Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for July 2022

Stomach muscles

Thanks to everyone for your replies much appreciated.

zoey12

•2 years ago

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Best and worst places for GP services in England

Thought this article may be of interest. Things seem a lot better than a lot of us are saying!...

Thought this article may be of interest. Things seem a lot better than a lot of ...

piglette

•2 years ago

21 Replies

Gets beyond believe how bad.

We are like the forgotten ************* .. lots of information on net yet doctors even Rummikubs seem to know nowt or don’t care 🤷🏽‍♂️ Talk to people they...

We are like the forgotten ************* .. lots of information on net yet doct...

Ronzy

•2 years ago

14 Replies

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Synacthen test same as ACTH???

Can anyone tell me whether a Synacthen test is the same as an ACTH? Just had a conversation with Spire Hospitals and they said they were not the same....

Can anyone tell me whether a Synacthen test is the same as an ACTH? Just had a ...

LBM1953

•2 years ago

17 Replies

Dizzy

Any ideas? Feeling very dizzy and bleary eyed and have a birthday celebration dinner for daughter this evening. Am tapering.. 9 mg one day and 9.5 the next ....

Any ideas? Feeling very dizzy and bleary eyed and have a birthday celebration di...

Bedwell

•2 years ago

47 Replies

Actemra Advice and Help!

I’m in need of advice now from anyone who has experienced taking Actemra with GCA. I was diagnosed clinically on symptoms 5 years ago. temporal biopsy was...

I’m in need of advice now from anyone who has experienced taking Actemra with GC...

Pamk1949

•2 years ago

16 Replies

What about PMR and persistent hip pain, sciatica?

I have had PMR for 3 years. My late husband fell Ill 2 years ago, whereupon I had to stop being cared for and start being the carer . Immediately developed...

I have had PMR for 3 years. My late husband fell Ill 2 years ago, whereupon I h...

Abbeynan82

•2 years ago

28 Replies

Second Dexa scan

Hi All. My GP referred me for an urgent Dexa scan last June but when I chased it down was told it would be a year at least, so went private. Results all OK....

Hi All. My GP referred me for an urgent Dexa scan last June but when I chased i...

LBM1953

•2 years ago

3 Replies

Inflammation levels raised again

I thought I was doing so well managing to slowly slowly reduce the prednisolone right down to 1mg. I really thought I might beat this disease into remission...

I thought I was doing so well managing to slowly slowly reduce the prednisolone ...

Seekingasolution

•2 years ago

23 Replies

Update on my covid status

After taking pros advice I changed the testing kit and showed absolutely positive. At least I know I wasn’t imagining myself to have it. Thanks for all...

After taking pros advice I changed the testing kit and showed absolutely positiv...

keeptalking

•2 years ago

62 Replies

Post vaccine neuralgic amyotrophy

Has anyone experienced this or have any knowledge of this condition? Further to the 4th Pfizer vaccine in early March, within hours of receiving the jab, both...

Has anyone experienced this or have any knowledge of this condition? Further to...

Horsewhisper

•2 years ago

17 Replies

Covid Antibody test

Hi all 1 year ago I did a Covid Antibody test for BIOBANK abingdonhealth.com/products... Result clear negative. Today I did another Covid 19 Antibody test for...

Hi all 1 year ago I did a Covid Antibody test for BIOBANK abingdonhealth.com/pro...

cool4bob

•2 years ago

1 Reply

GCA relapse saga

Having been diagnosed with GCA in April 2021 I have followed the recommended reduction in prednisolone from 60mg to 4mg when I noticed the return of head and...

Having been diagnosed with GCA in April 2021 I have followed the recommended red...

Avon14

•2 years ago

66 Replies

Rheumatologists!!

Went to see the Rheumy yesterday. At one point, I said to her, "How come you're doing this job when you're only 15?" They seem to get younger all the time....

Went to see the Rheumy yesterday. At one point, I said to her, "How come you're...

ChrisinNam

•2 years ago

3 Replies

Suffering from Covid with adrenal insufficiency

Tested positive last Friday but I knew I had it prior to the LFT confirmation. On Saturday I was on the phone for 45mins being triaged for antivirals. I was...

Tested positive last Friday but I knew I had it prior to the LFT confirmation. O...

Exflex

•2 years ago

18 Replies

Question on Flairs?

Hi Folks, Thanks for all the great information that you share. I read it every day and find it invaluable and encouraging. On a personal note, I’d like to...

Hi Folks, Thanks for all the great information that you share. I read it every d...

MikeVanBC

•2 years ago

22 Replies

Fatigue symptoms?

Advice please from this wonderful community.... I've been on pred for a couple of years now, reduction of steroids was smooth, I had a few achey days then...

Advice please from this wonderful community.... I've been on pred for a couple o...

