Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,030 posts

All posts for September 2021

Leg weakness , cold and numbness

Hello , my wife suffering from gca FROM last Two month she started steriod 40 mg now goen down to 15 mg with starting weekly acterma injection last month ....

Hello , my wife suffering from gca FROM last Two month she started steriod 40 ...

Rajuguide

•3 years ago

4 Replies

Biotin for hair thinning and loss - dosage advice please?

I have read several postings about taking biotin to improve hair condition and regrowth and have looked through the FAQs but am unable to find any help on...

I have read several postings about taking biotin to improve hair condition and ...

Laineydee

•3 years ago

11 Replies

Question, what is….,

What is TCZ?

DONNA1949

•3 years ago

12 Replies

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Help please for a friend: I need to understand PMR better . . .

I myself am Hashimotos Thyroid, amongst other things. I always read the PMR posts with interest. However, I would still like to benefit from the experience of...

I myself am Hashimotos Thyroid, amongst other things. I always read the PMR post...

Poppy_the_cat

•3 years ago

7 Replies

Flare up????

Hi, Hope you are all keeping as well as poss, especially in this heat!l Will try to keep this brief..apologies if it's a bit convoluted. Was on hol in...

Hi, Hope you are all keeping as well as poss, especially in this heat!l Will try...

Poll8

•3 years ago

25 Replies

How should I prepare for surgery?

I’m new on this forum although I have been following the posts for a couple of years. (Diagnosed in Dec 2018 and started on 20mg prednisolone. ) I am having a...

I’m new on this forum although I have been following the posts for a couple of y...

Expert4essences

•3 years ago

11 Replies

Encouraging Heartwarming News!

A friend of my good friend was diagnosed with pmr in June 2020. An ignorant GP put her on 10mg over the phone. She's a widow with her only daughter in Hong...

A friend of my good friend was diagnosed with pmr in June 2020. An ignorant GP ...

diana1998

•3 years ago

26 Replies

Healthy Joints

Just had this posted to my phone. Thought it useful. https://apple.news/A3KVJSmqWQMiNynzFl1ljGg

Just had this posted to my phone. Thought it useful. https://apple.news/A3KVJS...

Liby57

•3 years ago

10 Replies

Return of bursitis ?

Morning 😊 have tapered slowly to 3 mgs of pred but am finding my old aches and pains in my lower back and left hip are returning ? I had bursitis in my hip...

Morning 😊 have tapered slowly to 3 mgs of pred but am finding my old aches and ...

Geordieland

•3 years ago

12 Replies

Numbness on right side face

Hi as anyone suffered numbness in right cheek and gum and teeth. Iv been on for a year now got down to 1mg with pmr but my cheek and lip gum and teeth gone...

Hi as anyone suffered numbness in right cheek and gum and teeth. Iv been on for...

Denbo51

•3 years ago

4 Replies

Pred causing thin skin. Bleeding gums?

I have been on Pred for PMR for more than 2 years, now reduced to 2mg. For about the same length of time I have suffered with very thin skin which bruises or...

I have been on Pred for PMR for more than 2 years, now reduced to 2mg. For abou...

Cross-stitcher

•3 years ago

26 Replies

Confirming symptoms

Hope you are all doing well as can be. If I was ever in any doubt about the impact of anger and stress on my condition, I was given a timely reminder. I have...

Hope you are all doing well as can be. If I was ever in any doubt about the impa...

Singr

•3 years ago

40 Replies

Painful shoulder

Confirmed, 12 May 2021, as having PMR, started on 15mg prednisolone down to 12.5mg but symptoms have returned to the right shoulder mainly. Now on 12.5mg and...

Confirmed, 12 May 2021, as having PMR, started on 15mg prednisolone down to 12....

Malcolm_T

•3 years ago

12 Replies

Pred dose

I started at 40mg of Pred, tapered slowly to 20mg in Jan and now at 8.5mg. I have reduced slowly half mg at a time from 20mg for 1 or 2 weeks, but have now got...

I started at 40mg of Pred, tapered slowly to 20mg in Jan and now at 8.5mg. I hav...

choirsinger1986

•3 years ago

16 Replies

Costochronditits

Hi does anyone know if costochronditits is controlled by prednisone. I’m pretty sure it’s that causing rib chest pain. Gp undecided. Iv had ecg X-ray at us etc...

Hi does anyone know if costochronditits is controlled by prednisone. I’m pretty ...

Uglow

•3 years ago

36 Replies

No Actemra

Just went to order monthly supply of tocilizumab/Actemra. For the first time ever I was told to call back next week to see if they have any. She said there is...

Just went to order monthly supply of tocilizumab/Actemra. For the first time eve...

Spanky2019

•3 years ago

23 Replies

eventually upped dose - after virus - swollen legs

Hi, After contracting some virus at the end o f July, feeling like the PMR was flaring - and after much humming and ha-ing (sp) - I eventually upped my dose...

