Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,030 posts

All posts for November 2021

Prednisone dose !

My wife 71 GCA , started treatment 5 month back with 60 mg Prednisone and weekly actemra, she had little improvement , till 9 mg where she got flare , dr...

My wife 71 GCA , started treatment 5 month back with 60 mg Prednisone and weekl...

Rajuguide

•3 years ago

22 Replies

Stress and tapering -again

Hi all 😊 So, daughter having had baby, and thinking I now mainly had one grandson to look after (other son in law taking a month's paternity leave), I decided...

Hi all 😊 So, daughter having had baby, and thinking I now mainly had one grands...

Nextoneplease

•3 years ago

62 Replies

Colonoscopy

Hi, I’m so worried, I have just been referred for a colonoscopy, and I’m concerned about taking my preds with no food, or not taking them at all. I am...

Hi, I’m so worried, I have just been referred for a colonoscopy, and I’m concern...

Peggy16

•3 years ago

14 Replies

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More good news

Following on from my post a few weeks ago, I had the results of my heart scan last week, which coincided with needing to put in a prescription for my Pred. On...

Following on from my post a few weeks ago, I had the results of my heart scan la...

Bcol

•3 years ago

22 Replies

Has anyone in US have a hard time paying for Actemra?

Rheumatologist wants me to take Actemra because pred is causing too many adverse side effects. No sure how it is in other countries but extremely expensive...

Rheumatologist wants me to take Actemra because pred is causing too many adverse...

nallufl24

•3 years ago

39 Replies

Does stress affect PMR?

My husband has fallen twice down garden steps resulting in severe injuries. He has had a car crash (nobody hurt), but dealing with insurance, repairs etc which...

My husband has fallen twice down garden steps resulting in severe injuries. He h...

Mazxstitch

•3 years ago

11 Replies

Ad-Cal & Thyroxine

I have just been prescibed Ad-Cal which I am supposed to take am and pm. However on the literature it says that if I am taking Thyroxine to leave 4 hours...

I have just been prescibed Ad-Cal which I am supposed to take am and pm. Howeve...

Rymer

•3 years ago

18 Replies

Some help with Tapering please

Finally convinced Rheumatologist its PMR as my ESR and CRP are normal. It seems it is possible in some people. However all the symptoms of PMR (my mother has...

Finally convinced Rheumatologist its PMR as my ESR and CRP are normal. It seems...

Brock11

•3 years ago

9 Replies

Crying and GCA

Hi, I’m new here - only found this forum today! I have GCA which was diagnosed through an extremely tender, swollen temple, which responded very well to...

Hi, I’m new here - only found this forum today! I have GCA which was diagnosed t...

Octi

•3 years ago

29 Replies

PMR for roughly 18 years.

New to this Forum so Hello to all...... I am a 84 year married male in Australia.... Hoping one day to get rid of this disease......... Took a...

New to this Forum so Hello to all...... I am a 84 year married male in Australia...

billydownunder

•3 years ago

8 Replies

Oat milk

I’ve been drinking oat milk as it seems to help with carb cravings but have now been told that it’s super bad for blood sugar levels. Having googled it there...

I’ve been drinking oat milk as it seems to help with carb cravings but have now ...

Hidden

•3 years ago

28 Replies

Methotrexate 6weeks on

Just had my 6 week review on Methotrexate. Everything okay at the moment, only noticeable sides effects so far is waking up an hour earlier every day and more...

Just had my 6 week review on Methotrexate. Everything okay at the moment, only n...

Abbey17

•3 years ago

4 Replies

Can a soft tissue injury exacerbate PMR symptoms?

Seeking a bit of guidance from you lovely people - I injured my left tricep on Monday afternoon and went to A&E on Tuesday as the pain was unbearable. No bones...

Seeking a bit of guidance from you lovely people - I injured my left tricep on M...

Horsewhisper

•3 years ago

17 Replies

I found this to be a clear, comprehensive article on GCA from diagnosis to maintenance. The Occult GCA detail is interesting.

See link: http://webeye.ophth.uiowa.edu/eyeforum/article/gca/index.htm Apologies if we have seen it. I do not recall.

See link: http://webeye.ophth.uiowa.edu/eyeforum/article/gca/index.htm Apologie...

SheffieldJane

•3 years ago

13 Replies

Reluctantly returning to GCA

Hi all : I am 60 and two weeks ago experienced transient vision loss in my right eye. Episodes of 2-3 minutes of blindness in that eye happened 8-9 times,...

Hi all : I am 60 and two weeks ago experienced transient vision loss in my right...

GCAfiveyearrelapse

•3 years ago

5 Replies

Handled a flare all on my own

Probably old hat for all you pros out there, but I was very pleased with myself for handling a flare all on my own. I had had 2 before, but didn't really know...

Probably old hat for all you pros out there, but I was very pleased with myself ...

winfong

•3 years ago

3 Replies

Outcomes of COVID-19 in patients with primary systemic vasculitis or PMR

Someone asked about this recently - so I thought I would pass on this link I was sent by my research group recently:...

