Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for November 2021

Rheumatologist appointment

I have been referred to rheumatologist and had to make my own appointment from a choice of 4 hospitals and the nearest date was end of February. As this site...

I have been referred to rheumatologist and had to make my own appointment from a...

Bling123

•2 years ago

27 Replies

Any suggestions to help ease pls

Morning I’ve been struggling with flare for good few weeks upped pred am stress but get cold shivers at night struggle sleep turning or trying

Morning I’ve been struggling with flare for good few weeks upped pred am stres...

Sasol

•2 years ago

10 Replies

Update on my diagnosis.

Hi all, I’ve been very grateful for your support since June. I thought I’d give an update on my condition. After many scans and tests, my new rheumatologist...

Hi all, I’ve been very grateful for your support since June. I thought I’d give ...

Smallstepsforward

•2 years ago

12 Replies

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OOOps, I took extra prednisone by mistake.

By mistake I doubled my prednisone today. I take 7mg prednisone for PMR (3 years) every morning, and instead of taking my vitamin group this afternoon I took...

By mistake I doubled my prednisone today. I take 7mg prednisone for PMR (3 years...

Neck680

•2 years ago

28 Replies

Tapering while suffering with shingles?

Was recently hospitalized for asthma in October and put on mega doses of steroids. When I came down to 12 1/2 I parked. I started to reduce a half a milligram...

Was recently hospitalized for asthma in October and put on mega doses of steroid...

Karenjaninaz

•2 years ago

8 Replies

A grammar question for my new friends across the pond

Forgive me for asking. This is soooo unimportant compared with our real problems. I’m reading conversations and find my terminology lacking. What is a Practice...

Forgive me for asking. This is soooo unimportant compared with our real problems...

FohFoh

•2 years ago

79 Replies

Increased Prednisolone- affect on blood sugar?

Sorry, this seems to be my day for asking questions. I increased my Prednisolone from 8mg to 10mg three weeks ago due to a bad flare. The pain and aching are...

Sorry, this seems to be my day for asking questions. I increased my Prednisolon...

Tiggy70

•2 years ago

20 Replies

Timing of taking steroids when traveling through time zones

In 4 weeks time (fingers crossed and Covid permitting) I will be traveling from the UK to Pennsylvania US to spend Christmas with my son and his family. I am...

In 4 weeks time (fingers crossed and Covid permitting) I will be traveling from ...

Tiggy70

•2 years ago

28 Replies

Struggling with flare up

I was diagnosed with PMR in May. Started on 15mgs of pred and successfully tapered to 8mgs by Oct. Now experiencing a massive flare and have gone up to 12.5mgs...

I was diagnosed with PMR in May. Started on 15mgs of pred and successfully taper...

Paul76

•2 years ago

2 Replies

Immune amnesia

The following article discusses the effect of measles on the immune system, causing the body to ‘kill off‘ most if not all of the previously acquired immunity...

The following article discusses the effect of measles on the immune system, caus...

Exflex

•2 years ago

5 Replies

Headaches and fainting

I was diagnosed with PMR in Feb 2020 and started on 20mg of Prenisolone. I have been reducing every 2 months and am now on 3mg. I have in the past few weeks...

I was diagnosed with PMR in Feb 2020 and started on 20mg of Prenisolone. I have...

Simplewish

•2 years ago

21 Replies

Hubby constant sleeping

I wrote 6 days ago asking for advice as my husband age 63, had had covid and was sleeping loads and no energy. Yesterday 18 days since his positive test, after...

I wrote 6 days ago asking for advice as my husband age 63, had had covid and was...

Hollieby

•2 years ago

16 Replies

Break from Tocilizumab and now problem with tapering

Hi, I was advised to stop taking my weekly Tocilizumab for one week when I had shingles, then 2 weeks later (after 3rd Covid vaccination followed by flu jab)...

Hi, I was advised to stop taking my weekly Tocilizumab for one week when I had s...

PastelsinArt

•2 years ago

4 Replies

Flare advice

Started on 15mg January 21 and been reducing slowly using one of the slow tapering. Got down to 5mg and now extreme pain in one shoulder and arm. Upped the...

Started on 15mg January 21 and been reducing slowly using one of the slow taper...

UmiMck

•2 years ago

7 Replies

Help

I take my pred at 9 am I forgot and took tonight again what shall I do!

Uglow

•2 years ago

9 Replies

Tapering

Can you direct me to the tapering plans on the site please DevonLady. Lost them. Also after 8 weeks on 9mg prednisolone and low inflammation markers on blood...

Can you direct me to the tapering plans on the site please DevonLady. Lost them....

Crommie

•2 years ago

10 Replies

Omeprazole

Omeprazole has been added to my prescription - so far I haven't taken it as I'd rather take as few medications as possible. It seems to be recommended with...

Omeprazole has been added to my prescription - so far I haven't taken it as I'd ...

