Operation booked

[Suet3942]

We’ll my husband has finally been given a date to have a vp shunt fitted on the 30th August. He has been waiting ages for this but obviously due to the nature of the op we are both very nervous. He is extremely wobbly now and it has been life changing so hopefully it all goes well and he will be more mobile and not do foggy brained.

shall I carry on do a reduction from 5 to 4.5 and see how I feel it stay on 5 till the op is gone? Decisions decisions!

[DorsetLady PMRGCAuk volunteer]

Stay on 5mg -you’ll be stressed enough without trying to deal with tapering..,and maybe give yourself time afterwards as well.

Fingers crossed for hubby….hope for successful outcome.

[piglette]

I am so glad he has got a date. It is a very safe form of surgery and he should be able to get back to his old self. Good luck.

[Suet3942 in reply to piglette]

Thanks Piglette When it involves the brain it’s so scary

[piglette in reply to Suet3942]

I agree, but I am sure everything will go well.

[PMRpro Ambassador]

I wouldn't be reducing - in fact I'd not rule out adding a bit!!!! The stress associated with spouses being ill can be overwhelming.

All the very very best - not too long now xxxx

[Suet3942 in reply to PMRpro]

Thank you PMRP X

[SheffieldJane]

Wishing you both all the blessings for a very positive outcome. Lots of love Sue, be brave. ❤️🙏

[Suet3942 in reply to SheffieldJane]

Thanks Jane. Hope ur ok x

[Koalajane]

No, don’t reduce. You will be worrying and as you know steppes and PMR don’t go well together!Hope he feels a lot better and please keep us informed

[Suet3942]

Thank you

[MrsNails]

Hi Sue - at last 🙏🏼 Wishing him all the very best & big hugs for you. Also No Reduction for you at this time - you need to be on the best form you can to support & look after your DH

Positive Thoughts

Angela xx

[Suet3942 in reply to MrsNails]

Thanks Angela. It’s so nice to have support and good wishes from all the lovely people on this site.

[Bcol]

Morning Sue, always good to get and see good news here. I think everyone else has already said everything, but best wishes and hugs to you both.

[Suet3942 in reply to Bcol]

🙏

[Jackoh]

Good news! A stressful time though for you both so no I wouldn’t reduce. You need to be strong at this time to help and support. Will pray all will go well. It’s so understandable that you are both nervous but try to relax as that will help you too- this is a massive thing for you two but a normal procedure for them. All the very best xx💐

[Suet3942 in reply to Jackoh]

Wise words. Thank you

[Telian]

Well good to hear it’s all happening and do hope the op goes well. 💕

I wouldn’t continue reducing until much after the operation either. In fact you might need a little extra. Best wishes to you both. 🌺

[Suet3942 in reply to Telian]

Thank you x

[whitefishbay]

Best of luck. ☘️

[Lonsdalelass]

Hope all goes well for your hubby, and hope you don't get too stressed with it all.

[Suet3942 in reply to Lonsdalelass]

Thank you do much

[Gussy-1947]

Good luck both of you. My mother had a VP shunt when she was 84 years old. She had an amazing recovery, getting back the past ten years of her life. Her local GP (we live in Australia) passed off her symptoms (wet, whacky & wobbly) as dementia and old age. Our family were not happy with that diagnosis and pushed for more tests.

You were very lucky to have NPH discovered, it is usually missed by most doctors.

[Suet3942 in reply to Gussy-1947]

Thank you so much that has made a huge difference to my mood. They only found it because he’d had a scan for an ear problem x