Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,027 posts

All posts for September 2021

Visit to rheumy today re: vision loss GCA

I'd put so much deep thought into the decision of whether I should choose sight or steroids; I chose sight. Today I had my visit with the rheumatologist and...

I'd put so much deep thought into the decision of whether I should choose sight ...

Grammy80

•3 years ago

23 Replies

Adrenal glands a factor?

Adrenal glands

Collsie77

•3 years ago

17 Replies

Probiotic advice please

Currently on a slow taper from 7.5 to 7. Was wondering if it would be beneficial to take Actimel as it contains vitamin B6 which supposedly boosts the...

Currently on a slow taper from 7.5 to 7. Was wondering if it would be benefici...

Vidag

•3 years ago

6 Replies

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PMR and covid booster

I recently got my pfeizer covid booster. I had symptoms after the shot similar to PMR symptoms. No temperature but I felt very bad all over. About an hour...

I recently got my pfeizer covid booster. I had symptoms after the shot similar t...

Boyd0222

•3 years ago

7 Replies

Lower back pain

Thank you everyone who replied to my post. I am totally at a loss what it could be. Hoping it is not PMR. Will report back after my xray. All I know is it is...

Thank you everyone who replied to my post. I am totally at a loss what it could ...

Crommie

•3 years ago

2 Replies

Sodium

My rheumatologist is not happy with my sodium level. Can anyone tell me if taking Movicol affects this?

My rheumatologist is not happy with my sodium level. Can anyone tell me if takin...

prunus

•3 years ago

11 Replies

Heart rate and steroids

Has anyone else experienced an increase in heart rate whilst on steroids? Is this normal? This is not constant but in general the rate is higher than usual.

Has anyone else experienced an increase in heart rate whilst on steroids? Is th...

Ana-16

•3 years ago

29 Replies

PMR AND VACCINE RESPONSE

prednisone started in November 2020. began at 20 mg. down to 6 mg a week ago. however issues started again so have put myself up to 11 mg. so far so good....

prednisone started in November 2020. began at 20 mg. down to 6 mg a week ago. ...

icu2

•3 years ago

2 Replies

CRP numbers when reducing prednisone

I would be interested to know what are your CRP numbers when you are on 5MG of prednisone or less. Mine originally, when diagnosed was 87, then 12 and...

I would be interested to know what are your CRP numbers when you are on 5MG of p...

Plains

•3 years ago

3 Replies

GCA diagnosis

I have lower back pain and stiffness mainly on the right side. This came on approximately two weeks ago and is slowly getting worse. Cannot walk properly and...

I have lower back pain and stiffness mainly on the right side. This came on appr...

Crommie

•3 years ago

33 Replies

Superior Limbic Keratoconjunctivitis

Went to see my Consultant Ophthalmologist today (great chap who sorted my floaters, which were the size of icebergs, a couple of years ago and said that I...

Went to see my Consultant Ophthalmologist today (great chap who sorted my floate...

Flivoless

•3 years ago

7 Replies

Prednisone and hydroxychloroquine together for PMR?

I can’t get below 5.5 mg prednisone daily without reoccurring pain. Has anyone had success with taking hydroxychloroquine as a steroid sparing option? Any...

I can’t get below 5.5 mg prednisone daily without reoccurring pain. Has anyone h...

Macadoo

•3 years ago

6 Replies

So close and yet so far!

After 3 years on prednisolone for PMR you will all know how happy I was to be down to 1 mg a day. Nearly a year of yo-yo ing between 8 and 3, finally my body...

After 3 years on prednisolone for PMR you will all know how happy I was to be do...

angiek

•3 years ago

17 Replies

Slow tapering of prednisone

Hi, I’ve also been slowly tapering my prednisone. My rheumatologist is very good, her response was to treat patients as individuals and not one size fits all,...

Hi, I’ve also been slowly tapering my prednisone. My rheumatologist is very good...

Golden20

•3 years ago

9 Replies

Here we go again?

I was diagnosed in September of 2017 with PMR and started on 20mg of prednisone. Finally after a very slow taper I got to zero in July. For a while all was ok....

I was diagnosed in September of 2017 with PMR and started on 20mg of prednisone....

Lanakay

•3 years ago

6 Replies

Should I up pred?

We’re off on a 7 night cruise at the weekend- no ports just scenic cruising. I’ve been really looking forward to it but I’m wondering whether I need to up my...

We’re off on a 7 night cruise at the weekend- no ports just scenic cruising. I’v...

Decsgran

•3 years ago

16 Replies

ThIn Skinned

Update. Nurse cleaned and dressed my skinned shin sore. She used a silver dressing which promotes healing and deals with infection. I have to return on...