Miserere

•2 years ago

31 Replies

My lovely wife Sue has died…

After 14+ years of Alzheimer’s Disease Sue caught a chest infection - 5 days later she died peacefully in her Carehome a week ago. The last 6 months were so...

After 14+ years of Alzheimer’s Disease Sue caught a chest infection - 5 days la...

Hopingsail

•2 years ago

77 Replies

What is the best time to take prednisone for PMR

What is the best time to take prednisone for PMR?

Twitchi

•2 years ago

32 Replies

Information re Vit D 3 Folks may find this interesting/helpful

https://www.youtube.com/watch?v=fbGug3rczx4&t=4s https://www.youtube.com/watch?v=V5g9AVqRsjo

https://www.youtube.com/watch?v=fbGug3rczx4&t=4s https://www.youtube.com/watch?...

sennetta

•2 years ago

11 Replies

Knee replacements - maybe TMI but if you are really interested ...

On Nov 18th at 1.05am I recorded a repeat of a programme on Channel 5: Minute By Minute. Medical documentary series. Highlights of an operation to remove the...

On Nov 18th at 1.05am I recorded a repeat of a programme on Channel 5: Minute By...

PMRpro

Ambassador•2 years ago

32 Replies

Tapering help !!

Hello all. I was put on 60mg of Prednisolone in July because of suspected GCA and PMR. GP reduced it to 30mg in one go but a week later I saw the...

Hello all. I was put on 60mg of Prednisolone in July because of suspected GCA an...

tiggersue

•2 years ago

42 Replies

Chronic Fatigue Service

I had a call from the Chronic Fatigue service yesterday, making an appointment for a phone assessment today. Forty-eight minutes of questions, and he...

I had a call from the Chronic Fatigue service yesterday, making an appointment f...

ChrisinNam

•2 years ago

19 Replies

Back to the prednisolone drawing board!

Well, I thought I had made it. Counting off the weeks since November 2020 I was heading for a year of zero prednisolone but it was not to be. The past 6-8...

Well, I thought I had made it. Counting off the weeks since November 2020 I was ...

DevonMichael

•2 years ago

12 Replies

Is it really PMR? Things that might present looking like PMR:

I thought people might like to read this summary article - it isn't always PMR ......

I thought people might like to read this summary article - it isn't always PMR ....

PMRpro

Ambassador•2 years ago

15 Replies

Flares and dose increases

After 4/5 days on 10mg from 41/2 I still have some pain. Should i have gone up further?? I wrote here a few days ago and to advice on increasing 5 MGS from...

After 4/5 days on 10mg from 41/2 I still have some pain. Should i have gone up f...

grannyouch

•2 years ago

10 Replies

A little light shed on the confusion of 3rd/booster jabs.

A friend just posted this on the LupusUK forum and I thought given all the posts we had you might like to read it:...

A friend just posted this on the LupusUK forum and I thought given all the posts...

PMRpro

Ambassador•2 years ago

53 Replies

ECHO Cardiagram.

Hi lovely people sorry if this has been posted , going swimming now but just got appointment for hospital and I've to have echo Cardiagram just wondering how...

Hi lovely people sorry if this has been posted , going swimming now but just got...

Harrywogan

•2 years ago

23 Replies

On the positive side

Hi all After a rather horrible 2 and a bit years, I am finally feeling on the better side. I have been reading every one's posts and I am aways astounded by...

Hi all After a rather horrible 2 and a bit years, I am finally feeling on the b...

Hiibilly

•2 years ago

25 Replies

Wear your masks. And keep your distance ... Reinforcing the Covid lesson

https://www.theguardian.com/world/2021/nov/17/wearing-masks-single-most-effective-way-to-tackle-covid-study-finds A global study has found that wearing masks...

https://www.theguardian.com/world/2021/nov/17/wearing-masks-single-most-effectiv...

PMRpro

Ambassador•2 years ago

67 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2021

Rheumatologist appointment

Any suggestions to help ease pls

Update on my diagnosis.

OOOps, I took extra prednisone by mistake.

Tapering while suffering with shingles?

A grammar question for my new friends across the pond

Increased Prednisolone- affect on blood sugar?

Timing of taking steroids when traveling through time zones

Struggling with flare up

Immune amnesia

Headaches and fainting

Hubby constant sleeping

Break from Tocilizumab and now problem with tapering

Flare advice

Help

Tapering

Omeprazole

My lovely wife Sue has died…

What is the best time to take prednisone for PMR

Information re Vit D 3 Folks may find this interesting/helpful

Knee replacements - maybe TMI but if you are really interested ...

Tapering help !!

Chronic Fatigue Service

Back to the prednisolone drawing board!

Is it really PMR? Things that might present looking like PMR:

Flares and dose increases

A little light shed on the confusion of 3rd/booster jabs.

ECHO Cardiagram.

On the positive side

Wear your masks. And keep your distance ... Reinforcing the Covid lesson

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