Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,643 members • 38,794 posts

All posts for January 2022

Year long cough

Year-long cough I had PMR symptoms a year ago December. At that time I started a cough. I would cough once a day and then may be a week later a couple times a...

Year-long cough I had PMR symptoms a year ago December. At that time I started a...

Bajg

•2 years ago

6 Replies

PMR HAIR

Every morning I wake up with scary hair, it is standing right up on end and all over. Is this a symptom of PMR or age or is anyone having this issue and are...

Every morning I wake up with scary hair, it is standing right up on end and all ...

remission

•2 years ago

24 Replies

Effects of going without Prednisone

Hi, I have been low on my prednisone due to not getting the dr to refill it in time. So this is the third day and I am aching so badly in my neck, hips, and...

Hi, I have been low on my prednisone due to not getting the dr to refill it in t...

Trevgrrl

•2 years ago

13 Replies

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Immuno-deficiency and 4th Covid Jab

Just to underline what most of us are discovering re- 4th jab, it's up to you to pursue it. Just had mine and the process was enlightening (or depressing). I...

Just to underline what most of us are discovering re- 4th jab, it's up to you to...

oscarandchloe

•2 years ago

32 Replies

Weight loss

I am struggling to lose weight while on 5 mgs Prednisolone. I gained a stone since starting on 20 mgs Pred. 14 months ago and am now attempting to shift it...

I am struggling to lose weight while on 5 mgs Prednisolone. I gained a stone sin...

lilydunn

•2 years ago

32 Replies

Methotrexate and tapering

Morning everyone. On 13. weeks of methotrexate and all good. Nurse agreed I could start tapering by 1MG, happy about that but nervous. Previously slow...

Morning everyone. On 13. weeks of methotrexate and all good. Nurse agreed I cou...

Abbey17

•2 years ago

7 Replies

Visit to Rheumatologist

When I was admitted to hospital before Christmas with a suspected heart attack, one of my symptoms was a tightness in the chest, particularly in the area of...

When I was admitted to hospital before Christmas with a suspected heart attack, ...

Janann25

•2 years ago

62 Replies

DOES ANYONE SUFFER FROM WEAK KNEES AND ANKLES? I HAVE THE ANSWER!

Just over a year ago I had another fall and broke an ankle . I went downhill for a year , feeling so insecure , and continuously felt momentarily like the...

Just over a year ago I had another fall and broke an ankle . I went downhill for...

Flutterbies57

•2 years ago

6 Replies

Gabapentin Experience

It’s a few years since I took Gabapentin. I was also tried Pregablin. They are significant drugs and although I didn’t suffer side effects, I felt that neither...

It’s a few years since I took Gabapentin. I was also tried Pregablin. They are s...

FSP25

•2 years ago

9 Replies

JCVI advice recommending a fourth Covid jab for LVV-GCA patients on Tocilizumab?

I have been on (self-injected) Ro Actemra (Tocilizumab) since July 2019 for LVV-GCA, and it enabled me to cease all other medications (mainly the dreadful...

I have been on (self-injected) Ro Actemra (Tocilizumab) since July 2019 for LVV-...

Suzita76

•2 years ago

10 Replies

Would appreciate your help and advice on whether to increase prednisolone dose.

I was diagnosed with GCA 12 months ago and have managed to reduce the steroids to 7 mg without too many problems. 10 days ago I reduced to 6.5mg and for the...

I was diagnosed with GCA 12 months ago and have managed to reduce the steroids t...

JackBee

•2 years ago

26 Replies

Can't get rid of these symptoms after 2 years

I am 71 years old and have always been very active. I take care of my husband who is partially disabled. It will be 2 years next month since I was diagnosed...

I am 71 years old and have always been very active. I take care of my husband wh...

Cgt1151

•2 years ago

2 Replies

Will ‘the feeling of abandonment’ remain? Persisting impacts of the COVID-19 pandemic on rheumatology patients and clinicians

Research Study on Rheumatology and Covid Will ‘the feeling of abandonment’ remain? Persisting impacts of the COVID-19 pandemic on rheumatology patients and...

Research Study on Rheumatology and Covid Will ‘the feeling of abandonment’ remai...

Bcol

•2 years ago

51 Replies

Microscopic Colitis

Has anyone experienced microscopic colitis alongside PMR, GCA/LVV? I have been struggling with bowel and bladder symptoms for a few months now and in spite of...

Has anyone experienced microscopic colitis alongside PMR, GCA/LVV? I have been ...

SheffieldJane

•2 years ago

73 Replies

Eyes

Sorry to keep being a pain,but have had dry eyes for a long time.but my right eye seem to hurt on the eye lid and they seem to very heavily all the time.would...

Sorry to keep being a pain,but have had dry eyes for a long time.but my right ey...

Flosy

•2 years ago

16 Replies

Has anyone experienced hearing loss/problems with GCA. I already had hearing loss prior to diagnosis but my hearing has definitely got worse

Hearing problems

Charkha

•2 years ago

12 Replies

Support Group

I read with interest the recent post about support groups and used the link to check on any in my area - but the nearest one is Bath which would mean either a...

I read with interest the recent post about support groups and used the link to c...

Janann25

•2 years ago

12 Replies

TAPERING PLANS. A bit of History.

