Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for January 2022

Long term low dose Pred if you have Osteoporosis

I have been reading with interest some other posts where its mentioned that Rheumys become less worried about Pred when you have tapered below 8mg and that...

I have been reading with interest some other posts where its mentioned that Rheu...

HappyDiamonds

•2 years ago

18 Replies

4th Covid Vaccine

Hi, I am due my 4th Covid jab tomorrow which I had no problem with whatsoever until yesterday when I started to hear some rather worrying comments such as it’s...

Hi, I am due my 4th Covid jab tomorrow which I had no problem with whatsoever un...

Jeze

•2 years ago

112 Replies

Pred withdrawal

I have been on pred for 6years…now on half one mg three times a week, can I now stop taking them? No pains at the minute

I have been on pred for 6years…now on half one mg three times a week, can I now ...

Beaulah

•2 years ago

5 Replies

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BMJ published paper on reducing incidence of autoimmune diseases, including PMR

This recently published research paper may be of interest re factors that may reduce the INCIDENCE of autoimmune disease, not cure it....

This recently published research paper may be of interest re factors that may r...

redruth123

•2 years ago

12 Replies

Effects of methotrexate on lower doses of pred.

On the subject of methotrexate I think that now I’ve got down to 5mg pred the effect of the methotrexate is that it causes me headaches for 24 hours. Does...

On the subject of methotrexate I think that now I’ve got down to 5mg pred the ef...

Kailacobweb

•2 years ago

4 Replies

What my rheumy said yesterday - you may not like this!

I had my second appointment yesterday since being diagnosed with PMR and GCA last September. I am pleased to have printed out and presented him with my dosage...

I had my second appointment yesterday since being diagnosed with PMR and GCA las...

Broseley

•2 years ago

43 Replies

MTX taken by injection

Hi again, Hubby's jolly doc went down with Covid and my GP rang instead to speak to hubby as they had found something bacterial in the sample I had to take...

Hi again, Hubby's jolly doc went down with Covid and my GP rang instead to spe...

piggylovesgolf

•2 years ago

13 Replies

Plasma viscosity?

Dear forum members After a month of suffering unpleasant flare up symptoms my GP eventually ordered blood tests for C Reactive protein, plasma viscosity,...

Dear forum members After a month of suffering unpleasant flare up symptoms my ...

AnniesRyder5

•2 years ago

6 Replies

Overdone it!?

Second visit at a hydro pool, an hours drive away, physio exercises for nearly an hour and then drive back. (Used to go regularly before PMR but Covid...

Second visit at a hydro pool, an hours drive away, physio exercises for nearly a...

Maudie19

•2 years ago

6 Replies

Numbness in my right collarbone

No pain felt just numbness

GucciPaddy

•2 years ago

7 Replies

Pred reducing

This is a response to Dorset Lady. I have done the 22.5 for 14 days. Experienced pain on days 1 to 12. Pain Free on day 13 and 14. Today dropped to 17.5...

This is a response to Dorset Lady. I have done the 22.5 for 14 days. Experienc...

Artwatercolour

•2 years ago

1 Reply

Podcasts - Bath Institute for Rheumatic Diseases

Interesting podcasts on this website : https://www.birdbath.org.uk/

Baner

•2 years ago

2 Replies

Has PMR gone?

Since December last year following spine surgery, I have been prescribed morphine & presently Tramadol & Ketoprofene. I am two & half years into PMR tapering...

Since December last year following spine surgery, I have been prescribed morphin...

Breester

•2 years ago

10 Replies

Methotrexate problems

Has anyone experienced any health issues while being on methotrexate?

Chipola

•2 years ago

8 Replies

Don't Always Think the Worst.

So....having spent the past 3wks trying to keep my Urticaria rash under control with steroids and prescription antihistamines, I'd managed to convince myself...

So....having spent the past 3wks trying to keep my Urticaria rash under control ...

Kendrew

•2 years ago

46 Replies

Knee problems

A quick question. I developed what was diagnosed as knee bursitis in my left knee about the same time as PMR began to appear. I asked the dr if the two...

A quick question. I developed what was diagnosed as knee bursitis in my left kn...

Miserere

•2 years ago

26 Replies

PMR return? flare or ?

Painful shoulder & arm. PMR return or Rotator cuff injury? Started to hurt mid Dec. Only in right side However both elbow joints sore when pressed Dr- 2 x so...

Painful shoulder & arm. PMR return or Rotator cuff injury? Started to hurt mid D...

suzieh

•2 years ago

14 Replies

Tapering

When tapering and I’m going slow 13 to 12.3/4 does any pain return and does it settle so you know you are doing it ok. I mean is there an adjustment period for...

