Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,757 members • 39,024 posts

All posts for July 2022

Pain L/H/S when lying in bed

So my GCA is behaving, my spine fractures are healed and arthritis in spine is behaving. My walking is improving and even my Achilles Tendon is playing nice...

So my GCA is behaving, my spine fractures are healed and arthritis in spine is b...

HappyDiamonds

•2 years ago

44 Replies

Fractured wrist

Good morning everyone. I need advice please. My partner managed to fall yesterday (fell off a high kerb while looking to avoid traffic) He’s fractured his...

Good morning everyone. I need advice please. My partner managed to fall yesterda...

Fudgethecat

•2 years ago

21 Replies

Should pain occur in new places

Hi all. Thanks for your time. I'm wondering whether it's usual for PMR aches and pains to spread through the body once pred has been started. Newly diagnosed,...

Hi all. Thanks for your time. I'm wondering whether it's usual for PMR aches and...

Newplodder

•2 years ago

18 Replies

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Quandary??

I've been constantly on 3mg this year apart from 3 weeks when I made it to 2.5mg after 6.5 years. Couldn't sustain it though as I had nil energy. I had a...

I've been constantly on 3mg this year apart from 3 weeks when I made it to 2.5mg...

diana1998

•2 years ago

54 Replies

New here! GCA advice please...

To cut a long story short, newly diagnosed with GCA. I've been on 60mg Prednisolone for nearly a week and although it's taken the edge off the awful pain I was...

To cut a long story short, newly diagnosed with GCA. I've been on 60mg Prednisol...

Carer1976

•2 years ago

16 Replies

Cruise or not to cruise

Thank you all for your response and info regarding your cruises. All very helpful will wait to see how the next two weeks pan out. Thank you.

Thank you all for your response and info regarding your cruises. All very helpfu...

Snoopy7

•2 years ago

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Stomach muscles

Had any one lost their stomach muscles with prednisolone. Mine are quite good but am I in danger of loosing them as a side effect. I have been on pred 6...

Had any one lost their stomach muscles with prednisolone. Mine are quite goo...

zoey12

•2 years ago

16 Replies

A Special Meeting in Truro

The Truro Support group normally meets monthly on the 2nd Monday at Truro Golf Club. However, this month, we are very pleased to rearrange this month’s...

The Truro Support group normally meets monthly on the 2nd Monday at Truro Golf C...

Pollyanna16

•2 years ago

38 Replies

What is DF, please?

I've been trawling through FAQs trying to find out more about Adrenal Insufficiency, because I sometimes feel very lousy at 3.5 mgs. There was a long post and...

I've been trawling through FAQs trying to find out more about Adrenal Insufficie...

Utgorn

•2 years ago

4 Replies

Swollen hand

I have reduced my steroids down to 5 mg but unsure as to why my hand has become very swollen and extremely painful and the swelling goes up my arm too. There...

I have reduced my steroids down to 5 mg but unsure as to why my hand has become ...

Offsideinzaghi

•2 years ago

16 Replies

Is Ibuprofen safe to take with Prednisolone?

I am currently on 15mg of Prednisolone, but I have a bad sprain on my foot which means unable to walk without bad pain. Although Pred manages my PMR pain, it...

I am currently on 15mg of Prednisolone, but I have a bad sprain on my foot which...

Washingup

•2 years ago

14 Replies

heatstroke / exhaustion?

Doing very well up to 2 days ago, on 7.5 mgs. I am going to a wedding tomorrow - but appear to have heatstroke from a very hot, long walk in Greece. Nausea,...

Doing very well up to 2 days ago, on 7.5 mgs. I am going to a wedding tomorrow -...

Predderman2020

•2 years ago

15 Replies

Reducing Prednisolone too quickly ?

When I was recently diagnosed with GCA I was put on 60mg of Prednisolone for 2 weeks, reduced to 50mg for the next 2 weeks and am currently taking 40mg for...

When I was recently diagnosed with GCA I was put on 60mg of Prednisolone for 2...

essujay

•2 years ago

11 Replies

Exercise and PMR

Diagnosed with PMR in March 2022. Started on 20 mg of Pred, now down to 8.5. I am 56 male and exercise daily with light weights and bicycle. I wake with some...

Diagnosed with PMR in March 2022. Started on 20 mg of Pred, now down to 8.5. I a...

JMT_hiker

•2 years ago

23 Replies

It’s got me (Covid)

After 2 years and 4 months of being extra careful, mask wearing, avoiding crowds etc. the dreaded Covid has actually got me. We’ve just got back from a family...

After 2 years and 4 months of being extra careful, mask wearing, avoiding crowds...

Tiggy70

•2 years ago

6 Replies

Amitriptyline withdrawal

Since December of last year when I suffered with ear problems, migraines and high blood pressure I have tried 3 different meds with awful side effects and no...