Ann1A

•2 years ago

47 Replies

Sunshine

I had appointments with my rheumatologist it been confirmed that I got Covid-19 in March it affected my Immune system and it caused PMR now on steroids I...

I had appointments with my rheumatologist it been confirmed that I got Covid-19 ...

Bowred

•2 years ago

56 Replies

Back on pred 6 months after coming off actemera

Well all was well and then the wheels fell off . Consultant basically said I was finished with vasculitis, even discharged me !! Hopefully this is just a blip...

Well all was well and then the wheels fell off . Consultant basically said I was...

Devoid

•2 years ago

29 Replies

Panic attack

Has anyone had a sort of panic attack when reducing? Went from 9.5 alternating with 9. For two weeks.. thought I’d try just 9 for a few weeks now. But woke up...

Has anyone had a sort of panic attack when reducing? Went from 9.5 alternating w...

Bedwell

•2 years ago

109 Replies

Shooting here in Copenhagen :(

Well I really needed my cortisone today. Devastated by the shooting episode here in Copenhagen near to my daughters home, and my grown children knowing the ill...

Well I really needed my cortisone today. Devastated by the shooting episode here...

krillemy

•2 years ago

11 Replies

4th July - May your PMR and or GCA fly away.

https://www.jibjab.com/view/make/in-the-summertime-mungo-jerry-independence-day-starring-you-ecard/a454c1aa-b352-4f3f-9712-14bf75e5f4ff?utm_source=cordial&utm_m

https://www.jibjab.com/view/make/in-the-summertime-mungo-jerry-independence-day-...

jinasc

•2 years ago

5 Replies

Adrenals?

Hello everyone, well I was diagnosed in January this year, started on 15mg of Prednisolone and have slowly tapered to 6mg. My journey has been a bit bumpy but...

Hello everyone, well I was diagnosed in January this year, started on 15mg of Pr...

Millymolly64

•2 years ago

10 Replies

Prednisone zone fog or GCA

For several months I have been reducing my prednisone by 1/2 of a mg. I am down to 4mg. 3 mg in the morning and one mg around 6pm. My head feel tight all over....

For several months I have been reducing my prednisone by 1/2 of a mg. I am down ...

Plains

•2 years ago

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PMR WEIGHT GAIN

I was diagnosed with pmr this year, I was put on 15mg prednisolone, which really helped me, but the weight I have put on has made my breathing bad, so now I am...

I was diagnosed with pmr this year, I was put on 15mg prednisolone, which really...

Sueloobyloo

•2 years ago

19 Replies

Fingers Like Claws?

I have been waking up recently with the middle fingers on my right hand (I am right handed) like claws. It takes a while to be able to straighten them. The...

I have been waking up recently with the middle fingers on my right hand (I am ri...

Louisa1840

•2 years ago

8 Replies

Steroid reduction, TCZ and adrenals

I have been on TCZ injections since December2021. I was reducing pred at the rate of 1mg per fortnight, according to rheumy's instructions. I had cautiously...

I have been on TCZ injections since December2021. I was reducing pred at the rat...

Sharitone

•2 years ago

11 Replies

It finally got me!!!!

So, after 2 1/2 years of being extremely careful, shielding etc, the flamin thing finally got me!! Courtesy of my son and a gig I think!! But thankfully I...

So, after 2 1/2 years of being extremely careful, shielding etc, the flamin thin...

altywhite

•2 years ago

20 Replies

Adrenals

Dear all What are symptoms of adrenal crisis please is like to be prepared of what to tell my husband to look out for incase o don’t recognise. Thank you

Dear all What are symptoms of adrenal crisis please is like to be prepared of w...

Uglow

•2 years ago

8 Replies

Shingles, weakness, sleepiness,

Hi everyone, I got shingles just over three weeks ago, i mistakenly thought it was hives and unfortunately started antiviral aciclovir a week late,so may not...

Hi everyone, I got shingles just over three weeks ago, i mistakenly thought it w...

filorera

•2 years ago

3 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2022

Stomach muscles

Best and worst places for GP services in England

Gets beyond believe how bad.

Synacthen test same as ACTH???

Dizzy

Actemra Advice and Help!

What about PMR and persistent hip pain, sciatica?

Second Dexa scan

Inflammation levels raised again

Update on my covid status

Post vaccine neuralgic amyotrophy

Covid Antibody test

GCA relapse saga

Rheumatologists!!

Suffering from Covid with adrenal insufficiency

Question on Flairs?

Fatigue symptoms?

Sunshine

Back on pred 6 months after coming off actemera

Panic attack

Shooting here in Copenhagen :(

4th July - May your PMR and or GCA fly away.

Adrenals?

Prednisone zone fog or GCA

PMR WEIGHT GAIN

Fingers Like Claws?

Steroid reduction, TCZ and adrenals

It finally got me!!!!

Adrenals

Shingles, weakness, sleepiness,

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