Good news - I am done with PMR!: I want to share... - PMRGCAuk

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Good news - I am done with PMR!

thepainterlyone profile image
34 Replies

I want to share some good news... finally my PMR has left me after more than 6 years (December 2016 it began). I had been tapering for the last 6 months but never managed to get below 1mg and still had flares needing to take up to 5mg. I had been very stressed being in an unhappy and emotionally abusive marriage, my husband and I separated in November 2021 and I believe the removal of this stress was the beginning of my healing. I travelled away to visit family for a week at the end of January 2022 and forgot to bring my Prednisone, I initially panicked, but then thought I would try and see if I could manage with just Panadol Osteo. I was achy, but okay. I persisted with this when I returned home. I also instigated doing a low carb, low calorie diet and began walking and doing gentle resistance training. Then pilates and hill walking. I have lost 7kg since February (got my cheek bones back!) and I don't need the Panadol anymore either. So it is safe to say that after 4 months of no Prednisone and now being pain free - I think my journey with PMR has come to an end!!! I want to thank this forum and all of the wonderful advice given by the members and moderators. You have been my sanity to know that have not been alone. Good luck everyone with your journeys, they are all different but we can safely share here and care for each other.

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34 Replies
winfong profile image
winfong

Wow! That's wonderful news. Very inspiring

Koalajane profile image
Koalajane

That is good news but just wondering how your adrenals are coping

Seacat30 profile image
Seacat30

Well done! Congratulations on escaping both the abusive relationship and the PMR.

123-go profile image
123-go

That's the kind of story that gives hope. I'm not suggesting we don't need to pack our meds when we go off on holiday 🙂 but I'm glad that things have worked out well for you. 💐

SheffieldJane profile image
SheffieldJane

Lovely post! May your wonderful new beginnings continue! 💖

MrsNails profile image
MrsNails

Great News 🌸

Millipede01 profile image
Millipede01

Lovely to hear good news ! 👏

Magsteru2 profile image
Magsteru2

Ohhhh.... that is amazing news. It gives hope to everyone. I wish you well.

keeptalking profile image
keeptalking

How lovely to get some positive news regarding PMR and escaping a marriage that clearly wasn’t working in your favour. Don’t ignore the fact that it can return in the future but enjoy the pain free time that you’re having right now.

Clammy65 profile image
Clammy65 in reply to keeptalking

True about returning, but I had around 12 years being PMR free! Been back for 2 years so far, but as long as I'm pain free, I will tolerate Prednisone.

Constance13 profile image
Constance13

Oh well done!👏👏👏Now have a good life - ALONE (not without friends).😂 Don’t forget - you still have us. We are always here if you need any advice in the future (or just a friendly word).

PMRpro profile image
PMRproAmbassador

Do hope it continues well. All the very best.

Viv54 profile image
Viv54

Brilliant news, its great to see it can be done, it gives hope to those of us who are struggling to get there ! Good luck and thanks for sharing ,🌷

Great Post! Thankyou for sharing to uplift us all! We must never give up. One day ....take care & enjoy every day. Xx

artisam profile image
artisam

Gives me much hope. My Rheumy thinks I'll be off the meds in the next three months and you've just given me the hope that it might be true. Wishing you all the very best with the rest of your life's journey ❤️

piggylovesgolf profile image
piggylovesgolf

Oh really well done on both counts. I'm so pleased to hear of people really shaking off this foul plague. I don't have it--its my hubby who's the sufferer---but I hope to also post similar in the not too distant future as hubby has got down to 1mg of pred (cutting down by .5 a month from 3 without any effects) and i have fingers crossed that we're almost there. Unfortunately we've just both been struck by covid ---despite 4 jabs---- but we're recovering.!!!!! Life's a bitch innit 😁😁😁 But very well done to you and congrats on escaping a lousy marriage. All new beginnings. Enjoy 👍👍👍👍

agingfeminist profile image
agingfeminist

You needed strength and courage to get out of your marriage (I did the same) WELL DONE! wishing you a joyous PMR-free future.

Longtimer profile image
Longtimer

Lovely to hear positive news...and proof that removal of stress if possible is a major step to helping recovery.....Hope your journey continues to improve...👍

Marcy47 profile image
Marcy47

Good news. It gives me hope that after nearly 7 yrs I could get there too. Can't seem to get below 7mg every time I try to reduce. 🥳

So very happy for you. Wondering if it was the stress within your marriage that instigated PMR in the first place....stress does terrible things to our bodies. Have a wonderful life and hopefully continue without PMR raising it's ugly head again.

Anne

singingloud profile image
singingloud

Good news and congratulations!

Alazarin profile image
Alazarin

Great news.

Kntr profile image
Kntr

Wonderful news, wishing you health and happiness x

MiloCollie profile image
MiloCollie

Well done and good for you. You must feel like a new person xx

thepainterlyone profile image
thepainterlyone in reply to MiloCollie

I do indeed and everyone says i look like a new person too :-) xx

LemonZest11 profile image
LemonZest11

All the best, long may it continue.

PMRCanada profile image
PMRCanada

Great news on all fronts! There truly is something to be said for protecting your peace. Your story gives me hope.

Lonsdalelass profile image
Lonsdalelass

That's great news! Well done!! I'm coming up to my first month without pred, and hoping I can sustain it 🤞 x

thepainterlyone profile image
thepainterlyone in reply to Lonsdalelass

All the very best to you to stay off Pred, it is a great feeling x

Coco63 profile image
Coco63

Well done you! I agree with all the comments to do with stress/ unhappy marriage being a trigger (been there)! I’m only one year in and feel like I have a long road ahead but it so wonderful to hear of fellow sufferers coming out the other side. All the very best to you ❤️Xx

Tiggy70 profile image
Tiggy70

Great news🤗🤗 it gives hope to all of us who are still trudging along our PMR journey.

Elispeth profile image
Elispeth

That is wonderful news! Very inspiring to hear that your PMR has now leftyou. I wish you every happiness for the future. You deserve it x

Louisa1840 profile image
Louisa1840

Very well done on both counts!! It is said that the medain length of time for PMR is 5 .9 years so I guess you fit that profile well! Many Blessings and Happy Years as you travel the rest of life's journey..........

Golden20 profile image
Golden20

That’s wonderful news, you should be so proud of yourself. I wish you all the best for a happy and healthy life free of pain.

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