Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,234 posts

All posts for December 2021

Interesting paper on controlling Adrenal deficiency.

Interesting but complex paper on new methods to deliver dosage with a closer fit to the circadian cycle. Note in healthy individuals the amount of cortisol...

Interesting but complex paper on new methods to deliver dosage with a closer fit...

Exflex

•3 years ago

28 Replies

PMR BACK AFTER 4 YEARS

All the symptoms of PMR have been slowly returning so I know this is a flare up. The doctor arranged blood tests and my inflammation markers were not hugely...

All the symptoms of PMR have been slowly returning so I know this is a flare up....

Patricia10

•3 years ago

40 Replies

Starting tocilizumab

I had my first shot of TCZ this morning (10 hours ago). 45 minutes later I started to feel lousy, dizzy etc. I'm slowly getting better now. Is this anyone...

I had my first shot of TCZ this morning (10 hours ago). 45 minutes later I start...

Sharitone

•3 years ago

20 Replies

Want to take advantage of all our features? Just log in!

Ball of fire in left 'butt'.... any ideas for relief?

A few days ago, my left buttock became sore and it has graduated to a 10. I'm feeling good....and have now dropped pred to 17.5~!!! BUT....this ball of fire...

A few days ago, my left buttock became sore and it has graduated to a 10. I'm f...

Grammy80

•3 years ago

34 Replies

Eye update

I was back with my ophthalmologist yesterday and, happily, by pressures have reduced from a whopping 32 down to 22 (which is just 1 above the tope end of...

I was back with my ophthalmologist yesterday and, happily, by pressures have red...

Flivoless

•3 years ago

12 Replies

New look for PMRGCAuk forum

Dear members of our PMRGCAuk forum. Over the next few days, the banner that you see at the top of the page - which is our old PMRGCAuk branding and artwork -...

Dear members of our PMRGCAuk forum. Over the next few days, the banner that you ...

Fran_Benson

Partner•3 years ago

18 Replies

Join the Virus Watch project ( in the UK)

Anyone in the UK can join the “Virus Watch” research project (coordinated by University College London). Here is the link/ web address...

Anyone in the UK can join the “Virus Watch” research project (coordinated by Uni...

Suzita76

•3 years ago

14 Replies

Prednisolone

Does anyone know if you can stop taking prednisolone if you have taken it for 13 years?

Does anyone know if you can stop taking prednisolone if you have taken it for 13...

Josephinem

•3 years ago

11 Replies

confused over test results and my general health.

I have just rejoined. I had PMR from March 2020 and recovered by April 2021. I tapered from 15 mgs of pred to zero over 10 months. ( I accept this is an...

I have just rejoined. I had PMR from March 2020 and recovered by April 2021. I t...

Hidden

•3 years ago

5 Replies

Saw rheumatologist

Saw rheumatologist last night and was impressed, he wasn't 100% sure I had PMR but would do lots of test to get to the bottom of things for me as I'm finding...

Saw rheumatologist last night and was impressed, he wasn't 100% sure I had PMR ...

Bling123

•3 years ago

6 Replies

Does anyone know whether I will experience steroid withdrawal even though I’m on tocilizumab?

I have tapered down (from 40mg) to 5mg pred. I began a course of weekly TCZ injections 8 weeks ago. I need to stop taking the pred. I’m wary as I have...

I have tapered down (from 40mg) to 5mg pred. I began a course of weekly TCZ inj...

Erikaknitssocks

•3 years ago

4 Replies

Dry Eyes

After two and a half years with PMR I am now on 7 mg of pred but have just recently developed extremely dry eyes. I wake up in the middle of the night with a...

After two and a half years with PMR I am now on 7 mg of pred but have just recen...

Elor

•3 years ago

53 Replies

Bruising

My skin is like paper since I am pred now down to 5 I bleed with every little knock my legs and arms are all bruised which do not go away, has anyone else got...

My skin is like paper since I am pred now down to 5 I bleed with every little kn...

Ttypoo

•3 years ago

33 Replies

Managing flares

Diagnosed 6 months ago. Started on 15 mg and slowly reduced to 8mg. Had massive flare and had to increase the dose. 2 weeks ago started back on15 mg. Not...

Diagnosed 6 months ago. Started on 15 mg and slowly reduced to 8mg. Had massive ...

Paul76

•3 years ago

11 Replies

Covid positive

Diagnosed pmr in May. Started on 15mg prednisolone. Got down to 9mg last week . Yesterday I tested positive for covid. Already on antibiotics for a chest...

Diagnosed pmr in May. Started on 15mg prednisolone. Got down to 9mg last week ....

WOLFETTE

•3 years ago

14 Replies

What now!!

I have been having regular ocular migraines and this morning while walking the dog I had the worst dizzy attack ever. I couldn’t focus on anything and if my...

I have been having regular ocular migraines and this morning while walking the d...

AnniesRyder5

•3 years ago

17 Replies

Booster effects

Has anyone else’s PMR got worse since they had the COVID booster, mine is just like at the beginning of 2014 when I was first diagnosed. I am currently on 6mg...