Hi, After contracting some virus at the end o f July, feeling like the PMR was f...

Slosh

•3 years ago

11 Replies

CGA or No?

I was diagnosed with PMR 3 weeks ago. At that time I mentioned I was having left forehead headaches and blurry vision. My PA wasn’t too concerned but put me on...

I was diagnosed with PMR 3 weeks ago. At that time I mentioned I was having left...

Stickgal316

•3 years ago

15 Replies

Medical bracelet/necklace

It has been suggested that I wear a medical bracelet or necklace as my endocrinologist thinks I have adrenal suppression. Could I have some suggestions as...

It has been suggested that I wear a medical bracelet or necklace as my endocrino...

NursePeggy

•3 years ago

43 Replies

Do I need Vit B12? If so what and how?

HI All. Just had my blood test results and all pretty good except Doc said my Vit B12 was a bit low at 213 pg/mL (normal range 160 – 950), and suggested that...

HI All. Just had my blood test results and all pretty good except Doc said my ...

LBM1953

•3 years ago

12 Replies

Flare at low dose

Good morning all Could I ask for advice re a flare- I was heading from 3.5 towards 3mg using DSNS, but the old familiar pain and stiffness started to creep...

Good morning all Could I ask for advice re a flare- I was heading from 3.5 towa...

Melti

•3 years ago

6 Replies

Acterma - Side Effects

I am taking Actemra after having been diagnosed with GCA several months ago. A week ago, I developed bags under my eyes and swelling on both my feet. Has...

I am taking Actemra after having been diagnosed with GCA several months ago. A w...

Emira1

•3 years ago

9 Replies

Missed prednisolone dose?

Can anyone help with an urgent query. I’m on 10 mg prednisolone daily but am away from home and have forgotten my meds... I usually take them in the morning...

Can anyone help with an urgent query. I’m on 10 mg prednisolone daily but am a...

Squig

•3 years ago

8 Replies

TCZ (Actemra) effects: high blood pressure & skin bumps/rashes?

Am one of the PMR/GCA (lost sight of one eye) people and progressing steadily on a good path. Initially started on 100 mg of Pred working down to 5 before...

Am one of the PMR/GCA (lost sight of one eye) people and progressing steadily on...

jarn

•3 years ago

8 Replies

Neck shoulders aches.

Hi.its me again,I am having a lot of shoulders aches,goes up back of my neck both sides.would it be because I gone from 4mg to 3mg.what can anyone...

Hi.its me again,I am having a lot of shoulders aches,goes up back of my neck bot...

Flosy

•3 years ago

38 Replies

Chocolate

I’m loving this Michael Moseley episode, especially as my husband and I eat several squares of dark chocolate in the evenings....

I’m loving this Michael Moseley episode, especially as my husband and I eat seve...

Tinasleepyhead

•3 years ago

6 Replies

Bone Scan post Pred?

OH came to end of Pred some months ago - is there a need for further bone density scans? (No problems shown on prevous scans?

OH came to end of Pred some months ago - is there a need for further bone densit...

Nuff1

•3 years ago

2 Replies

Forgot to take Pred

I take my Pred before I go to bed - they are coated tablets - but for the first time ever, I forgot to take them last night! I’ve taken them now but not sure...

I take my Pred before I go to bed - they are coated tablets - but for the first ...

Janann25

•3 years ago

3 Replies

Not PMR

I just wanted to thank everyone who took the trouble to answer my queries last year when I thought I had PMR. Once both senior rheumatologists at my local...

I just wanted to thank everyone who took the trouble to answer my queries last y...

FerrySlipper

•3 years ago

12 Replies

flu jab and poss covid booster

I've just been offered one and expect they'll offer a booster covid when available. mine was pfizer. Never had flu in my life save on one occasion and rarely...

I've just been offered one and expect they'll offer a booster covid when availab...

cycli

•3 years ago

16 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2021

Leg weakness , cold and numbness

Biotin for hair thinning and loss - dosage advice please?

Question, what is….,

Help please for a friend: I need to understand PMR better . . .

Flare up????

How should I prepare for surgery?

Encouraging Heartwarming News!

Healthy Joints

Return of bursitis ?

Numbness on right side face

Pred causing thin skin. Bleeding gums?

Confirming symptoms

Painful shoulder

Pred dose

Costochronditits

No Actemra

eventually upped dose - after virus - swollen legs

CGA or No?

Medical bracelet/necklace

Do I need Vit B12? If so what and how?

Flare at low dose

Acterma - Side Effects

Missed prednisolone dose?

TCZ (Actemra) effects: high blood pressure & skin bumps/rashes?

Neck shoulders aches.

Chocolate

Bone Scan post Pred?

Forgot to take Pred

Not PMR

flu jab and poss covid booster

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