Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,643 members • 38,793 posts

All posts for January 2022

Hospitalised for 15 weeks

I live in Brasil. After coughing up blood, and a Covid test at the leading hospital in RdJ for Covid, I was admitted on 1 Sept. I have been on Pred. for 10...

I live in Brasil. After coughing up blood, and a Covid test at the leading hospi...

tomh

•2 years ago

30 Replies

PMR Flare-up after an increase in Pred dose

As I mentioned in my last post I have both PMR and GCA, I picked up from here that was given a low dose of Pred and the reduction was also too fast, therefore...

As I mentioned in my last post I have both PMR and GCA, I picked up from here t...

redhouts

•2 years ago

11 Replies

PMR and keeping physically active

Does anyone else find their level of physical activity is linked to their level of PMR? Do they find activity makes it better or worse? I used to suffer from...

Does anyone else find their level of physical activity is linked to their level ...

calibriel

•2 years ago

15 Replies

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Timing is Everything.....Not when it comes to a Diabetic husband who is Covid Positive, thoughts please!

Auntie bee here , this time putting out a call for advice, it isn't specifically PMR related I'm afraid , but some PMR sufferers may know if they have had...

Auntie bee here , this time putting out a call for advice, it isn't specifically...

Blearyeyed

•2 years ago

73 Replies

A big thank you to all pmr sufferers who have supported me.

I haven't been of line for a few days, i thought it best to rest for a while. I was in a bad place but it was reading your kind and supportive posts that...

I haven't been of line for a few days, i thought it best to rest for a while. I...

mustcarryon

•2 years ago

5 Replies

Injections for bursitus

Morning all. In November last year my consultants registrar gave me an injection in each hip as he said I have bursitis which I was confusing with pmr pain. I...

Morning all. In November last year my consultants registrar gave me an injection...

Suet3942

•2 years ago

7 Replies

Preds during and after operation.

I am under going some cancer surgery next week which requires a general anesthetic and a couple of days in hospital. I am wondering what I should do about my...

I am under going some cancer surgery next week which requires a general anesthet...

paintpots

•2 years ago

5 Replies

Methotrexate and PMR Help

Does anyone have experience of Methotrexate as that is all rhuemy are offering me I have had PMR 4-5 years and very tired of it. Last year rhuemy I was down...

Does anyone have experience of Methotrexate as that is all rhuemy are offering m...

cherrysteps

•2 years ago

25 Replies

PMR, RA or ??? any advice?

Diagnosed November 2018 Over that time was put on prednisone and then methotrexate and then I made it down to no prednisone since July 2021 or methotrexate...

Diagnosed November 2018 Over that time was put on prednisone and then methotrexa...

Musiclady18

•2 years ago

9 Replies

Timing of Prednisone seems to be important

I have always taken my pred. about 10-11pm. For the past 6 years, everything has gone well. I had a little stiffness in morning but it passed quickly. When I...

I have always taken my pred. about 10-11pm. For the past 6 years, everything has...

Linny3

•2 years ago

6 Replies

Post script to flare in reducing pred

I must add that I did a ridiculous thing last week and played tennis 3 times in 48 hours including a hard fought match. I’m sure this has perhaps not helped ☹️

I must add that I did a ridiculous thing last week and played tennis 3 times in ...

WillOllier

•2 years ago

19 Replies

Flare on Reducing pred

Ive had a flare (blood test showed ESR of 15 11 days ago) having reduced pred very slowly to 2.5. Went back up to 4 for 11 days and that did trick so reduced...

Ive had a flare (blood test showed ESR of 15 11 days ago) having reduced pred ve...

WillOllier

•2 years ago

14 Replies

It's Good to talk

Hi Everyone,just a quick message, I went to a GCA-pmr meetup today and found it a great help just talking to others with the same problems and getting a better...

Hi Everyone,just a quick message, I went to a GCA-pmr meetup today and found it ...

Ambientman

•2 years ago

9 Replies

Fed up with tablets

Hi all, gp phoned today with blood results, got to up my vit d intake as well as my edval twice a day and iron levels a lot lower than they like so got to take...

Hi all, gp phoned today with blood results, got to up my vit d intake as well as...

Hidden

•2 years ago

18 Replies

Has PMR Returned

My overactive cousin just updated me of his 2021. He was then on 3mgs of prednisolone. Suffers a stroke, straight into hospital, they operate and clean up a...

My overactive cousin just updated me of his 2021. He was then on 3mgs of prednis...

DavidMF

•2 years ago

2 Replies

Statins

Taking 9 mg at the moment and seems under control. Nurse practitioner wants me to go on statins although my bloods were ok. In 69. What do you think. Feel I’m...

Taking 9 mg at the moment and seems under control. Nurse practitioner wants me ...

Iamhappy

•2 years ago

28 Replies

PET/CT scan and horrific increase in PMR pain

I had PET/CT for reasons other than PMR on Friday. SAT, Sun, Mon, Tues, Weds, Thurs so far following this PMR is awful. Screaming muscles...stiffness...

