PMR HAIR: Every morning I wake up with scary hair... - PMRGCAuk

PMRGCAuk

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PMR HAIR

remission profile image
24 Replies

Every morning I wake up with scary hair, it is standing right up on end and all over.

Is this a symptom of PMR or age or is anyone having this issue and are you

able to resolve it; for me it has meant a shower every morning to tame it down and my hair is thinning so that has not been the best answer. I also tried dry shampoo spray, but not very successful

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remission profile image
remission
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24 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Have a look at this -

healthunlocked.com/pmrgcauk...

.. or this -

healthunlocked.com/pmrgcauk...

or related posts...much discussed on here.

remission profile image
remission in reply to DorsetLady

thankyou, that was a very informative site...tks

Mcdurmott profile image
Mcdurmott in reply to DorsetLady

Great article, DorsetLady . Thanks!

Kendrew profile image
Kendrew in reply to DorsetLady

Have looked at this before when you've previously pointed someone towards it and found it really helpful again. Good to refresh my memory regarding one or two things...and also to reassure me! Thanks DL.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Kendrew

Good…hope you’re okay.

Kendrew profile image
Kendrew in reply to DorsetLady

Doing ok...I think! 😄 Seeing rheumatologist on thu. Unfortunately, I'm thinking my urticaria rash may be vascular related as although significantly better, my skin still has pink patches that aren't fully healed....almost like some of the worst affected areas that were raised have left a pink discolouration on skin. When I went from 5dys on 30mg back down to my 6mg, rash appeared to re-emerge. So my GP has spoken to rheumatologist and I'm on 25mg for 5dys and drop 5mg every 5dys until 10mg and then slow taper from thereon. Also to continue with antihistamines. Does seem to be working more effectively and each day there's further improvement. There's always something isn't there?

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Kendrew

Unfortunately there does seem to be….🤦🏻‍♀️

piglette profile image
piglette

My hair became very dry and hay stack like. My hairdresser cut it very short from its normal shoulder length. It looked really funky although it was in rubbish condition.

Selfbuilder profile image
Selfbuilder in reply to piglette

I like your style (😉). Sometimes going with the flow is better than struggling against it.

SheffieldJane profile image
SheffieldJane

Our hair certainly changes in thickness and texture. I bought some crocheted hairnets and used them for a while - glamorous! I also like Kevin Murphy’s hair products - there is a terrific range for all manner of hair issues. As soon as you’ve solved it, it changes. I had lovely Prednisalone curls for a long time, it was fun for me with normally poker straight hair - they’ve all gone now and I’m considering a bob again.

remission profile image
remission in reply to SheffieldJane

thanks for the information, this site has been so amazing

whitefishbay profile image
whitefishbay

Tricky because some of the conditioning shampoos makes your hair dry but oily. I did a deep conditioning and that helped but it passed. Must also be part of aging (another depressing fact). I suppose we are lucky if we have hair.

keeptalking profile image
keeptalking

I’m sure that wearing a winter bobble hat is causing my limp lifeless hair. Could this be contributing to yours?

KerryIreland profile image
KerryIreland

I found that shampoo Olaplex No. 4 helped a lot. (Bought from my hairdresser but you can get it online).

remission profile image
remission

Thanks to everyone for their help

ChrisinNam profile image
ChrisinNam

My normally greasy hair has become extremely dry and "fly-away". A very helpful "colleague" in Tesco pointed me towards a relatively expensive oil called Argan Oil of Morocco. Works like a charm on my hair.

singingloud profile image
singingloud

How high is your dose of prednisone? My hair fell out and was so thin when I was above 15mg. I spent $100.00 on special shampoo, conditioner and another treatment to stop from losing it all. It helped but it still was so wirey and corse. Then it came in with even more waves and loves to stand up after sleeping. My cpap and night sweats don’t help so I too have to shower every day or wear a hat to cover it up.

arvine profile image
arvine in reply to singingloud

I am having same problem, thinning hair, finding all over the place, on waking hair is sticking to sides of head, and sticking up like crazy, and I am now on much lower pred, between 4 and 5mgs, but have been on pred since 2016 and started off at 40 mgs, so why now is my question?

singingloud profile image
singingloud in reply to arvine

Any new stresses in your life?

arvine profile image
arvine in reply to singingloud

well have had ongoing stresses for long time, but couple have come to mind , yes, going to check with dr about B6 and or biotin, although he is not very interested or on board with vitamins

remission profile image
remission in reply to singingloud

no, pretty much the same stresses

remission profile image
remission in reply to singingloud

My hair started falling out when I was around 15 mg of prednisone and I asked my doc if that was due to the pred and she assured me it wasn’t, that it was stress frm my condition causing it, so I left it for awhile and then thanks to this site found out it was all too common for those on pred. So I started using minoxidil and it worked for me. My doctor is very young and so wasn’t totally convinced when she said the usual, “PMR last only one to two years”…and she convinced me to ween off which I did at the two year mark and now I take a naproxen every three days and that manages the stiffness , my doc said the PMR is gone but I developed arthritis…

Nightingales profile image
Nightingales

My hair has completely changed, always fine but lots of it, now whispy and very thin. I have started on Biotin, I am aware of it’s effects on lab tests. My hairdresser told me to do conditioning hair masks and not wash as much and I thinking has helped.

remission profile image
remission in reply to Nightingales

Only thing I found stop the hair from falling out was minoxidil

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