In 2017, when the PMR&GCAuk North East Charity was still in existence the following was published in their Newsletter , 'You are NOT Alone'. In the light of a...

In 2017, when the PMR&GCAuk North East Charity was still in existence the follow...

jinasc

•2 years ago

8 Replies

New knee problem

I had the results of my recent X-ray this week and have been told I now have osteoarthritis in hip and pelvis as well as my spine. I also have osteoporosis...

I had the results of my recent X-ray this week and have been told I now have ost...

HappyDiamonds

•2 years ago

26 Replies

Low neutrophils/ neutropenia on TCZ. How long till neutrophil levels get back up?

Low neutrophils/ neutropenia on TCZ? Hi folks, I was wondering if anyone who has experienced this happening can give me some of idea how long it will take to...

Low neutrophils/ neutropenia on TCZ? Hi folks, I was wondering if anyone who ha...

Erikaknitssocks

•2 years ago

3 Replies

Methotrexate and chronic diarrhea

Hi all, Back again. Following my previous post hubby finally got to see a rheumatologist (highly recommended on here and good reputation throughout the...

Hi all, Back again. Following my previous post hubby finally got to see a rheum...

piggylovesgolf

•2 years ago

18 Replies

Blood tests

Dear forum members Over the last fortnight I have been experiencing some awful symptoms which pointed towards lupus but I’m not a medico so I’ve possibly been...

Dear forum members Over the last fortnight I have been experiencing some awful ...

AnniesRyder5

•2 years ago

1 Reply

Rheumatologist Visit: take Hydroxychloroquine and PMR isn't a vasculitis

Okay, I had a major flare over the past few months so upped my prednisone by adding 6 mg for 10 days, then settled back to 8 mg prednisone (3 at night 5 in...

Okay, I had a major flare over the past few months so upped my prednisone by add...

artfingers

•2 years ago

9 Replies

Can GCA return after a fall ?

Hi been GCA free since 2019 after a year on Pred … discharged by rheumatologist to stop taking the 5% completely .. alll fine till …. I have fallen on icy...

Hi been GCA free since 2019 after a year on Pred … discharged by rheumatologis...

Hidden

•2 years ago

5 Replies

Jaw pain

Hi everyone, I am new to the site. I was diagnosed with GCA and PMR last November with all the symptoms, headache, scalp pain, jaw pain, episodes of loss of...

Hi everyone, I am new to the site. I was diagnosed with GCA and PMR last Novembe...

Charkha

•2 years ago

29 Replies

Good Days Bad Day and Tapering

I am currently on 50mg Pred a day Diagnosed, or not, as it now appears in Dec 2021 The symptoms, headache, pain and throbbing in the temples, jaw pain/ache...

I am currently on 50mg Pred a day Diagnosed, or not, as it now appears in Dec 20...

Auditor1234

•2 years ago

13 Replies

Polymyalgia flare up!

Hi all, Long post alert… This is the first time I have found the need to write but, have followed lots of advise and been engaged with lots of the posts on...

Hi all, Long post alert… This is the first time I have found the need to write ...

Rooro

•2 years ago

64 Replies

What can I expect when reducing steroids?

I was diagnosed with PMR 18 months ago. My dose of steroids has gradually been reduced but since coming down from 7 mg I have had a return of pain. This has...

I was diagnosed with PMR 18 months ago. My dose of steroids has gradually been r...

Offsideinzaghi

•2 years ago

14 Replies

Gastro resistant or Enteric coated Pred

What is the difference? Is it the time they take to work?

diana1998

•2 years ago

4 Replies

Update - Rheumy, methotrexate and Pred

So I got to talk to my Rheumy yesterday. She is very cross that the Rhemy nurse (not cross with me!) suggested going back up from 7mg to 12mg before Christmas...

So I got to talk to my Rheumy yesterday. She is very cross that the Rhemy nurse ...

Mamamia21

•2 years ago

9 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2022

Year long cough

PMR HAIR

Effects of going without Prednisone

Immuno-deficiency and 4th Covid Jab

Weight loss

Methotrexate and tapering

Visit to Rheumatologist

DOES ANYONE SUFFER FROM WEAK KNEES AND ANKLES? I HAVE THE ANSWER!

Gabapentin Experience

JCVI advice recommending a fourth Covid jab for LVV-GCA patients on Tocilizumab?

Would appreciate your help and advice on whether to increase prednisolone dose.

Can't get rid of these symptoms after 2 years

Will ‘the feeling of abandonment’ remain? Persisting impacts of the COVID-19 pandemic on rheumatology patients and clinicians

Microscopic Colitis

Eyes

Has anyone experienced hearing loss/problems with GCA. I already had hearing loss prior to diagnosis but my hearing has definitely got worse

Support Group

TAPERING PLANS. A bit of History.

New knee problem

Low neutrophils/ neutropenia on TCZ. How long till neutrophil levels get back up?

Methotrexate and chronic diarrhea

Blood tests

Rheumatologist Visit: take Hydroxychloroquine and PMR isn't a vasculitis

Can GCA return after a fall ?

Jaw pain

Good Days Bad Day and Tapering

Polymyalgia flare up!

What can I expect when reducing steroids?

Gastro resistant or Enteric coated Pred

Update - Rheumy, methotrexate and Pred

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