Since December of last year when I suffered with ear problems, migraines and hi...

Jacbarr

•2 years ago

13 Replies

Hair growth and the immune system.

Does this offer any future hope for those is struggling with hair loss?...

Mstiles

•2 years ago

12 Replies

Actemra infusions vs injections

2 questions Actemra infusions vs injections 1. Was on Injections for 3 yrs taken off because of possible sarcoidosis. Now in flare & put on infusions. The...

2 questions Actemra infusions vs injections 1. Was on Injections for 3 yrs tak...

pwalker801

•2 years ago

1 Reply

Eye Drops

Hi, just wondering if anyone knows whether being given Tropicamide Eye drops (to dilate pupils so a better examination of the inner eye can be made) whilst...

Hi, just wondering if anyone knows whether being given Tropicamide Eye drops (to...

Pusph

•2 years ago

7 Replies

Some positive news!

With all the awful things I’m reading about prednisone it’s a wonder any of us would take it. But having PMR pain so bad you can’t get up is a pretty...

With all the awful things I’m reading about prednisone it’s a wonder any of us w...

flygirl65

•2 years ago

33 Replies

Difficulty swallowing tablets

Does anyone have any suggestions as to how I can get larger tablets like Lansoprazole to go down my oesophagus? I can swallow them OK but they get lodged part...

Does anyone have any suggestions as to how I can get larger tablets like Lansopr...

Smithie49

•2 years ago

42 Replies

UPDATE on PMR coming back

I will try to make this as short as possible. I saw my pulmonologist on Thursday and then saw my rheumatologist on Friday. I felt like I was gaslighted by my...

I will try to make this as short as possible. I saw my pulmonologist on Thursday...

Amkoffee

•2 years ago

2 Replies

Tapering question

I have been reducing by .5mg every 3 weeks since 9mg. After 2-3 days on 6mg I became very lethargic, no energy, brain fog, like walking through treacle with...

I have been reducing by .5mg every 3 weeks since 9mg. After 2-3 days on 6mg I b...

Miserere

•2 years ago

37 Replies

Methotrexate in the US

Since our Supreme Court has removed Roe v Wade allowing abortion something has happened that most did not expect. Women of reproctive age are being denied...

Since our Supreme Court has removed Roe v Wade allowing abortion something has h...

Amkoffee

•2 years ago

7 Replies

Frightening Fatigue

Thank you so much for this forum and for all the friendly advice so far! I’ve read all the helpful fatigue posts that you’ve pointed me to but I’m beginning to...

Thank you so much for this forum and for all the friendly advice so far! I’ve re...

Lyra42

•2 years ago

10 Replies

Welcome to our new members July 2022

Hello and welcome to all our new forum members. We hope you've had a chance to look around and find answers to your questions. Here's a quick guide to get you...

Hello and welcome to all our new forum members. We hope you've had a chance to l...

Fran_Benson

Partner•2 years ago

2 Replies

Tapering is going well.

Managed to lower prednisolone to 0.5mg and no original symptoms of PMR. So far so good 😊 Best wishes to all the members.

Managed to lower prednisolone to 0.5mg and no original symptoms of PMR. So far s...

Hidden

•2 years ago

16 Replies

Problems with leg

Hi everyone, Just wondered if anyone else has the problem with their legs that I have at the moment. I am currently going down from 3.5mg to 3.0 started this...

Hi everyone, Just wondered if anyone else has the problem with their legs that I...

Purplegloss

•2 years ago

18 Replies

Its Friday the 1st July.

1st of the month means reduction day, started this affair with Preds some 8 months ago on 40mgs a day, my consultant has asked me to reduce by 5 mgs a month (...

1st of the month means reduction day, started this affair with Preds some 8 mont...

Burnley1959

•2 years ago

17 Replies

Tapering

Good morning my wise owls Haven’t posted in a whole. Managed to taper to 6mg (2weeks). Just had bloods done. Unfortunately the ESR one was not gone properly...

Good morning my wise owls Haven’t posted in a whole. Managed to taper to 6mg (2...

Jacuzzi

•2 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2022

Pain L/H/S when lying in bed

Fractured wrist

Should pain occur in new places

Quandary??

New here! GCA advice please...

Cruise or not to cruise

Stomach muscles

A Special Meeting in Truro

What is DF, please?

Swollen hand

Is Ibuprofen safe to take with Prednisolone?

heatstroke / exhaustion?

Reducing Prednisolone too quickly ?

Exercise and PMR

It’s got me (Covid)

Amitriptyline withdrawal

Hair growth and the immune system.

Actemra infusions vs injections

Eye Drops

Some positive news!

Difficulty swallowing tablets

UPDATE on PMR coming back

Tapering question

Methotrexate in the US

Frightening Fatigue

Welcome to our new members July 2022

Tapering is going well.

Problems with leg

Its Friday the 1st July.

Tapering

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