Suffering from Covid with adrenal insufficiency - PMRGCAuk

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Suffering from Covid with adrenal insufficiency

Exflex profile image
18 Replies

Tested positive last Friday but I knew I had it prior to the LFT confirmation. On Saturday I was on the phone for 45mins being triaged for antivirals. I was informed I would qualify but no further call from the NHS, and it’s probably too late now.

Yesterday evening I was running a temperature of 39.6 and went into the start of a cytokine storm (I’ve had it once before and was hospitalised so know what to look out for) so this time I took an emergency 5mg, that’s on top of the 3mg I’d taken in the morning, so 8mg in total. I’m back to 3mg this morning.

Does the Pred management seem sensible? I can take more later if required.

Covid is one nasty son of a bitch, avoid it if you can.

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Exflex profile image
Exflex
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18 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Section 7 covers covid -but should be discussed with doctor.

medicinehealth.leeds.ac.uk/...

Exflex profile image
Exflex in reply to DorsetLady

Thanks for that.But just tried to talk to a medic and it’s impossible to get an appointment, even by phone.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Exflex

Guessed that when I said it! Does surgery have email facility so you can tell them what you to intend to do -and give them the opportunity to comment. That way it’s logged -and the onus is on them.

Exflex profile image
Exflex in reply to DorsetLady

I think they do, but the receptionist didn’t mention it. As my wife said to me, use your common sense you know how to manage your steroid intake. After a short blip from 3 to 8mg, I’m back to 3 today. I can add a bit more later if I feel the warning signals. There’s a balance between helping the adrenal shortfall and allowing the immune system to fight the infection. The two aspects go in opposite directions.

piglette profile image
piglette in reply to DorsetLady

My surgery have never heard of email!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to piglette

Lots of things your surgery doesn’t seem to have heard of! 😳

PMRpro profile image
PMRproAmbassador in reply to DorsetLady

You mean like medical care?

Suffererc profile image
Suffererc in reply to PMRpro

What’s that🤣😂

PMRpro profile image
PMRproAmbassador in reply to Suffererc

Does happen now and again ... ;)

piglette profile image
piglette in reply to DorsetLady

😩😩😩

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to piglette

Not from what you’ve said over the years 😊

PMRpro profile image
PMRproAmbassador in reply to Exflex

You are in the UK - wait for close of play at the GP and call 111 - they are only there out of GP office hours. You can speak to a doctor there (eventually) ...

Exflex profile image
Exflex in reply to PMRpro

Thanks,I’m not going wild on steroids so I might use my own judgement. So far, 3 to 8 for one day back to 3.

PMRpro profile image
PMRproAmbassador in reply to Exflex

See how you feel - if I felt rubbish I'd try some more for a few days.

Karendeena profile image
Karendeena in reply to PMRpro

PMRpro, I am in the UK and the 111 service is useless. I had an emergency with mum and checked 3 times that I was going to be called back by a doctor, I was told someone was looking at the case when I rang and guess what? I never ever got called back, even my GP rolled her eyes!

PMRpro profile image
PMRproAmbassador in reply to Karendeena

I'd have gone to 999 and explained why - 111 was half decent once ... We don't have a 111 equivalent, so it tends to be an ambo ...

Amkoffee profile image
Amkoffee

I had my first ever adrenal crisis since being diagnosed when I developed a fever with covid about 4 weeks ago. I had been instructed to double my daily dose for one week. This doubling stopped the crisis almost immediately so I'm happy about that. Unfortunately though I'm on my 3rd round of high dose steroids because of inflammation in my lungs and a cough that won't quit. The covid also seems to have restarted my PMR which had gone into remission about a year ago.

Exflex profile image
Exflex

I’ve been called twice by someone from the NHS, each time promising antivirals or IV. But no follow up, no treatment. 😡 Too late now. But cough is incessant.

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