I had PET/CT for reasons other than PMR on Friday. SAT, Sun, Mon, Tues, Weds, T...

Microbe1943

•2 years ago

26 Replies

Can I recover without steroids?

Are there any posts/stories here on recovery from PMR without steroids? I am about to be officially diagnosed with PMR, knew I had for the last 7 months, but...

Are there any posts/stories here on recovery from PMR without steroids? I am abo...

SLCR

•2 years ago

35 Replies

A Busybody’s Dilemma

I’d like some advice from the forum. Firstly let me say I’m one of those annoying people who diagnoses friends’ medical symptoms. My neighbour and friend has...

I’d like some advice from the forum. Firstly let me say I’m one of those annoyin...

Downbytheriverside

•2 years ago

9 Replies

TCZ question

Does anyone know for how long tocilizumab is effective in the system? I can’t find an answer and am wondering, since I have started spacing my TCZ jabs quite...

Does anyone know for how long tocilizumab is effective in the system? I can’t f...

LemonZest11

•2 years ago

17 Replies

Botox injection

My wife 70 suffering from gca from last 6 months, she is on prednisone 10 mg from 60 mg starting , still she have headache, pressure on eye , neurologist ,dr...

My wife 70 suffering from gca from last 6 months, she is on prednisone 10 mg fr...

Rajuguide

•2 years ago

1 Reply

Neck pain anyone?

My first question for the experts here. I am having neck pain, right side only. I have been going the PT for 4 months and it still bothers me. My rheumy tells...

My first question for the experts here. I am having neck pain, right side only. ...

paleolady

•2 years ago

16 Replies

Interesting

https://www.theguardian.com/science/2022/jan/08/global-spread-of-autoimmune-disease-blamed-on-western-diet

https://www.theguardian.com/science/2022/jan/08/global-spread-of-autoimmune-dise...

jessiem

•2 years ago

15 Replies

Now what?

Not sure what to do.I am struggling with relapses.I got my 3rd vaccine which I felt my inflammation raising so I went to 15mg from 10.That seemed to work til...

Not sure what to do.I am struggling with relapses.I got my 3rd vaccine which I f...

Hunter134

•2 years ago

18 Replies

I General advice please! Pred reducing, side effects etc

Hi everyone. This is my first post. I was diagnosed last August after feeling stiff since June, but I had put it down to my age, although I'm only 55 and...

Hi everyone. This is my first post. I was diagnosed last August after feelin...

Yorkshirewoman

•2 years ago

13 Replies

What would be a good Prednisolone restarting dose ?

I have been off Prednisolone for 7 months now after 16 months of a slow taper since Feb 2020. Symptoms restarted shortly after stopping and I have a blood test...

I have been off Prednisolone for 7 months now after 16 months of a slow taper si...

Louisnhoe

•2 years ago

10 Replies

Shout out to my GP

I am so sorry for those of you who do not have a positive experience with your GP, since the start of this journey mine have been brilliant, immediate...

I am so sorry for those of you who do not have a positive experience with your G...

Billiebobdog

•2 years ago

48 Replies

Regarding PMR and trial and error tips from meds to sleep.

Hi, just new to this forum and sio far from what I have read through I am glad I found this site. I am 64 and just new to PMR, diagnosed in October. We have a...

Hi, just new to this forum and sio far from what I have read through I am glad I...

TheVortex

•2 years ago

40 Replies

How to restart unresponsive adrenals?

Long term (12yrs) steroid user (Betamethasone now and Prednisolone at the start) for Asthma. I have Steroid induced Type-2 diabetes and high blood pressure...

Long term (12yrs) steroid user (Betamethasone now and Prednisolone at the start)...

ThatsMeStuffed

•2 years ago

12 Replies

Tapering

When I had PMR a few years ago I tapered and came off pred with the slow stop type thing and managed well ( obviously took ages) This time when my Pmr has been...

When I had PMR a few years ago I tapered and came off pred with the slow stop ty...

Booge_15

•2 years ago

2 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2022

Hospitalised for 15 weeks

PMR Flare-up after an increase in Pred dose

PMR and keeping physically active

Timing is Everything.....Not when it comes to a Diabetic husband who is Covid Positive, thoughts please!

A big thank you to all pmr sufferers who have supported me.

Injections for bursitus

Preds during and after operation.

Methotrexate and PMR Help

PMR, RA or ??? any advice?

Timing of Prednisone seems to be important

Post script to flare in reducing pred

Flare on Reducing pred

It's Good to talk

Fed up with tablets

Has PMR Returned

Statins

PET/CT scan and horrific increase in PMR pain

Can I recover without steroids?

A Busybody’s Dilemma

TCZ question

Botox injection

Neck pain anyone?

Interesting

Now what?

I General advice please! Pred reducing, side effects etc

What would be a good Prednisolone restarting dose ?

Shout out to my GP

Regarding PMR and trial and error tips from meds to sleep.

How to restart unresponsive adrenals?

Tapering

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