Update. Nurse cleaned and dressed my skinned shin sore. She used a silver dressi...

jules1955

•3 years ago

25 Replies

Tendon inflammation ??

Having been taking steroids now since my PMR diagnosis March 2016 - feels like forever - I am now dealing with pains I’ve not really had before. Nothing new...

Having been taking steroids now since my PMR diagnosis March 2016 - feels like f...

Lochy

•3 years ago

29 Replies

Lots of strange symptoms?

Hi again All. Since last writing I have developed a lot of strange symptoms which I have never experienced before. I am not sure if they are down to PMR or...

Hi again All. Since last writing I have developed a lot of strange symptoms whic...

ValleysBoy

•3 years ago

13 Replies

Upped my dose and

Wasn't sure whether to post this here but decided to just incase others have some opinions. Off to see the Dr in an hour with a long list. It doesn't sit well...

Wasn't sure whether to post this here but decided to just incase others have som...

IdasMum

•3 years ago

18 Replies

A Good Morning

Good morning - I thought I would write a positive post here because I am feeling quite cheerful. I had PMR 10 years ago when I was in my mid-sixties and...

Good morning - I thought I would write a positive post here because I am feeling...

Rawnie

•3 years ago

18 Replies

Bloomin' flare....How to decrease pred?

Hi all. What a year - moved house in Feb and had a flare d- that was coped with very easily - upped by 5mg for a week then 2 days each 1mg reduction down to 2....

Hi all. What a year - moved house in Feb and had a flare d- that was coped with ...

MamaBeagle

•3 years ago

24 Replies

Advice on how to talk to Rheumy about a slow taper at the lower doses

Did many people here find resistance from their Rheumy for introducing say the DSNS or DL taper? If so, how did you go about convincing them, or did you...

Did many people here find resistance from their Rheumy for introducing say the ...

redruth123

•3 years ago

23 Replies

Panic attack or adrenal insufficiency?

Hello everyone I have been struggling to get down to 3mg pred for about a year. Sometimes I manage it but sometimes I feel I need to go up to 4 or 5 and then...

Hello everyone I have been struggling to get down to 3mg pred for about a year. ...

Skodadet

•3 years ago

12 Replies

Thin skinned

Hi everyone, well my knee has improved a little and some days are better than others, now I have another problem. While getting some chair cushions out of my...

Hi everyone, well my knee has improved a little and some days are better than ot...

jules1955

•3 years ago

19 Replies

The ongoing third covid dose debate

I'm chuffed to see that so far Canadian vaccine decision makers seem to agree with my intuitive take on the matter :) . This is a long but interesting article...

I'm chuffed to see that so far Canadian vaccine decision makers seem to agree wi...

HeronNS

•3 years ago

10 Replies

Adrenals and tapering

A specific question please. I am hoping to speak with my GP tomorrow (mentioned on another post and will update). I am on 5mg pred. having slowly tapered from...

A specific question please. I am hoping to speak with my GP tomorrow (mentioned ...

ChinaWuntoo

•3 years ago

29 Replies

PMR and carpel Tunnel

Hi, I have had PMR for about a year. I was on 15 Mg of prednisone. I was able to reduce to 6 1/2 MG but still have some pain especially at night. I have been...

Hi, I have had PMR for about a year. I was on 15 Mg of prednisone. I was able to...

Plains

•3 years ago

23 Replies

Covid to pmr

Can’t help wondering if COVID has pushed up numbers of pmr and fybromyalgia patients. I now personally have been told by 7 new diagnosed people that I know...

Can’t help wondering if COVID has pushed up numbers of pmr and fybromyalgia pat...

Uglow

•3 years ago

29 Replies

Advice please

Please advice and help required . From April after being diagnosed with PMR , the steroids at40mg were not working . Making me so poorly and not relieving the...

Please advice and help required . From April after being diagnosed with PMR , th...

Juapce63

•3 years ago

33 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2021

Visit to rheumy today re: vision loss GCA

Adrenal glands a factor?

Probiotic advice please

PMR and covid booster

Lower back pain

Sodium

Heart rate and steroids

PMR AND VACCINE RESPONSE

CRP numbers when reducing prednisone

GCA diagnosis

Superior Limbic Keratoconjunctivitis

Prednisone and hydroxychloroquine together for PMR?

So close and yet so far!

Slow tapering of prednisone

Here we go again?

Should I up pred?

ThIn Skinned

Tendon inflammation ??

Lots of strange symptoms?

Upped my dose and

A Good Morning

Bloomin' flare....How to decrease pred?

Advice on how to talk to Rheumy about a slow taper at the lower doses

Panic attack or adrenal insufficiency?

Thin skinned

The ongoing third covid dose debate

Adrenals and tapering

PMR and carpel Tunnel

Covid to pmr

Advice please

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