Suffering from Covid with adrenal insufficiency - PMRGCAuk

PMRGCAuk

21,306 members40,398 posts

Suffering from Covid with adrenal insufficiency

Exflex profile image
18 Replies

Tested positive last Friday but I knew I had it prior to the LFT confirmation. On Saturday I was on the phone for 45mins being triaged for antivirals. I was informed I would qualify but no further call from the NHS, and it’s probably too late now.

Yesterday evening I was running a temperature of 39.6 and went into the start of a cytokine storm (I’ve had it once before and was hospitalised so know what to look out for) so this time I took an emergency 5mg, that’s on top of the 3mg I’d taken in the morning, so 8mg in total. I’m back to 3mg this morning.

Does the Pred management seem sensible? I can take more later if required.

Covid is one nasty son of a bitch, avoid it if you can.

Written by
Exflex profile image
Exflex
To view profiles and participate in discussions please or .
Read more about...
18 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Section 7 covers covid -but should be discussed with doctor.

medicinehealth.leeds.ac.uk/...

Exflex profile image
Exflex in reply toDorsetLady

Thanks for that.But just tried to talk to a medic and it’s impossible to get an appointment, even by phone.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toExflex

Guessed that when I said it! Does surgery have email facility so you can tell them what you to intend to do -and give them the opportunity to comment. That way it’s logged -and the onus is on them.

Exflex profile image
Exflex in reply toDorsetLady

I think they do, but the receptionist didn’t mention it. As my wife said to me, use your common sense you know how to manage your steroid intake. After a short blip from 3 to 8mg, I’m back to 3 today. I can add a bit more later if I feel the warning signals. There’s a balance between helping the adrenal shortfall and allowing the immune system to fight the infection. The two aspects go in opposite directions.

piglette profile image
piglette in reply toDorsetLady

My surgery have never heard of email!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply topiglette

Lots of things your surgery doesn’t seem to have heard of! 😳

PMRpro profile image
PMRproAmbassador in reply toDorsetLady

You mean like medical care?

Suffererc profile image
Suffererc in reply toPMRpro

What’s that🤣😂

PMRpro profile image
PMRproAmbassador in reply toSuffererc

Does happen now and again ... ;)

piglette profile image
piglette in reply toDorsetLady

😩😩😩

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply topiglette

Not from what you’ve said over the years 😊

PMRpro profile image
PMRproAmbassador in reply toExflex

You are in the UK - wait for close of play at the GP and call 111 - they are only there out of GP office hours. You can speak to a doctor there (eventually) ...

Exflex profile image
Exflex in reply toPMRpro

Thanks,I’m not going wild on steroids so I might use my own judgement. So far, 3 to 8 for one day back to 3.

PMRpro profile image
PMRproAmbassador in reply toExflex

See how you feel - if I felt rubbish I'd try some more for a few days.

Karendeena profile image
Karendeena in reply toPMRpro

PMRpro, I am in the UK and the 111 service is useless. I had an emergency with mum and checked 3 times that I was going to be called back by a doctor, I was told someone was looking at the case when I rang and guess what? I never ever got called back, even my GP rolled her eyes!

PMRpro profile image
PMRproAmbassador in reply toKarendeena

I'd have gone to 999 and explained why - 111 was half decent once ... We don't have a 111 equivalent, so it tends to be an ambo ...

Amkoffee profile image
Amkoffee

I had my first ever adrenal crisis since being diagnosed when I developed a fever with covid about 4 weeks ago. I had been instructed to double my daily dose for one week. This doubling stopped the crisis almost immediately so I'm happy about that. Unfortunately though I'm on my 3rd round of high dose steroids because of inflammation in my lungs and a cough that won't quit. The covid also seems to have restarted my PMR which had gone into remission about a year ago.

Exflex profile image
Exflex

I’ve been called twice by someone from the NHS, each time promising antivirals or IV. But no follow up, no treatment. 😡 Too late now. But cough is incessant.

Not what you're looking for?

You may also like...

Adrenal insufficiency

Hi all I've been on split dose of prednisone for 5 yrs and now down to 3mg. I've found for past...
Wizards profile image

Adrenal insufficiency

Hi everyone It’s been a couple of years since I was last on here and although I have manages to get...
camerashy profile image

Adrenal insufficiency

Yesterday I received the worrying news that, after a blood test taken by the rheumatology...
Pollyanna16 profile image

nausea - related to adrenal insufficiency?

I have managed to reduce to 3mg per day, without too much pain and stiffness. I am getting bouts of...

Panic attack or adrenal insufficiency?

Hello everyone I have been struggling to get down to 3mg pred for about a year. Sometimes I manage...
Skodadet profile image

Moderation team

SophieMB profile image
SophieMBPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.