Someone asked about this recently - so I thought I would pass on this link I was...

PMRpro

Ambassador•3 years ago

8 Replies

Vitamin K2

I’ve started taking vitamin K2 as I already take Accrete D3. Just wondering if I should take them together or separately. I read somewhere that you should take...

I’ve started taking vitamin K2 as I already take Accrete D3. Just wondering if I...

Suzan62

•3 years ago

13 Replies

Finally off Pred

I am writing this post as I commented on a post that was 5 years old and I wasn't aware, a few people have asked me to start a new post regarding that last...

I am writing this post as I commented on a post that was 5 years old and I wasn'...

Tillylosh2021

•3 years ago

23 Replies

Smell

Anybody have noticed things smell odd !

Uglow

•3 years ago

34 Replies

Hi change time of taking pted

Hi I want to change time I take pre from 10 pm to 9 am shall I split first dose 7 tonight 6 in morning then cart on as normal next morning or will it be...

Hi I want to change time I take pre from 10 pm to 9 am shall I split first dose ...

Uglow

•3 years ago

6 Replies

Sick day rules and the covid booster

I recently was ill. A week of headaches, then whole body aches and chills, (no fever or cough), and had to stay in bed for three days. After the first day in...

I recently was ill. A week of headaches, then whole body aches and chills, (no ...

misspops

•3 years ago

7 Replies

Do I have to go up to 60mg pred again?

I started with 60 mg pred in July 2021. Even though I had many side effects from steroids, I did not have any more symptoms of GCA until I tapered to 10. I...

I started with 60 mg pred in July 2021. Even though I had many side effects from...

nallufl24

•3 years ago

12 Replies

Lower back pain and stiffness

2019 diagnosed with GCA, 45mg Pred tapering down to 4mg over the year and no return symptoms of GCA but PMR developed so back to 15mg in 2020 and slow taper...

2019 diagnosed with GCA, 45mg Pred tapering down to 4mg over the year and no re...

oscarandchloe

•3 years ago

7 Replies

Latest Rheumy appointment

I had my appointment yesterday and it went pretty much as I expected. It started out about how long I’d been on steroids and him saying my CRP levels are in...

I had my appointment yesterday and it went pretty much as I expected. It started...

Griggser

•3 years ago

47 Replies

GP gave me a sensible stamp lol…

Was called into see my GP ‘to review my medication’. My translation of that was ‘why have you not reduced your Prednisolone more?’. I couldn’t see the GP that...

Was called into see my GP ‘to review my medication’. My translation of that was...

Spittal9

•3 years ago

14 Replies

I've been absent too long, beginning to feel human~LONG

Have you ever heard of someone dropping 20 mg of prednisone in three weeks? Well, that is what I've been doing, and I'm just seeing the light and feeling...

Have you ever heard of someone dropping 20 mg of prednisone in three weeks? Well...

Grammy80

•3 years ago

26 Replies

Blooming steroids!

Prior to PMR diagnosis 18 months ago I was pretty healthy, But the steroids do seem to have trashed me a bit. I had an eye test the other day & the optician...

Prior to PMR diagnosis 18 months ago I was pretty healthy, But the steroids do s...

Doraflora

•3 years ago

19 Replies

Back pain

Hi all having trouble with back pain left side just below waist seem to get this quite often can't remember doing anything but very painful. On 6mg of pred at...

Hi all having trouble with back pain left side just below waist seem to get this...

Snnib

•3 years ago

4 Replies

Fasting 10 hours before blood test.

I’m due for a blood test tomorrow morning at 8 am and should fast for 10 hours beforehand. I take pred at 2am with yoghurt, which means by 8 am, I have...

I’m due for a blood test tomorrow morning at 8 am and should fast for 10 hours b...

Prahran

•3 years ago

5 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2021

Prednisone dose !

Stress and tapering -again

Colonoscopy

More good news

Has anyone in US have a hard time paying for Actemra?

Does stress affect PMR?

Ad-Cal & Thyroxine

Some help with Tapering please

Crying and GCA

PMR for roughly 18 years.

Oat milk

Methotrexate 6weeks on

Can a soft tissue injury exacerbate PMR symptoms?

I found this to be a clear, comprehensive article on GCA from diagnosis to maintenance. The Occult GCA detail is interesting.

Reluctantly returning to GCA

Handled a flare all on my own

Outcomes of COVID-19 in patients with primary systemic vasculitis or PMR

Vitamin K2

Finally off Pred

Smell

Hi change time of taking pted

Sick day rules and the covid booster

Do I have to go up to 60mg pred again?

Lower back pain and stiffness

Latest Rheumy appointment

GP gave me a sensible stamp lol…

I've been absent too long, beginning to feel human~LONG

Blooming steroids!

Back pain

Fasting 10 hours before blood test.

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