Sunshine

[Bowred]

Hi all I have been on steroids for month now for PMG Doctor said to start taper I am on 15mg Doctor said go down to 12.5mg it was short Conversation on phone he didn’t say how long to be 12.5mg I appreciate any advice

[DorsetLady PMRGCAuk volunteer]

We usually recommend on here to stay at each dose for about a month…..Just be aware that although 15-12.5mg is a “recognised taper”, it is not achievable for everyone….so it might be wise to cut your 2.5mg tablet (provided is plain white one) into half and try that.

It is also suggested that reductions should not be more than 10% of current dose - so at 15mg that would be 1.5mg not 2.5mg

Not sure whether you can obtain 1mg tablets where you live, but ask…you will need them as you get lower.

Not sure if you’ve seen this. (Apologies if forwarded before) , but might help -

healthunlocked.com/pmrgcauk...

[Bowred in reply to DorsetLady]

Thanks you Appreciate the advice

[Bowred in reply to DorsetLady]

My arms still feel weak will this better over time

[DorsetLady PMRGCAuk volunteer in reply to Bowred]

Difficult to say, both illness and Pred can affect muscles……so do monitor them. Do you mean just weak, or painful as well?

[Bowred]

Weak and pain when opening lids on jars I don’t seem to have strength in arms like I did before all started in March I have my first appointment next week with rheumatologist

[DorsetLady PMRGCAuk volunteer in reply to Bowred]

That’s probably normal for most -might be too little a dose, so just watch it doesn’t get worse when you taper.

[PMRpro Ambassador]

At least a month. And most of us probably struggle with opening jars and bottle tops!

[Hidden]

I had 15mg for 3 weeks 12 5 for 3 weeks. Then I went to 10mg and reduced 1mg every 4 weeks. I am currently on 5mg. No problem so far.