Newly diagnosed: Hello to one and all. I started... - PMRGCAuk

PMRGCAuk

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Newly diagnosed

Purplecheeks profile image
8 Replies

Hello to one and all. I started taking prednisone to say as my GP. Thinks I may have ONE And GCA.. So has started me off on 40 mg per day until Tuesday next week when she calls me to see how I'm doing....So say I'm worried about all what steroids can go to you I understand the need to take it for the temple arthritis. I

And scared I put weight on as I had weight Loss surgery a year ago and don't want to it weight on.

I hope to learn a lot here so please be gentle if I am asking too many questions.

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Purplecheeks
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8 Replies
essujay profile image
essujay

Me too Purplecheeks ! We are starting this together ! We will find our way thru it and be ok eventually

Purplecheeks profile image
Purplecheeks in reply to essujay

Very true!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Hi and welcome,

Never too many questions, as I’ve just replied to another thread - have a look at this post for general overview of what may lie ahead -

healthunlocked.com/pmrgcauk...

..and also be aware of the FAQs we have - to be looked at in time, for specific things, don’t try and cram your brain with too much early days, there’s a lot to get your head around.

healthunlocked.com/pmrgcauk...

Always someone around to help…..

Purplecheeks profile image
Purplecheeks in reply to DorsetLady

Thank you DorsetLady

cycli profile image
cycli

Try not to worry. Things will happen to you and you'll be on here asking. That's fine. Some things you can circumvent and others are inevitable. Stay positive and ask if you don't know. Read all you can and advocate from knowledge when speaking to GP's and Consultants. There's a wide range of awareness of our condition amongst them and they don't necessarily know everything we know and need educating sometimes. Good luck on your journey.

Purplecheeks profile image
Purplecheeks in reply to cycli

Thank you.

PMRpro profile image
PMRproAmbassador

DorsetLady has given you the basics - start there. The rest will come later.

Weight gain is not inevitable when on pred - but you do have to do your bit. Cut your carbs drastically, especially processed carbs and added sugar. Don't go mad on fruit - healthy it may be but it has lots of sugar, lots of carbs.

And if you want to look things up - it isn't temple arthritis, it is temporal arteritis, arthritis is joints, arteritis is blood vessels, arteries in particular. Don't worry - even healthcare professionals get it mixed up.

Purplecheeks profile image
Purplecheeks

Thank you.

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