Has anyone else’s PMR got worse since they had the COVID booster, mine is just l...

Daisyharper

•3 years ago

47 Replies

Missed dose

Hi all, somehow I forgot to take pred yesterday I'm on 6mg, do I take as normal today thanks

Hi all, somehow I forgot to take pred yesterday I'm on 6mg, do I take as normal...

Hidden

•3 years ago

5 Replies

Blood Analyses

Good news, just got my blood workup back: Before taking 2.25mg Prednisone Morning Basal Cortisol: 12.1 mcg/dL Acceptable range: 4.0 - 22.0 mcg/dL Taking...

Good news, just got my blood workup back: Before taking 2.25mg Prednisone Morn...

Boss302Fan

•3 years ago

3 Replies

I am new here: possible GCA

I have had a vein pain on the left side of my brain for a while. I mentioned it to an eye doctor and to a vascular doctor who is treating me for varicose...

I have had a vein pain on the left side of my brain for a while. I mentioned it ...

Elizabeth55

•3 years ago

24 Replies

Still very breathless.

Hi everyone Feeling very worried as the breathlessness I was experiencing walking upstairs seems to be extending to any sort of activity other than sitting...

Hi everyone Feeling very worried as the breathlessness I was experiencing walkin...

Daisymaud

•3 years ago

16 Replies

Thankful and blesses

We celebrated our annual Thanksgiving Holiday here in the US last month, and I celebrated a personal victory in being able to complete a 5K race in Cocoa Beach...

We celebrated our annual Thanksgiving Holiday here in the US last month, and I c...

CrazyRunner

•3 years ago

11 Replies

Just a thought

Given that Traditional Chinese medicine is the oldest, continually used system of medicine in the world, I wonder what traditional treatment is recommended for...

Given that Traditional Chinese medicine is the oldest, continually used system o...

Flivoless

•3 years ago

10 Replies

Mixing coated and uncoated pred

Another question that I think I have seen the answer to somewhere here but as I have just booked a consultation with the GP I would like to be sure of my...

Another question that I think I have seen the answer to somewhere here but as I ...

Noraflorence

•3 years ago

16 Replies

Stroke as a rare side effect of GCA and PMR

I have read that a Stroke is a rare side effect of GCA and PMR I have a neuro ophthalmologist. Years ago he started scanning behind my eyes and found a small...

I have read that a Stroke is a rare side effect of GCA and PMR I have a neuro op...

Asbeck

•3 years ago

3 Replies

Does pmr ever go away? Does anyone know of anyone that has fully recovered from pmr?

Hello I’ve had pmr now for about 2 3/4 years. I’m currently at 5 mil grams per day. I am noticing that I am getting the start of moon face . I’ve lots of...

Hello I’ve had pmr now for about 2 3/4 years. I’m currently at 5 mil grams per ...

Streetglide18

•3 years ago

50 Replies

What a difference a tablet can make!

Just a quick update almost two weeks ago I took my first prednisolone tablet in a year. This was my third period of zero prednisolone in over 5 years. the...

Just a quick update almost two weeks ago I took my first prednisolone tablet in ...

DevonMichael

•3 years ago

9 Replies

Steroids and hallucinations

Hi everyone, I was diagnosed with PMR at the end of 2018 and put on 25mg of Prednisilone. Within 6 weeks I had fallen (from standing) and broke my hip, arm and...

Hi everyone, I was diagnosed with PMR at the end of 2018 and put on 25mg of Pred...

Morant

•3 years ago

20 Replies

Tummy pain

I have gallbladder issues and have had to change my diet as a result. I have pain in my tummy after hot herbal teas . This has now happened several times ....

I have gallbladder issues and have had to change my diet as a result. I have pa...

Stanca

•3 years ago

14 Replies

Great Message!

This is for all of us wondering if we’ll ever get to the top of our various struggles. My lovely daughter gave me this coaster yesterday as I’m in the middle...

This is for all of us wondering if we’ll ever get to the top of our various stru...

Thelmarina

•3 years ago

4 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for December 2021

Interesting paper on controlling Adrenal deficiency.

PMR BACK AFTER 4 YEARS

Starting tocilizumab

Ball of fire in left 'butt'.... any ideas for relief?

Eye update

New look for PMRGCAuk forum

Join the Virus Watch project ( in the UK)

Prednisolone

confused over test results and my general health.

Saw rheumatologist

Does anyone know whether I will experience steroid withdrawal even though I’m on tocilizumab?

Dry Eyes

Bruising

Managing flares

Covid positive

What now!!

Booster effects

Missed dose

Blood Analyses

I am new here: possible GCA

Still very breathless.

Thankful and blesses

Just a thought

Mixing coated and uncoated pred

Stroke as a rare side effect of GCA and PMR

Does pmr ever go away? Does anyone know of anyone that has fully recovered from pmr?

What a difference a tablet can make!

Steroids and hallucinations

Tummy pain

Great Message!

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