When tapering and I’m going slow 13 to 12.3/4 does any pain return and does it s...

Uglow

•2 years ago

16 Replies

GCA

Three weeks on and they have diagnosed GCA with a temple scan yesterday. My doctor put me on 40 mg two weeks ago as my bloods showed high inflammation markers....

Three weeks on and they have diagnosed GCA with a temple scan yesterday. My doct...

Flrchrs

•2 years ago

13 Replies

Methoject

I have recently started injecting metoject as an alternative to tablets as I struggled with the side effects. I am concerned about hair loss. I take folic acid...

I have recently started injecting metoject as an alternative to tablets as I str...

Kyrenia

•2 years ago

9 Replies

Flatulence!

I’ve been really good about cutting out the carbs and been using beans of various kinds instead. Only trouble is the gas! Not too pleasant for Himself or...

I’ve been really good about cutting out the carbs and been using beans of variou...

Hidden

•2 years ago

44 Replies

Are you based in the US or Australia?

Are you being treated with steroids for your rheumatic condition? The Rheumatology Research Team at the University of the West of England, Bristol are looking...

Are you being treated with steroids for your rheumatic condition? The Rheumatolo...

Fran_Benson

Partner•2 years ago

11 Replies

Anti viral drugs

Has anyone being offered the anti viral drugs from the NHS after testing positive and have you been advised by anyone regarding taking them

Has anyone being offered the anti viral drugs from the NHS after testing positiv...

Ceathrua498

•2 years ago

17 Replies

Prednisolone

Is it ok to taper from 5mg to 2.5mg over a month?

Tayzee

•2 years ago

16 Replies

First Rheumatology Hospital Appointment - UPDATE

Advice please on what to expect at first face to face hospital appointment. Previous appointment was changed to telephone consultation as I tested positive...

Advice please on what to expect at first face to face hospital appointment. Pre...

Baner

•2 years ago

25 Replies

High blood sugar

The really good news is I have had no typical PMR pain for the last few months so I hope I am in remission. I am now on 1mg prednisolone and was tapering...

The really good news is I have had no typical PMR pain for the last few months s...

Marigold3

•2 years ago

5 Replies

I am having headaches not at the temple but over the eyes and top which is unusual. I’m on 10mg of Predisolone. Poor sleep and shoulder pain

Polymyalgia since August.2021 Thank you so much for mentioning Kate Gilbert’s book—Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide. 2nd...

Polymyalgia since August.2021 Thank you so much for mentioning Kate Gilbert’s bo...

Jazz77

•2 years ago

15 Replies

Increasing Prednisone when you have the flu or Covid

I read 6 months ago somewhere that if we have pmr and are taking prednisone and then get the flu that we should increase the dosage substantially for a few...

I read 6 months ago somewhere that if we have pmr and are taking prednisone and ...

Skier321

•2 years ago

8 Replies

Nausea and pred tapering

I’ve recently been experiencing off and on again some nausea, usually not real bad, but a few times was really sick. I’ve been very slowly tapering , now at 5...

I’ve recently been experiencing off and on again some nausea, usually not real b...

gtate1914

•2 years ago

7 Replies

Holiday insurance and steroids

Good evening everyone We’ll soon be looking for annual holiday insurance, the first time since I was diagnosed with PMR and all the various meds associated...

Good evening everyone We’ll soon be looking for annual holiday insurance, the f...

Doraflora

•2 years ago

50 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2022

Long term low dose Pred if you have Osteoporosis

4th Covid Vaccine

Pred withdrawal

BMJ published paper on reducing incidence of autoimmune diseases, including PMR

Effects of methotrexate on lower doses of pred.

What my rheumy said yesterday - you may not like this!

MTX taken by injection

Plasma viscosity?

Overdone it!?

Numbness in my right collarbone

Pred reducing

Podcasts - Bath Institute for Rheumatic Diseases

Has PMR gone?

Methotrexate problems

Don't Always Think the Worst.

Knee problems

PMR return? flare or ?

Tapering

GCA

Methoject

Flatulence!

Are you based in the US or Australia?

Anti viral drugs

Prednisolone

First Rheumatology Hospital Appointment - UPDATE

High blood sugar

I am having headaches not at the temple but over the eyes and top which is unusual. I’m on 10mg of Predisolone. Poor sleep and shoulder pain

Increasing Prednisone when you have the flu or Covid

Nausea and pred tapering

Holiday insurance and steroids

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