want to listen to others experiences with PMR, how they cope & how they live positively through it.

I just want to listen to others experiences with PMR, how they cope & how they l...

62movies

•2 years ago

4 Replies

from 8 mgs a day to 60mgs blast!

having tapered down to 8 mgs over the last 4 months I was thrown into a very painful flare… felt just like the beginning of PMR 2 1/2 years ago. After urgent...

having tapered down to 8 mgs over the last 4 months I was thrown into a very pai...

Janetknit

•2 years ago

34 Replies

PMR and vaccines

I have PMR which came on after my Pneumococcal vaccine : has anyone experienced this . my rheumatologist said it could be the cause or it was just...

I have PMR which came on after my Pneumococcal vaccine : has anyone experienced ...

Helag

•2 years ago

49 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2022

My Movies62

low heart rate and prednisone

wobbly and weak legs?

New to pmr, advice please

Can Eliquis cause a flair of PMR

A very important question

Anyone with Aortitis have mid-back pain?

Need to check in with you all

a mug shot before Medication

Practical Travel Matters

a bad mug shot brase your selve 😱

symptoms in hot weather

can eliquis cause PMR flair up

yet another tapering query

Continuing with hydrocortisone after synacthen test or go back to pred? Dilemma 🙄

Hand pain.

Heavy limbs

Newswire

CALCUIM AND VIT

chicken pox

No Alendronic Acid!

Budesonide

Taper 5.5 to 5 with a little pain. Continue?

tablets.

Sleep Apnoea!

aches and pains on 3mg pred

Hi does anyone else get a night time headache? i have had mri and nothing sinister has shown up .headache wake me up most nights.

62 Movies

from 8 mgs a day to 60mgs blast!

PMR and vaccines

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2022

My Movies62

low heart rate and prednisone

wobbly and weak legs?

New to pmr, advice please

Can Eliquis cause a flair of PMR

A very important question

Anyone with Aortitis have mid-back pain?

Need to check in with you all

a mug shot before Medication

﻿Practical Travel Matters

a bad mug shot brase your selve 😱

symptoms in hot weather

can eliquis cause PMR flair up

yet another tapering query

Continuing with hydrocortisone after synacthen test or go back to pred? Dilemma 🙄

﻿Hand pain.

﻿Heavy limbs

Newswire

﻿CALCUIM AND VIT

chicken pox

﻿No Alendronic Acid!

Budesonide

Taper 5.5 to 5 with a little pain. Continue?

﻿tablets.

Sleep Apnoea!

aches and pains on 3mg pred

Hi does anyone else get a night time headache? i have had mri and nothing sinister has shown up .headache wake me up most nights.

62 Movies

from 8 mgs a day to 60mgs blast!

PMR and vaccines

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Practical Travel Matters

Hand pain.

Heavy limbs

CALCUIM AND VIT

No Alendronic Acid!

tablets.