What now!!: I have been having regular ocular... - PMRGCAuk

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What now!!

AnniesRyder5 profile image
17 Replies

I have been having regular ocular migraines and this morning while walking the dog I had the worst dizzy attack ever. I couldn’t focus on anything and if my partner hadn’t provided a leaning post I would definitely have fallen

Can anyone advise if this might be PMR related?

Many thanks in anticipation of any responses

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AnniesRyder5 profile image
AnniesRyder5
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17 Replies
jinasc profile image
jinasc

It could be that it is your ears which are a problem. The result of research 8th cranial nerve is in the FAQ section under Your Ears. Might be worth a read?

Boss302Fan profile image
Boss302Fan in reply to jinasc

Isn’t ocular migraines associated with visual disturbance not vertigo induced by movement. I’ve had the later a few times after working under the car for an extended period and stand up quickly after coming out from under. I lay back down on my side and wait for the world to come to a stand-still and cautiously arise.

When I occasionally have an ocular migrane (usually after extended usage of my iPad, once while I was driving and I pulled over) it has disoriented me, but that was due to in addition to having the shimmering ribbon I also had a direct delineation of visual where one side was like swimming under water with my eyes open and the other side unadulterated view. That made me dizzy.

I don’t know if Pred has anything to do with it but don’t think so because the first time I experienced it I wasn’t on Pred and after on Pred the frequency or severity of the attacks (random and unpredictable) has not increased.

jinasc profile image
jinasc in reply to Boss302Fan

You will have noted I said 'could be'.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Have you always been a sufferer of ocular migraines, or are they something new? Since PMR?

Whatever the answer, think they may need checking out…..better safe than sorry.

AnniesRyder5 profile image
AnniesRyder5 in reply to DorsetLady

Thank you and yes the oculars have been bothering me for a couple of years about the same period as PMR

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to AnniesRyder5

Well in that case would be sensible to follow up.

PMRpro profile image
PMRproAmbassador

As jinasc says it is possibly your ears if the PMR is going in the direction of GCA.

But there are all sorts of causes for dizzy spells and it should be reported to your doctor. Even ocular migraines may be a symptom of a more serious underlying problem - have yours been investigated or just taken at face value?

allaboutvision.com/conditio...

AnniesRyder5 profile image
AnniesRyder5 in reply to PMRpro

Thank you - I will try to contact GP 🥴

autumnlass profile image
autumnlass

I’ve had those AnnieRyder5 as well. I went to optometrist to have it checked which I would advise you to do. 🌺

AnniesRyder5 profile image
AnniesRyder5 in reply to autumnlass

Thank you lass

prunus profile image
prunus

Can you elaborate please? Do you mean you have a bad headache behind your eyes or do you mean you have migraine with aura?

AnniesRyder5 profile image
AnniesRyder5 in reply to prunus

I regularly have ocular migraines so yes with aura but the optician told me that it is a common symptom for older people like me!

prunus profile image
prunus in reply to AnniesRyder5

I get migraine with aura(zig zags) but do not have dizziness.

HeronNS profile image
HeronNS in reply to AnniesRyder5

I get ocular migraines without subsequent pain more often these days. In the past they were invariably the precursor to a blinding headache unless I took a painkiller. Separately I've recently been having odd lightheaded episodes, usually, although not always, if I've been walking briskly and have to stop and wait for a walk signal, or similar pause after exercise. My doctor took this seriously and has sent me for a morning cortisol test as initial investigation.

AnniesRyder5 profile image
AnniesRyder5 in reply to HeronNS

That is so interesting and totally resonates with me. Funnily enough I did a longish walk this morning and I’ve been feeling strangely light headed for about an hour. My GP put it down to my age! (73)I will be really interested to learn how your cortisol test turns out.

HeronNS profile image
HeronNS in reply to AnniesRyder5

Well there may be something to it as the only symptom I've had this morning has been an odd sensation of not being really with it, if you know what I mean . Physically I'm fine, better than I was the day after I missed my first dose of pred. I was without pred for nearly 60 hours. I finally took 3.5 over an hour ago, and hoping to feel less detached soon as I'm hoping to get together with some friends I haven't seen for ages this afternoon. They will be sipping tea and scarfing treats while I intend to keep my N95 mask firmly on my face!

AnniesRyder5 profile image
AnniesRyder5

👍🎅

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